I have been pretty aggressive lately and also having some other bart symptoms- a lot of foot pain. A lot of sweats too. Will this disease ever end? Prayers to you. My kids also support me too, it is...
I am sympathetic with you. My husband wants to go camping with our entire family- 3 kids and me. I am terrified of that! Maybe beach camping?...
I kind of feel like if I feel good off antibiotics, should I stay off them? But I guess it is like peeling the layers back to get rid of all of this crap. I am not sure what the point is of taking a...
Is it just stomach pain you are referring to? I am having extreme bloating- to the point of looking pregnant and it is hard too! I am going to the bathroom, so I am not overly constipated and I don't...
I live right outside of DC so I am going to try to go!...
This is my week off all antibiotics including all herbals too. I have my same old symptoms but I am starting to notice an improvement. I have a little more energy and less pain. I am not having any...
Yeah, I just don't know if I want to spend $250 and not feel any difference....
That would be great for me!! Did it make you feel better though other than the poop?...
My LLMD is a regular Internal Med. dr. that specializes in lyme so she is just considered out of network for me. I guess I am lucky in that regard....
I would try to listen to your intuition- I believe you know what is right deep down. If you had a bulls eye rash, then I think there is not much doubt that you have lyme and if you are having other...
What are ND's?...
Anyone gotten these IV's to help the herxing and gotten them covered by insurance? I know a crazy question right but my insurance has covered everything else so far including 100% of my Igenex labs....
I have been having tremors too! My hands have been shaking badly too. And the fatigue is bone crushing although today is a little better. When do most people see significant improvement? I see some...
Well that is a good response- maybe I will try it! Thanks Mystery......
My LLMD suggested I try lamictal for mood stabilization and depression. Anyone with experiences? I already take Paxil 30mg. I did notice that my mood might have been a little better when I was taking...
I take a boat load of supplements and vitamins. I take fish oil not cod liver oil though. I don't take coq10 either but everything else and lots of herbals. I am not noticing a big difference from it....
Summer- how long do you notice improvement after the glut IV? I was just reading your blog and I am feeling a lot like you in terms of feeling so bad and just exhausted all the time and emotional...
I think all I do is complain but this disease is horrible!! I just want to get better, I am so sick of being sick. I think the fatigue is worse than the pain sometimes. I think my pain may be a...
Is kombucha good or bad? I have been using this recently....
I id an enema and a coffee enema today and I have been feeling terrible ever since. Nausea, dizzy, bad stomach pain. I have never had that response before. I think there is a stomach bug going...
I'm taking that med and have that too. I think I have a stomach bug and it is bad today. I feel for ya! It sucks....
I am with you and I am afraid for my 3 kids who love to spend time in the woods, etc. I am trying not to overly worry but it is hard. So, I am with you on that one....
I know it is terrible to be made to feel like a criminal because you want some relief and to function in your life. I believe that we deserve to use what we need to get through. I had a bad...
Thanks all. I do feel it is hormonal in a sense as I always had it since I have had kids with increase postpartum but nothing like this. I am going to cut it a little shorter, it is pretty long now....
Thanks Snowbunny for all your help and ongoing dialogue.......
I do have enough 10mg to take but I will be a few pills short. Plus, I have percocet as breakthrough. I think I am going to try and make it through until Tuesday and bring the rx's back and let my...
No, you are right. He did give me the 20mg twice a day, but what confused me is he said my regular dr. said take 30mg a day not 40mg. When i spoke to regular dr.- I thought he said take 20mg twice a...
Thanks Snow Bunny. When I asked this new dr. if it was noted in the computer that my previous dr. told me to increase med to 4 per day. The new dr. told me the computer said to increase to 3. My...
I have posted this on the lyme forum, but got no response- so I thought I would post here. I am being treated for fibromyalgia & lyme disease. OK, this is a little complicated. I was taking oxycontin...
Anyone?...
OK, this is a little complicated. I was taking oxycontin 20mg twice a day and percocet for breakthrough pain. My pain was better for a few days and we decreased the OC to 10mg twice a day. Then my...
My hair is falling out in handfuls when I shower and brush my hair. This has been going on for months but I thought it was a side effect of topomax but I have stopped taking that and it continues on....
My LLMD diagnosed me with that and it was my T# hormone that was dysfunctional. She tried me on Cytomel but I felt worse. I am now taking armour thyroid and I don't notice any good or bad, but as...
My LLMD recommends it and I take curcurmin prescription strength from Lee Silsby pharm., I think, and I still take a lot of pain meds but it can't be hurting. I take a lot of herbs and I don't know...
Wow, it does feel like we are all feeling the same way this week, maybe it does have something to do with the weather. I can see how people end their lives sometimes, that is how I felt earlier this...
Thank God we have each other and this forum to give us support to get through it. I am reading Cure Unknown right now and it is riveting and there are so many stories of sick children and at least I...
We put so much pressure on ourselves, don't we...I know anxiety- have you ever taken medication to calm anxiety, panic. I know it has helped me tremendously- a super low dose to take the edge off....
Marie- I hear you honey! This disease is so hard. I have been feeling down too- I think it is part of the disease. Try and go easy on yourself and accept that it is OK to feel that way. Is there...
I had a better day today!! Oh thank God. It didn't appear like that when I woke up but it turned around a couple hours in. I upped my long acting pain med and maybe that helped. I was ready to quit...
I am so sick of all of this- I just feel like stopping all the treatment b/c it just seems to make me sicker. I have been taking omnicef for 3 months, now I just started zithromax last week and...
You all are great!! I can't thank you enough for reaching out and taking the time to support me in some really dark times. Warrior- I have been treating for about 3 months now. What are you taking? I...
THANK YOU!!!!...
Hey everyone, I have just started taking zithromax/mepron in addition to omnicef and I am in incredible pain and fatigue and I am finding it really hard to function. I have 3 kids- almost 12, 9 and 7...
Sorry you are feeling so bad. Should you get checked out by a Dr. especially for the fever? Take a fever reducer and pain med and drink plenty of fluids and rest as much as you can. This too shall...
justme- thanks for your offer. I will pm you for more info. Marie- thanks for understanding and replying. It is so comforting to have people who are out there who know what I am feeling. It is so...
Thanks Marie and Justme. What do you think is helping you to have better days? I kind of just decided that I am going to have give ME a break. You know it isn't so much what other people expect as it...
Sorry this is going to be a poor me rant but I am so tired of feeling like crap every day and not being able to do the things I want to do with my family. I am like a 90 year old fat woman. How am I...
What does the full moon have to do with symptoms flaring?...
They are adorable- so nice to have something to take your mind off everything else!! Hang in their with your husband. My husband has a terrible cold/flu and he was calling out in his sleep that he...
Can you all email me their names as well? I see a Dr. in Reston, VA and the practice is pretty good but DC is actually closer for me. Thanks....