I too get this. Especially when I am driving. I think it's all the movement of the traffic, the freeways make me go into a state of panic. Stores and the lights seem to bring it out also, but I am...
Thank you all for your replies and support. It helps me so much to have others going through the same thing relate. acharms - - that seems to be a common theme with treating Babesia. It takes several...
Hi everyone, This is one rollercoaster ride that I didn't buy tickets for! The ups and down with this disease sure can be frustrating :( I am 7 months into treatment. I saw marked improvement in...
I am soooo happy to read this!!!! Busy with life! This is wonderful news! It gives me more push to keep going forward. It sounds like you have the co-infections under control and now it's the Lyme!...
Yes, I have also experienced an increase in shortness of breath (air hunger). I am housebound and cannot do much of anything. Overwhelming fatigue, swaying feeling, no appetite, headache. I feel...
I am on Mepron, it's almost been 4 weeks. It sure is kicking my b*** as well :( The fatigue and anxiety are off the charts for me. I am not sure about Malarone doses, but from the research I have...
This is also one of my worst symptoms! I get the night sweats, and also any kind of physical activity I am a dripping mess! We have to keep our house cool with the a/c on now that it's summer or I am...
Hi everyone! I haven't posted in a while, but I do still follow the forum. My treatment is plugging along. The month of June was definately the best one I've had since starting almost 7 months ago....
This is WONDERFUL news Opugirl!!! Congrats and best of luck to you!! You have a great attitude and spirit :-) Keep us posted on how you do with the herbals. Happy Dance for you!...
I have also suffered with this horrible symptom. It is getting much better with treatment. I used to struggle really bad in stores, driving or standing in areas where I couldn't hang onto something....
I have been drinking a cup of hot water with slices of lemon added. It seems to really be helping when I am herxing....
I also wanted to say this is awesome news!! Traveler, you always help so many of us and are very caring :-) Whenever I get down about my own progress I think of your story and several others and it...
Sending you hugs! I am so sorry that your going through all of this. To have an illness that is so debilating and having to prove it over and over, especially with employers can be such a nightmare....
Hi Brassbutton, I can relate to your story as many others on here as well. I too was diagnosed with Fibromyalgia 8 years ago. Until I became very ill last year, I had Drs treat me the same way. Once...
I am sorry you are having such a hard time. I can relate to your post. I also have Babesia and it flares every 5-7 days. The emotional symptoms of my herxes are starting to become worse than the...
I had my appt. with my LLMD yesterday, and she diagnosed me with Babesia. I will be starting Mepron. Does anyone have experience with this? How did it make you feel? Should I be taking it with...
I was very nauseous when I started Doxy. I was also weak. I experienced a herx for about 7 days. The nausea did get a lot better after a while. I found that eating something before taking my meds...
Hi Lymer, I am on Ceftin. I have been on it for almost 6 weeks. The first month was rough. I herxed on and off quite a bit. But the past few weeks I have had some much better days. I am gaining more...
I have it also, I notice it more at night. It comes and goes. It has increased since starting treatment, hopefully it goes away. Have you noticed any ear pain? I get that too....
I used to work 40 plus hours a week. I worked hard my entire adult life. This past year that has been a very tough issue to deal with, being so ill I could not work. I couldn't drive, I didn't have...
I also went through many months of dealing with short term disabilty with my former company. The hoops that they made me jump through were unbelievable. I had worked there for 9 years, and as I got...
Hi everyone, I am now in my 4th month of treatment. I added Ceftin into my protocol a month ago. I was noticing some improvements. I was in a pattern of having 5-7 decent days, and I would herx for...
I had my gallbladder removed almost a year ago, as I was suffering from attacks for 3 years prior. After the birth of my son they got a lot worse. I then got really ill with severe GI symptoms,...
It definately sounds like you have Lyme Disease. I had the same band show up positive on the Western Blot and couldn't get treatment from an ID Doctor. I see a great LLMD and am also from Minnesota....
I have felt the same way this week. It is not a very nice Spring in Minnesota. It is cold and right now it is snowing! I feel trapped in the house. I went up higher on my dosage of Ceftin and I am...
''No one can go back and make a brand new start. Anyone can start from now and make a brand new ending.”...
Hi Shadow, I am on Doxy, Plaquenil and Ceftin. I will start pulsing Tindamax 3 days a week soon. I take a lot of supplements to help my immune system. I also take Nortriptyline (low dose) which is to...
I am there with you! I have been sick for 11 months, started treatment 4 months ago. I am slowly seeing improvements. But I hate the bad days. I am useless on those days, housebound and it's hard to...
That's what I was wondering, since it affects the CFS it would make sense to have more "emotional" feelings. My instructions say to take 1 tablet every 12 hrs for 1 week (500mg), then increase to 2...
I started Ceftin and have been herxing the past few days. Do any of you notice your symptoms coming and going rapidly sometimes? In the past 3 hrs, I have experienced pain, achiness, tired, anxious,...
I also agree this illness has made me learn to let things go, and just enjoy my son. If I was still working full-time living that go, go, go lifestyle I wouldn't have nearly as much bonding time with...
I will definately have to check this out!! Thanks! We need some activities to keep the little one busy. It is still so cold here and lot's of snow - we cannot go outside to play much. I cannot wait...
That's great news!! Isn't it unreal how excited you get when you have a lot of energy and feel HUNGRY?! I always tell my husband, so this is what it feels like - - because it's been 10 months of...
This thread really helps my spirits! The more difficulties one has to encounter, within and without, the more significant and the higher in inspiration his life will be. ~ Horace Bushnell...
Opugirl....how are you doing on Ceftin? I hope your handling it okay. I have to go really slow with everything because I can really herx. I am on month 3 of treatment and will be starting Ceftin next...
We got it here overnight and it's still snowing!! We got 8 inches here in Minnesota. My poor husband had to shovel our driveway out. At least it's March and the end of it is in sight. THINK SPRING!!...
Hi Wryter, It was $90.00 - a little more than I wanted to spend, but I have seen some for much more. It is Jack LaLanne's Power Juicer. I am happy with it so far. Thanks for the website I will...
Thanks! You have to be a warrior while fighting this disease from every aspect ;)...
I bought a Power Juicer at Costco this week and started juicing today. My LLMD recommended this, and I know others who have Lyme that juice. It's a great way to get all the vitamins you need without...
I love all of these! Great idea opugirl :) I found this on facebook and had to post: "We need to see that life is not always perfect. We will not always get what we want. And though it hurts a lot,...
It seems to be the same thing that happens to me as well. I was already vomiting a lot before I started treatment. Now on Doxy and Plaqunil, I have experienced some intense herxing. Vomiting seems to...
I agree - thank you!! Great moderators on this site who give so much of their time, knowledge and wisdom to help so many people....
Hi Lymer :) I also take Nystatin. Is yours liquid or pill form? I take the liquid that you swish in your mouth and swallow. I wasn't told to take it seperately, however I take it around the same time...
I bought a portable infared sauna off of Amazon and I really like it. I try to use it everyother day.And the days I don't I take an Epsom Salt Bath to detox. I have noticed that when I do not keep up...
I watched it when I suspected I was sick with Lyme. I cried too. How can this be happening in this day and age?? The truth will come out one day. I have found a few support groups in my area. My LLMD...
This is such a hard topic for me. I want more than anything to have another child. I am 36 and feel the clock "ticking." My husband says we have plenty of time, but I worry. I got sick when my son...
I am so happy to read this awesome news!!!! This is wonderful. You are always very helpful to everyone on here. And to be feeling better with your little ones, it has to be such a relief. It gives me...
I am very sorry. Hugs to you. Is there anyway you could go on short term disablity? Lyme and it's symptoms can be so disabling. I give you a lot of credit for working and raising a toddler full-time...
Thanks everyone for this post with a lot of helpful information. Mystery ~ how long were you on Ceftin? Were you herxing everyday? What were your symptoms? When I read this it concerned me as this is...
I went to a Pain clinic for 4 months (before I knew it was Lyme) and had Acupuncture done 2-3 times a week. It really did help with my pain levels, bringing them from 10++ to tolerable. It also helps...