I love all of you for giving so much. I have been going through a lot of guilt because I feel like I should have done more or maybe I chose the wrong treatments. I really was grasping at straws,...
Thank you so much. You are giving me comfort and that means so much to me. Hugs to all of you....
Thank you so much for your kind words. He was a wonderful, loving man and I miss him terribly. It is so important to tell your loved ones how much you care. Please hug them for me. The memorial...
Usedtogarden, I use EOs so I would love it if you wanted to share doterra's protocol....
Then there's my husband who was super healthy before being diagnosed with ALS and Lyme. He did not know he was living with this in his body. You can't treat something when you don't know there is...
I am also sorry you are suffering such pain Smartone. Could you enable your email address so I can write to you....
" Sometimes larger corporations will specifically look for a physically disabled person (visually obvious), but lyme and most illnesses dont fall under that category." Not true....there are certainly...
Thanks again. I reduced it by half. It took him a couple of hours to get over feeling so poorly....
Thanks Trav. Toby wasn't doing well on 800 mg. the last couple of days and I don't know if it's because it's working for him or it's too much for his system......or it's due to something else. I have...
Thanks for your responses. I don't have access to the bottle I have for Toby, but I will check to see what the dosage is and I will do more research on it. He doesn't need any more problems than he...
Does anyone use the product Homocystex for methylation issues? If so, has it helped? Homocystex + is also available. Which one is recommended for people with Lyme?...
Impressive!...
I like your post twinmkm, especially this "What I will promise is that tomorrow will be possible. " That is so true. If you ask any doctor if my husband could survive what he has, they would say...
Positive news encourages the rest of us. We are all looking for a light at the end of the tunnel. Thank you for sharing IHL and I do hope your good news continues. Blessings to you....
Jas, My husband was diagnosed with ALS so the manifestation is similar to hers, but he only started experiencing muscle atrophy and other lyme symptoms 4 years ago. His doctor had mentioned on a...
I sent you an email Ginger. My husband's diagnosis is one of the worst a person can get. If he can get through this, so can you. We are here for you all the way....
Sweetpea, I think that LLND is one that ILads recommended. I was thinking of checking her out so this is discouraging. A person where Toby goes for healing recommended a practitioner in Newberg who...
Pixie, you are as adorable as your name. I am so very sorry you lost people close to you. That sucks for sure. My husband, Toby, and I don't feel alone (there are 7 people in our house at this time...
Hi Ignored, My husband has Lyme with ALS symptoms and we live near Portland. He isn't dealing with pain but maybe if you want to, you can write to me and I can maybe give you a few options to try in...
I am the one Garden is speaking of. The chiro's wife had MS symptoms and according to her, she was mostly healed with the treatment. My husband could not raise his arms and after one of the...
Sarah, I don't know if the ALS symptoms are Lyme symptoms or what. People have different theories as to what it is or what it causes. Some think ALS and other similar conditions.ie. MS, is Lyme. I...
I think I remember reading that Sweetpea. Thank you for the reminder....
Sweetpea, I bet these treatments also caused pain when opening your wallet. Toby hasn't been to any doctor who treats Lyme so cue me in as to why this LLND didn't first find out - or while you were...
The place we go to for healing uses that Myeezy. They really recommend it, but we have only done it once. I should bring a glass bottle everytime so we can use it....
I am so sorry too. You know, I think if I was there, I would have wanted to punch these people for what they put you through. It's just so hard to understand how, with all the advancements in...
I know. I have read a couple of others that are similar. It makes your blood boil!...
This is good news! Thanks for the "good news" post....
Horrendous! I think the state should be sued along with the doctor for doing this to them. There needs to be changes at the government level so people can be treated properly. Let's keep advocating...
Sarah, there is no doubt his reactions were from the injections because he didn't have the problem until he started taking them. Maybe it triggered the Lyme to come out, who knows, but it had to have...
Toby uses Homozon as ozone therapy. He has been using it for at least a couple of months now. I wasn't sure if it was helping that much, but I think it may be. He seems to breathe better than he used...
I am sure Toby has Mycoplasma as a coinfection. He twice herxed big time a couple of years ago when using Rife frequencies. I also wonder what symptoms people have with Mycoplasma. Since he has ALS...
Thanks for the tip Gingeranne. I was looking into foods to help Toby gain weight It'snotjustlyme, I understand what you are saying. It is so difficult for many to make dietary changes. I think the...
Toby has it, but it started after attending a rock concert about 8 years ago. We assumed it was because the last group playing was super loud. Then it got worse after his TBI. It's hard to say, with...
Oh...and thank you Elena for the link. We need to stay as informed as possible....
Excellent post Trav....one of the best I have read. If it's okay, I would love to paraphrase a lot of what you had to say plus use the quote by Paul G Auwaerter, MD and his cohorts and send to family...
I zone in on any posts on B12 because my husband's first ALS symptoms started in 2012 while getting B12 injections at his job. His doctor told Toby that he was low in B12 and would he like to get...
I think the suggestions are good. I put avocadoes and almond butter in shakes for my husband. He also likes eggs. He is 6' tall and his average weight before getting sick was 185 lbs. He weighed 150...
I've been giving Toby Colostrum in the powder form for a couple of months now. I was told it could also help with muscle issues. It is really good for you so it can't hurt....
This is good info. Thank you. I always thought my husband could have methylation issues, but I wasn't sure. How does one test for it? I probably read it somewhere but forgot. Heavy metals is more...
Thank you Antonio for sharing your experience with Oregano. I will look into that for my husband....
Hi Garden, I think of you too. I still hope to someday make it to the Lyme support group....
I have a selection of oils, such as Peppermint, Lavender,and Eucalyptus, because I love the benefits. They are a wonderful addition to treating physical and emotional issues as long as used properly....
Hi Pixie, I am also glad you decided to post. i tell people, if my husband and I can get through this madness so can anyone with Lyme. He has one of the worst cases of infection because it is life...
Toby has an ionic footbath once a week along with ones at home. It is a good way to detox and the clay draws out the toxins....
That's great SailorKim. It is so encouraging to hear and I agree with you 100 %. Toby is stable and I believe he is also healing, but we haven't been to the ALS clinic since April. You can tell he is...
I use the Basil and Pepper oils for swallowing and Frankincense for brain issues. I got Thieves when Toby had an eye infection- along with moistened chamomile tea bags - and decided to keep using it...
I am glad you are heading in the right direction too mommychops. I saw that you wrote me last night, but I was too tired to respond. I will respond as soon as I get back to the email. Try to stay...
For Toby I can't tell if his brain issues are due to the brain injury or Lyme. It makes it so much harder....
st0rch, my husband also experienced Tinnitus after attending a loud rock concert. Interesting that this happened to both of you. It was at least a couple of years before testing positive for Lyme. I...
Most of you probably know the site, but I thought I would post the link for those who don't. http://www.stopthelymelies.com/stll-blog/list-of-doctors-that-treat-mthfr-by-country...