What is the consistancy of your output into your bag? Is pretty thick like peanut butter or thinner like pancake batter? I ask this because if it's too thin then you are losing a lot of water there....
Hi Silent Lucidity, I just want to say that I feel ya, I am 8 weeks out of what I recently learned is a sub-total colectomy (I was calling it a total for awhile... another story) and have an end...
Yea, mine shows through my t shirt as well and I use a flat Hollister 2 piece. Doesn't bother me so much as it's not really that noticable unless you are looking for it. Try www.ostomysecrets.com...
Pred made me a wreck too, not so bad now that dose is down, I wish that I could help you other than to say get off of it as soon as you can. Best wishes and good luck with your next surgery....
Hey Lucky, thanks for the response. Cool story, always nice to find a caring and open minded doc. I take a great deal of Mag and its seems to help some, but over the last few days I have really upped...
Hey ks1905, how was the pred withdraw for you? I have noticed that since I got down to 15mg that I am feeling even worse.. weaker, and the last two days I have awoke with the shakes that resolved...
Thanks everyone for the good words..... One day at a time I guess. /community/emoticons/yeah.gif ...
Sounds like others need you man, if you can't bring yourself to go to the docs for yourself, maybe you can for them. Best of luck. -Mike...
I would like to thank you for responding to my previous post and wish you the best of luck with your coming surgery. As mine was only 4 weeks ago I still have fresh in my mind the decision making...
It does feel good knowing that I will never have to deal with UC again. Congrats to you as well. Also, sorry everyone, I don't know what is up with the format of my post, I didn't write it that way....
Hello all, today is the one month anniversary of my divorce from UC! I took the surgery option after coping with UC for 22 years using no prescription meds until last year. Pred didnt work, (still...
Man, do I feel like I got ran over by a freight train, but it's over and it was a great success. Props to Dr. Sarin and the whole surgery team at UCSF, and thanks to the HealingWell community. Will...
Thanks to everyone for the replies, and I will indeed post, post-surgery :smilewinkgrin: I am not sure what route I am going, planning for three surgeries, but might just decide that I can live with...
Yes, thanks UCwhat, essentially I am still sick even when my bowels are working normally (well as normally as mine can work) and I am just hoping that I don't find that after surgery I feel just as...
Thanks for all of the replies, but maybe I need to re-phrase... I have a lot of symptoms that would seem systemic of the UC even when I am not having blood and mucous in my stool. My gi doc who is...
Hi everyone, I was wondering if any of you that had a colectomy had times where (pre-colectomy) you were not having bloody bowel movements but still felt weak, tired, had painful joints or any other...
Thanks for the reply Sue, will do. -Mike...
Hi everyone, I am looking at a colectomy and wondered if anyone here knew of Dr. Ankit Sarin? He was recommended to me by Dr. Varma, who was my first choice surgeon but she is going on vacation. Just...
Thanks for the replies, another question since surgeons were brought up. I can go home for a few weeks with more drugs or I can have Dr. Ankit Sarin do the surgery this week while I am already here...
Hello all, I have been in the hospital at UCSF for over two weeks. Today I have to make the decision between more drugs i.e. Remicade and Prednisone or a colectomy. History- have had UC for 22 years,...
Has anyone seen Under The Eightball? I heard about it and wanted to watch it but there is oddly very little info on it anywhere. Anyone?...
Hi missyouall, I read all of these and decided to chime in as well. I have been recently clinically diagnosed with Lyme based on 1 band 23 showing up on one test and an ind39 and +41 on another along...
Yea, just really learning all of this stuff, but the more that I dig, the uglier it becomes. I still can't even be 100% sure that I have lyme, even with the dx, but this is going to interest me for...
The cdc doesnt read any of these? http://www.ncbi.nlm.nih.gov/pubmed/22889796 ...
http://www.ncbi.nlm.nih.gov/pubmed/23346260 another the cdc hasnt looked at...
Oh and yep, by the gallon, only way I can keep my bp up....
Hi Traveler, and thanks for the reply. I was told that band 23 was also lyme specific... outer surface protein?? Anyway, I was diagnosed off of two separate western blots, one came back positive for...
Lying here on my tenth day of antibiotics, feeling as bad and maybe worse than I ever have, not sure if its herx, not even 100% sure that it is Lyme, my neurocardiogenic syncope is so bad (fainting)...
Just wanted to thank everyone for the positive vibes....
Thanks for the good words, I have poured over pretty much everything here... pretty awesome, along with tons of other research. Just tired of being in limbo and being afraid, ready to start the fight....
Just lying here feeling sorry for myself, willing myself not to go to the emergency room, again, so I thought that I would tell my story... One that sounds so much like many of yours. I realized that...
Yea thanks, there is actually a very good one right here in Chico, he isnt however taking on any new patients. I have met someone here who is being treated by him though and she is working on getting...
Thanks for the word. Symptom-wise I am textbook lyme and have been worked up for everything under the sun. I live in northern california and have been an outdoorsman my entire life. Have had about a...
Hi everyone, I have been chasing down this mystery illness for years, recently a hospital doctor mentioned possible lyme, I had a test done through arup where I had band 23 present on igm but test...
http://www.squidoo.com/understanding-lyme-tests this link will help you understand your tests better. It appears that you have Lyme...
I was curious to find out how many people here with Lyme also have either Crohns disease or Ulcerative Colitis...
If you can tolerate pineapple it is loaded with bromelain...
It is an enzyme, I didnt read anything about cramping but it does help digest food......
Sorry, not very good at this. the turmeric, boswellia and bromelain I take with each meal, so the dosage I listed is divided. Tha brom is in 500mg tabs, one with each meal. When I am flaring I cant...
I started out with 300mg three times a day for 3 weeks with no change, added turmeric at same dose with no change, quit for awhile and then started really looking into bioavailability after another...
I am getting ready to try a drop in dosage, maybe by 50% and see if I maintain remission. I havent tried a curcurman extract....
Greetings all; This is my first time posting on a forum so please forgive my ineptitude. I just wanted to share something that might help others with ulcerative colitis. I have had uc for about 16...