Thanks Traveler! I shall provide updates or ask questions. Thanks for the response....
Hi, I hope Traveller can weigh in here as well as anybody who has taken Chronic Tonic. I am still finishing up a round of antibiotics, so I'm curious to know if I can take Chronic Tonic with it or if...
Yucca on the way as well as the Anti Neurotix. When i ordered the neurotox by phone i asked how many drops each bottle has. I was told 4600 and that i should take 60 drops a day. Just curious how...
Thanks! I've put in an order for the Neurotox....
Hi All, I just found out that I have high blood ammonia levels. It's the first time I've had it checked. I am at 102 on a scale of 40 to 102, so just about to rip over. I've read on the Hansa site...
Hi, I'm a Lyme patient having contracted it 10 years ago. My biggest symptom is full body pain across my muscles, bones, tendons, ligaments, and soft tissues. In short it is diffuse and everywhere. I...
Hi IHL, let it out? No better place t do it than Oregon. I am from Portland and Bend and now live in the DC area, but I often think about the fresh air of Mt. Hood and Bachelor and the great outdoors...
I also have high c3a and c4a and my knees and hip sockets are a hey and weak. It almost feels like they are kept together with rubber bands sometimes. I've also dome hob therapy and that has not made...
A new bit of good news on a potential therapy for Lyme which blocks manganese. Looks interesting. http://www.empr.com/can-a-common-allergy-medication-help-treat-lyme-disease/article/397324/...
I take xylitol and Lactoferrin for 5 days for the first 2 weeks of the month during which I am also taking ceftin and azithromycin, followed by coartem for 3 days during week 3 and then a week off if...
I am on the lactoferrin - xylitol biofilm protocol along with antibiotics as well and it definitely makes me herx. My main herx symptom is increasing pain and this protocol brings the pain for sure....
For me I'm pretty sure it was on a golf course in Loudon county. I recall picking a few ticks off of myself one day on the course followed by taking one tick off that I found on myself driving in my...
Hi Marie LS, Thanks for the response. It is good to know that elevated levels mean excess toxins as that us what I am currently treating with Cholestyramine. My melanocytes stimulating hormone level...
Hello fellow Lymies. I was curious if anyone has high TGF B1 levels? I just found out that I do which may be contributing to my pain issues. I also read that it can be due to Mold Sickness. Does...
Thanks Traveler and congrats again. I look forward to reading more positive reports from you. I do have a very good LLMD and I just came off of 6 month's of the Samento/Banderol/Lumbrokinase...
Congratulations Traveler! What an inspiration to hear that you are feeling well. Would you please share which herbs you used for each bug?...
Hi everyone. I hope we are all getting to enjoy some spring weather! I'm curious if anyone has ever been diagnosed with Euthyroid Sickness Syndrome? I've been going downhill very fast since I started...
Hi, I have Lyme Disease and have also been diagnosed as having Euthyroid Disease as defined: Euthyroid sick syndrome, sick euthyroid syndrome, non-thyroidal illness syndrome or low T [u][2][1] where...
I feel the same way and am going to talk to my llmd about it. My biggest issue is generalized pain in most areas of my body. When I flare which has been more and more frequently, my pain goes through...
First off, I think this is the first time I have seen JelaineP on here in a very long time, at least I haven 't seen a recent post from her in quite a while, so welcome back or at least hello. I...
Thanks for the response 2y4t. I've heard of the duragesic patches with Fentanyl which is what my dr. has mentioned to me before. Are these the same type of patches you took? How long do you think I...
Hi, I've never posted here. I usually post over on the Lyme Forum. However, I am looking for a different view of how I might manage the pain which I live with daily to determine whether there is an...
Has anyone noticed an increase in Lyme symptoms during and after air travel? I have had to do a fair amount of traveling for work over the past 4 months and have noticed each time after I fly, my...
I don't post much, but some of you have known me on this forum since 2007. Over that time I've done years of antibiotics and tried most everything with some education along the way of course! Over...
I have been taking banderol mixed with grapefruit seed extract and teasel root followed 20 minutes later by samento. I think it works better than most things have in quite a while. The exception...
Dr S. In Reston is very good and uses hyperbaric therapy. Dr J in Gaithersburg MD is good and takes insurance. Hope this helps....
I used to be an avid runner and sure do miss it. I had to quit running when I got sick and was sick for two years. When I was diagnosed and went on antibiotics for 2 years I was able to pick it back...
Dr. S in Northern Virginia is very good and I see him, but does not take insurance and you will pay quite a bit to get started. However, he is very progressive and does differnt modalities such as...
I would go to see the LLMD in Germantown who I have been to to get a second opinion. I think he cares and knows quite a bit and the insurance part of it helps greatly. If I make a change from my...
Hi JR, You are not alone and I assure you, you are asking the right questions and have come to a good place for support. I too knew I would die before I received treatment. From the sounds of it you...
The insurance company paid for all the Mepron and I still have 6 bottles left over. I wonder if it still works after it has been in storage for 2 years? I haven't had a stool test, but think I will...
Bucci, I don't think I have Bartonella at least not now. I did have Babesia which was treated with 13 month's of Mepron. When I first got sick I had tremendous brain problems and was unable to...
It is a blood test only, but they draw blood in 2 ways. One through a regular blood draw and the other through a finger prick to expose the blood to air. The base test for the main panel of pathogens...
I haven't posted in a long time and I usually only post when I have something which I think is of interest and provides important diagnostic information. I recently had the Spirostat panel test which...
Hi, I do remember being where you were. Thank God I found physical and spiritual help. I was at the end of my ability to deal with what my physical body could handle, but did not die, although I felt...
Hey Georgiagirl, Long time, hope you are making progress. I took Artemisinen for about 18 month's almng with Zith and had a lot of ringing in the ears and my Babesia caused a lot of sweating. I...
Hi Cajungirl I have tried Turmeric in capsule form from GNC. What I have heard is that you need about 500 mg of curcuminoids which is the active compound in Turmeric to enter your bloodstream to be...
I have tried Teasel and have some at home, but it does indeed brig on the most intense Herx's, so I am not taking it currently. It could be that it is in itself toxic. There is a person by the name...
Hi frikandfrak, the Bio Solutions device is a contact machine like the GB 4000. However, there are some considerable differences as follows: The Bio Solutions unit only has hand held cylinder...
Hi frikandfrac, sorry to hear about your son. I myself have developed some level of OCD primarily expressed through repetitive thoughts. I also just bought a rife machine, a GB 4000 contact type...
Hello all! It has been month's since I have posted. That doesn't mean I don't keep an eye on here for you though;) I'm pecking this out in bed after having taken a muscle relaxer (Soma), Neurontin...
In fact I am low in vitamin D. I am at 29 and the threshold for good health is 32. I do take 1000 my but 3x a week but will probably step that up to 2000 daily. It's so hard to know what will work. I...
Hi Cajungirl, thanks for your support. I think I do need to see a pain management specialist. My LLMD who is very good and knows about my pain has not brought it up as something I should look for, so...
Hi, It's been a long time since I posted as there came a point where I could add no creative and uplifting news to this beast of a disease which even after 4 years of having it, I still can not come...
Alfers! I'm going to send you an email to get more details on this Thyroid question. I've gottten very lazy with posting here. I've been diagnosed with high calcium today and need to find out why. My...
I just went out and bought Curcumin which is highly regarded as a herbal/spice antiinflammatorry. I have heard it works well for many. I have only taken it 2 days now and I am in the middle of a big...
I haven't posted for a while because I just don't know what to think right now. I have struggled and almost died from this disease. However, as of right now and I am still on antibiotics, for the...
Hi all, It's been a wh9ile since I posted, but I keepo reading. I saw my LLMD yesterday and my CD57 went from 2 in march to 60 currently. I think it is because of the Bactrim regimen which I have ben...
Lyme causes cachexia which is weight loss due to lack of absorbtion of nutrition. Lyme has many gastrointestinal manifestations which cause the body to not absorb food, so you lose weight. I dropped...