I'm new to this forum but have been dealing with this for 4 years. Ever since I got lyme disease. I had a real good summer but towards the end I could feel minor symptoms coming on. Then my kids gave...
Hello everyone, hope the new year brings us new hope...I'm usually on the lyme forum but seems I have overcome most of my worst symptoms with natural treatment. My tinitus is still at top volume...
PS. Just want to add, even if you don't have amalgams you can have heavy metal burdens. We get it from the environment, pollution, CFS lights and vaccinations. If you aren't a good detoxer, chances...
Don-I want to thank you again for sharing your knowledge. It was through your daughter's story I first heard about Hansa and at the time it wasn't an option. But getting to the point I got to, it was...
Hello all, I haven't been on the forum for quite awhile. At first it was because I was getting close to the end :( Couldn't even get on the computer anymore. I began to deteriorate rapidly and the...
Thank you Csmm23. I had at least 6 large and deep fillings removed. One quarter of my mouth and the largest amount was in there. My adrenals were already stressed so it definately made my fatigue...
Thanks, its always nice to know you aren't having something new and scary! Since the appt I have increased my vit c from 1000mg day to like 2500-3000 mg day per dentists advice. Also added selenium,...
Does anyone get a feeling like acid in your spine? Also have bad head pressure whooshing in my ears and increased volume from tinitus. I haven't been treating for a month for trying to get strong...
Jewelle-Noelle, so sorry for you to see your daughter suffer so. It is hard to see our children go through this horrible disease and I can only imagine. I will keep you and your daughter in my...
I'm given the binders for detox. I herx off everything and have hard time detoxing. Bananas actually are one of the few things that soothe my pain. I was trying toavoid them because inflammatory and...
Thanks Traveler. Nuts are something I used to eat a lot of but then ran out and with my lack of appetite have totally forgot about them. I also take a lot of binders so I'm wondering if those are...
I am struggling to eat because of the pain and no appetite. I am forcing myself to eat though. I drink reliv shakes (made for cancer patients), green juice veggies 2 xs a day with green vibrance. I...
I am very desperate to gain weight. I eat and continue to lose. Am down to 100 # and evry bone on my body sticks out. I've gone to er and clinic and no body will help me. I've been told I'm...
I went to a new dr. The other day and he gave me a zap with something and said it would turn on my macrophages. I don't know what this all really means bjt I have seemed to be in such a bad herx I...
Wow it must just be floating around in the environment more than I thought. How is the detox going? I'm scared to death to move forward with this because my body has gotten so weak and I've lost so...
This was an excellent article, thanks for sharing. I already have huge anxiety over this. I just keep feeling worse and worse and now I definately want these fillings out. But then the chelating...
I've just seen a new dr. Who also does energy medicine. He took one look in my mouth and said I wont get better until I have the amalgams removed. I've knkwn they weren't good and planned on having...
Glad you weren't badly injured! Will keep you in my prayers <3 Yes, a nice trip sounds wonderful! I so want to get well enough to just get away and pretend I don't know what lyme is for a bit. I'm...
Google fistula. Ive heard of this. It's like a plugged duct on the inside that breaks through to the outside. Id have it checked out by a dr....
I cant take ibuprofen or naproxen because of my inflammed stomach...either ulcer or gastritis. Any other ideas for pain releif? Have my moon migraine right now ;'-(...
Traveler, that makes a lot of sense seeing as our bodies are majority fluid. The moon sure is powerful! Acharms, I hear you. I avoid the ER and local docs at all costs too. My anxiety must've been...
That explains a lot! I finally broke down and went to ER after two days of severe burning abdominal pain and no sleep. Of course they didnt help me...shouldve known. I was worried I might have an...
Thanks for sharing Mikeb2308. I remember the long wait for my test results. My instincts had told me so! My LLND told me lyme bartonella and erlichia and sure enough when I got the results she was...
There is also a yahoo group for lyme and rife. There are a lot of knowledgeable folks on there....
Thanks Lyme47031! I have just started the A-L and A-Bart and am only able to tolerate 1 drop per day. I appreciate the feedback that you are doing better, this gives me hope! I couldn't seem to...
Will be praying and keeping you in positive thoughts! Thank you so much for your contributions here. When I found this forum and the moderators here I felt like I had found a place to escape the...
Hi Bindu, prayers and hugs for you. I feel like we're riding in the same little boat with no oars :-/ All I know is that we can get better and there is hope. It seems like eternity! But we can do it....
I have been doing the nattokinase and definately noticed the drugs penetrating my brain way more. I'm going to continue on this with the herbals. AngelSB, I took antibiotics for about 2 1/2 months....
I started taking the neuro antitox about a week ago. I noticed a difference right away. At first I felt a little dizzy and anxious and then I could literally feel the pressure and buzzing subside....
Hang in there AngelSB! We are strong, or else we wouldn't have made it this far. I just spent 2 weeks not being able to get out of bed and fatigue that made me feel like I was dying :( It is a slow...
Hello everyone! I am happy to be out of bed the last few days! I've not been able to get on a computer and type due to several crashes the last couple of weeks. I stopped the zithro and GSE and gave...
Thank you Don! I have learned so much from my illness and I think my family is benefiting from the changes. Before we were so ignorant about our food supply and healthcare systems! I can't beleive...
Good luck! Good thinking on waiting until your son's birthday is done. I did this for my daughters graduation and my younger kids birthdays and i'm glad. I started my meds and crashed so at least I...
That's wonderful Wryter! You all have a fun birthday bash...those younger birthday parties are always so much fun and exciting. Thanks for sharing good news, it's always so nice to have some...
Haha I dont know when it's Friday anymore. Since being so sick all the days blend together, have to laugh! Good luck with your appt. You are fighting the fight and it's good to be very pro active...
I hda two negative elisas. It wasn't until a lyme literate dr ran a western blot did my lyme shlw up. In my opinion the elisa test is worthless most the time....
Signed it!...
Sounds highly suspicious for lyme. Especially since nothing else can be found by docs. If you can't find one closer , email me for info on one in Seattle....
Haha. Thanks for the laugh, neede that! I've taken to telling everyone i'm doing good when people happen to rarely see me. It's just so much easier than going into it. When I do see a regular dr they...
Csmm23, good luck with your apt by the way! Although ive been struggling I know I wouldnt be here had I not gotten to my LLND! They have the experience to help us. Keep us updated!...
Thank you MarielS and Csmm23. Your words really helped me calm down. If I only had a dollar for eveytime I felt I was dying , my trreatment costs would be covered. I'm going to have to scratch zithro...
Positive thoughts and prayers your way. This wicked disease is relentless. So sorry you are struggling. I so appreciate yoir knowledge and helpful posts. And sure hope this passes soon for you. One...
I'm on low dose zithro for about a month. I thought I was tolerating it but when I added the GSE again I totally crashed. Every morning I get up my heart races like crazy and the too tired to breath...
Whole sweetener. Its organic an minimally processed. I got it at whole foods but it isn't their brand. On a side note I do notice a mild herx reaction, id like to think. My fingers always twitch a...
Tickled, that is a perfect description. I'll use his to help my family understand ;)...
Justme, you are so right it is like a circle. Every time I have a good day I get excited and then the rugs is ripped out from under me. It is so hard some days I just cry and cry and don't want even...
If I were you I would see an llmd. No one would listen to me with my "tick" bite and it took me over six months to get a diagnosis. Time is of the essence. I am so sick now and early tratment...
I would suggest you make an appointment with a lyme literate md asap! Sounds like lyme I'm sorry to say. Were these tests throu Igenex? I had two negative tests before they got a raging positive....
Yes Wellbeautifulspirit, I have been thinking of you as well and hope everything is going ok! Hugs and prayers ~...
Pathogenkiller, this is interesting that you said NAC flu...I have been taking it for about a week now and wondering now if this is causing my crashing fatigue and heart sx's to come out. I did also...