It's interesting how this topic has looped back around again! I still have constant tinnitus since the posting last year. Fortunately it is usually pretty low level though it does go up and down a...
I have been dealing with Lichen Sclerosis a lot longer than Lyme but had a curious thing happen. When on antibiotics for 18 months the LS was in almost complete remission. Since off the abx it has...
I like banana or pear and some blueberries with my kale or spinach. Raspberries are yummy in a smoothie too. I have done apples and they are good too. Sorry to hear about your kale. It is frustrating...
If by energy drink, you mean the drinks that are full of caffeine and sugar, they are bad for your body whether you have Lyme or not. They overtax your adrenal glands, disrupt insulin among other...
Wow! Thanks for all of the encouraging comments everyone. Thanks also for the compliments on my blog. If it wasn't for Lyme I probably wouldn't have a blog at all so it is one more good thing that...
Just stopping by to thank people from this forum for support and information when I needed it and to let you know that I am feeling so much better. (It's good to hear the progress as well as the...
Have been working on treating Lyme for 1 1/2 years and working through untangling various things to get to remission or cure. My LLND is thinking that some of my lingering neuro symptoms (burning in...
I have been using Cryptolepis for about 3 months for possible Babesia (treating based on symptoms, not testing since the tests are so inaccurate). It is an herb that Buhner & Horowitz have been using...
Thank you traveler! The further I get into this journey with Lyme and now the probable Babesia I find it hard to not be discouraged. I was listening to one of Horowitz videos and some of the Babesia...
Hey frikfrak, Not sure how much help I can be. My LLND was having me take 1 dropper full 3x a day which is less than 1 tsp. I started out at a lower dose & worked up to it because I tend to be...
Does anyone have any experience using Cryptolepis for Babesia? Success or not? Did you have any side effects? Dosage and duration of treatment? I've been experimenting with it at the suggestion of...
Does anyone know any good resources for Babesia information? I have been in Lyme Tx for 16 months and it looks like we may be dealing with Babesia too. (We tried out an herbal and symptoms all but...
Some ways to decide if your LLMD is good is to educate yourself as much as possible and to notice if your treatment makes sense with everything you learn. The other is whether he is a good listener...
I've had it too for 13 months straight. Also can't correlate it getting better or worse with any of the Lyme treatments. My doc had said it could be from Azithromycin but we have been pulsing my Tx...
Hi mystery 1 - I have worked all through my treatment and I empathize with you. I have to work to have health insurance for myself & my family but agree with other people that if it gets bad enough...
I'm sorry to hear about that response at work. I didn't expect a supportive response from my boss and need my job for my insurance so never told work I was sick. However I work in an a satellite...
Hi Peacesoul, Not sure if you will see this since the thread is now a couple months old but wanted to thank you for recommending Dr. Gabor Mate's work. After watching the video you posted I then read...
I found that video that explains HLA-DRB! Here you go https://www.youtube.com/watch?v=PMcmBYhDrcc...
I like that peacesoul. And channeling the Beatles is always good. :) Let it be sounds so much more doable then letting go or trying to build oneself into something else. I think I might need to turn...
Thank you opugirl. Unfortunately, I can't eat parsley which is too bad because I really like it. I do eat kale regularly in smoothies but didn't know it was good for the kidney and liver....
Traveller and others who help to moderate, I just want to say thank you for all you do. I do facilitation in the real world so in theory I could help with this but I find I can't spend too much time...
Regarding the HLA-DRB - I had run across a video a couple docs had posted on their blog but can't seem to find it again. They did make the point that though Shoemaker takes about dreaded genotypes...
Thanks for sharing the link and the article. They both speak pretty powerfully to me right now. When I get stuck in my healing progress I have felt like by body has gone as far as it can go in my...
My kidneys and liver seem quite unhappy. My creatinine & White Blood cell levels are off (creatinine high and WBC low) and I have been having a lot of back pain in the kidney & liver area. I don't...
My understanding is that the CDC does not recognize IGENEX tests. However, the IGENEX tests were created with variations of the bacteria that you are more likely to be infected with here in the US....
I have been using the Samento (TAO free Cat's Claw) & Banderol combination at the recommendation of my LLND. Herxed at first so went slow to get up to 5 drops of each 3x/day. I found it greatly...
Traveler what a wonderful post. My Dad has dementia along with a bunch of other health issues but I can see that when he is with family and has a good day it seems like the happy emotions help the...
It IS scary to be on lots of antibiotics for long term. I remember being afraid too. Definitely make sure you take your probiotics every day. The fear of getting sick from the abx has kept me on the...
Have you ever seen this TED talk about how this woman turned around her MS using nutrition? http://www.youtube.com/watch?v=KLjgBLwH3Wc She inspired me to make smoothies using lots of greens and...
I was also thinking that if the organization or research group that we would like any proceeds to go to was identified in advance, maybe they would work with us to put it together and maybe that...
Hey Nick Am also in NH and there are a few Lyme support groups here which you probably already know. There is a woman in our Laconia group who has already written a book. I can't speak for her but I...
Good question. I'm thinking, hoping that I am getting there. Am currently on both antibiotics and some herbals and am hoping to switch to just herbals in the next few months. Doc wants the symptoms...
Hi Justascarf - it looks like with the change in how Labcorp is doing the lab, my LLND is saying he can't 100% confirm the results. I wonder if anyone else is running into that. "The lab changed...
Welcome to the club! I follow her recommendations in general, not perfectly. I probably still eat "too much" fruit. It does feel pretty daunting when you start out but you will get used to it over...
Thanks for your reply. I don't have any DQ result. There isn't even a spot for it on the report, just missing. Hopefully that is good . . . This is all I have: DRB1 01 DRB1 15 DRB5 01:01 So DRB1 DQ...
thank you justascarf. Not quite sure I completely understand it. Is there more info about the Rosetta Stone that would help? My results say DRB1*01:UZNS DRB1*15:UZTD DRB5*01:01 (there is then a line...
Does anyone know how to read the results of an HLA DRB1, DRB345 (IR) test? I got mine from Labcorp today. My loose understanding is that it is a genetic test that measures Human leukocycte antigens...
I have thought about trying these but am very sensitive to caffeine. I can't drink coffee at all. Anyone know if this would be a bad idea for us sensitive folk? I learned about them watching The...
You have my empathy. Have had tinnitis non-stop since the end of March - fortunately not as loud now as it was last spring. We are not sure in my case if it from the Lyme or from the Azithromycin....
Had similar struggles with sleep and tried lots of things like no screen time after 8:00, guided meditation, switching to a different bedroom, bathes, etc. Finally gave in to taking an Herbal Blend...
Done & shared. Thanks for posting!...
My challenge is that I do not like mechanical sounds like fans, AC, etc. I miss the sounds of the crickets during the summer - that was just right to drown out the sound....
Wow! This is an interesting dialogue. Here's my 2 cents. First, I'd like to add another person to the cured list. Katina Makris who wrote Out of the Woods. She happens to live in my state so I have...
Today is my one year treatment anniversary. I am very grateful to be making good progress and am hopeful that I might be able to get off antibiotics after another 6 months. I hope that 2013 brings...
Hi Traveler, You have my empathy. I have had tinnitus though more a buzzing sound than ringing sound non-stop since the end of March. And yes the more quiet it is (like trying to fall asleep) the...
Just an out loud vent. Just get sooooo tired trying to work, manage all the meds, get to my appointments, cook clean food, etc. I know - I am lucky I can work. Lucky, lucky, lucky. It just doesn't...
Hi Kevin, Too bad you aren't on Wordpress. I can never quite figure out how to move around this platform and whether there is a way to suscribe by email. Maybe my computer just doesn't like it. Much...
You can see Ginger's slides from the ILADS conference here which gives good info too. Basically she says to not freak out about the CD57 test because there is a great deal of variability in the...
I'm just curious if others watched ILADS conference this weekend. If so, what new things did you hear that really hit home for you?...
Oh yes! Count me in the group that is ready for this to be over. I sometimes wonder if Tx will go on forever. I agree with so many of the things said here. There may be no other disease that...