Hi all, I've not posted much lately but am continuing with treatment and have begun a Bartonella/Lyme protocol. Can anyone tell me whether it's okay to take Burbur and Pinella while on Flagyl? All...
If you have dermatitis herpetiformis, you can be diagnosed through a skin biopsy from a knowledgeable dermatologist. No need to do the endoscopy!...
I was able to stop myself from contacting anyone other than my husband. I called him at work and told him I felt that way, and he just sort of rolled with it. :)...
Flagyl made me manic the first time I had it. Not sure if it's had that exaggerated an effect on me since, but at the time it was really severe and sudden...within about an hour, I felt this rush of...
It could be your vagus nerve. I have intermittent stabbing ear pains, and my dr. said that it's due to the vagus nerve being affected by the Lyme. This explanation makes sense to me, at least for my...
Thanks for the replies, Georgia and MarieLS. I have just begun to research these drugs and am combing the forum for additional information. I'm grateful that my doctor includes supportive supplements...
Third round of treatment, with the first focused on Lyme and the second focused on Lyme and Babesia. Now the protocol will attack biofilms and Lyme + Bartonella. Dr. J says he's been doing this...
Thanks, Traveler. I really appreciate it. I'll start a new thread with more info about my new protocol because it has my mind a little bent. :)...
Well I had my appointment with Dr. J. He said that he's not surprised that the Lyme treatment has exacerbated my POTS, because of the havoc it causes on the nervous system. He gave such a logical...
Thanks very much for the thoughtful replies. I don't want to let my impatience with treatment cloud my judgment. I'll discuss my concerns with Dr. J and hope that he will be familiar enough with POTS...
Hello all, I have POTS (a form of dysautonomia), and I see a brilliant but slightly quirky cardiologist. He was the one who found the Lyme and referred me to a LLMD (Dr. J in DC). Since beginning...
Yes, it did. I sometimes get random stabbing pains in my ear, but they stopped after the second use. They still come back sometimes, but my experience has been that the neti pot with oregano oil...
This is a slightly different use, but wanted to offer my limited experience using oil of oregano in my neti pot. My lyme symptoms include ear pain, sinus congestion and headaches, eyelid rashes and...
Are folks distinguishing between complex and simple carbs? I eat a fair amount of complex carbs, but I thought that was ok...I'm mostly vegetarian and eat lots of beans/legumes....
Thanks, opugirl! I will definitely try the aloe before meals, and it's nice to know my current routine seems sound....
Hello, I have a couple of questions that I'd really appreciate your input on: 1) what are the signs of a productive detox bath? I realize that detoxing is cumulative and that one may not feel better...
I have not yet baked with teff, but it is a versatile, high-protein grain. The owner of the Ethiopian restaurant I frequent said that Ethiopians use teff to make simple flat breads -- not just...
Hi Tammy, Thanks very much for the encouragement for working full-time. It is certainly a challenge. Overall, I'm hanging in there. It's so hard to measure progress sometimes, because of the daily...
I take 2 tsp of Mepron and 800mg of Nutricology-brand Artemisinin (+ Omnicef and Bactrim) twice a day on a MWF pulsing schedule. Two weeks on, then the 3rd week I'm only on Coartem (MWF still) and...
My LLMD's NP wants me to start taking Lamictal for intermittent but significant nerve pain that has intensified since I began a new protocol about a month and a half ago. Reading about Lamictal...
I have been on it for several months, and I seem to tolerate it okay. I take all of my abx with food though, because otherwise I wouldn't be able to keep them down. I take several abx at the same...
I could really use some insight about embarrassing underarm sweating that has worsened since starting abx... For over 10 years I've had an issue with excessive sweating. I do not have night sweats;...
When I had my LLMD follow-up visit (9 weeks into treatment), I asked for the CD57 test (in addition to the normal CBC they've been checking periodically.) Just received the results, and I'm not sure...
Thanks for posting this bluebyyou. This is great....
Today is my first day on Mepron (2 tsp 2x/day) and Artemisinin (800 mg 2x/day), along with Bactrim and Omnicef, and I am wiped out. Chills, sweating, unbelievable brain fog, fatigue/weakness, and...
Thank you all for your replies. Georgia, the bottle of Mepron is 420mL (I think they make a smaller bottle too, not sure) so with only taking it 6x/week (twice each on MWF), I need it for 24 days --...
Sam, I also have noticed a lot of new moles and red spots. You are not alone! Good luck with finding the best treatment approach....
I'm off abx this week, but I started using stevia mixed with apple cider vinegar the last two days. (Just a little stevia, ACV, and water, 1-2xday.) Out of nowhere, I feel like I am herxing -- have a...
Hi Healing98, I cannot comment on your specific situation, but my understanding is that, counterintuitively, lemon water facilitates an alkaline environment. Hope this helps, and hope you feel...
Hello all, I had my follow-up appointment with my LLMD and would really appreciate your input on my new protocol. I just completed my first round of treatment (Septra, Omnicef, Minocin, and Flagyl;...
Here, here! Thank you for posting this. I truly appreciate the compassion and knowledge that this community demonstrates -- a true generosity of spirit....
Thanks so much, MarieLS! I will definitely look into it....
Thanks, MarieLS. I guess I scaled back on the magnesium after I had a hard time figuring out the best time to take it (to ensure no conflict with the abx). Plus, I was having a really hard time...
ToddPaul and LaurieLye, thanks very much for your replies to my post. ToddPaul, I'll see my LLMD next Friday, so I will ask which coinfections they are focusing on and why. My protocol will likely...
Good for you, Infectious! You followed your instincts and took care of yourself despite ridicule, and that alone is evidence that you know how to handle the lyme healing process. It's okay to be...
Gargling with hydrogen peroxide seemed to eliminate severe gum pain I experienced after I completed my first 10-day course of amoxicillin (while waiting for my initial appointment with a LLMD). I...
Hello, I'm wondering if anyone can comment on the progression of my symptoms. I just finished week 7 of treatment (on a pulsing protocol with 2 weeks on, 1 week off, so it is my 5th week of abx...
Wow, glad they were responsive to your situation (they ought to have been, of course, but we all know that is never a given). Also, while additional testing is never fun or cheap, at least the doctor...
Hi bdoc, Just wanted to check in and see how your appointment went this week. Let us know if your pain is doing. Did Dr. J use this new information about your symptoms/reaction to refine/develop your...
Hello, Quick background before I pose my question: Tomorrow I'll start my 4th week of antibiotics (Mon/Wed/Fri pulsing schedule, and this week with Flagyl on Thurs and Fri). So far, I have had some...
I'm so sorry you've had such a hard time, bdoc. I really hope you are feeling better and that the doctor will help you implement a treatment plan that your body can handle. Hopefully the nerve pain...
Hi Bdoc, I was referring to three-week cycles, so I'm only 4 weeks in unfortunately. However, I noticed that my herx on the Monday of week one of this cycle was really bad, but then Wednesday and...
Hope it goes well. Mine is in another month. I just finished week 1 of cycle 2....
Bdoc, skin brushing in the morning and the evening seems to help, even if I'm not bathing or showering right then. Wearing natural fibers is also a good idea, as it lets your skin breath better....
Thank you very much for your guidance! Best wishes to you and your family....
Dwevte, as a Richmond native who now lives in the DC area, I can speak from personal experience in recommending that you travel to DC/Northern VA/MD to find the right doctor. I am seeing Dr. J in DC,...
Mustelid, I will continue to monitor this thread; I too am an excessive day sweater. Although I experienced modest night sweats at the very beginning of abx, for me the day sweating began over ten...
Traveler, thank you for your response about vomiting! It's so true that I cannot keep throwing up! That's exactly what my inner voice keeps saying. Thankfully, my doctor confirmed that I am able to...
Rowingmom, would you mind sharing your excel template with me? It will be such a moodbooster since I just realized that I screwed up and took my magnesium supplement at about the same time as my...
I've experienced the jerkiness/disruption of gait. I believe this is "just" one of the many neurological symptoms associated with lyme. As for the tingling, I have not experienced that particular...