Bumping to see if any more replies....
Has anyone used these? They are manufactured by Professional Complementary Health Formulas out of Portland, OR. They are taken 10 drops under the tongue 30 minutes before food....
Traveler - what treatments were you given. I am on anti-seizure drugs. Off all Lyme meds and herbs. How does Lyme cause partial seizures?...
I'm wondering if anyone else has experienced partial seizures (where you stay conscious) after starting Lyme treatment. The seizures have been verified by an abnormal EEG. They feel like severe...
For those looking for a list of so Cal lyme docs, go to http://flash.lymenet.org/ubb/ultimatebb.php/forum/2 and ask for recommendations. Generally someone will private message you with further...
Very interesting article....
Sarah - thanks so much for talking to me on the phone today. So nice of you to take your time to do so. Diana...
Some can be taken together and some can't. I believe Nutramedix has a chart on their site showing which can be mixed and which can't. Hopefully you can google it....
Bump to give more time for responses. I hope someone knows of him....
So sorry you are going through all this at the same time. Sending my love and HUGS....
Please let me know if you've seen him....
I want to get feedback on one or two I'm considering seeing....
I believe God will be giving us all healthier tomorrows. I've placed my faith in Him for a full recovery. Just wish it would start. Had to go off Samento and Banderol because it made me so anxious...
Last night was a full moon and I slept the best I have in many months. Was somewhat achy though....
I'm still experiencing anxiety today without the Samento and Banderol but no where near as bad with them. The doxy is evidently causing it now....
Traveler - he comes back on Monday. I'm taking 200 mgs of doxy a day so at least they won't be replicating. Thanks for your concern. I believe my LLMD is at the conference in San Diego, CA on Lyme...
I heard from the LLMDs office. He's out of town but the nurse said to go ahead and stop the Samento and Banderol since I'm only taking 4 drops of each morning and evening....
I just started doxy 100mg 2 x day and want to stay on that but I can't deal with the anxiety caused by the Samento and Banderol. Can I just stop? Call in to LLMD but no response....
I just started doxy today. The pharmacy sheet says to take away from food. Has anyone found any difference in taking with or without food? Current protocol is Samento and Banderol on an empty stomach...
Asada - We are not allowed to post names in the forum. You will need to activate your email address so we can respond. I have a LLMD in Thousand Oaks if that's not too far. Diana...
Instead of taking just molybdenum, I would take Thorne Trace Minerals which includes molyb plus the other minerals. Also, DHEA-25 is a big dose if you are female. I would do DHEA-10....
I'm taking L-theanine, phenibut, and Dr. Zhang's AI#3 but still have to resort to rx anti-anxiety meds too. The anxiety is really awful....
The Banderol and Samento need to be taken 20 minutes from each other. Don't take them together. Put the drop or two in about 4 ounces of water, let it sit for about a minute, then drink it down....
So sorry you're feeling so poorly. Post what you are going to do as far as self treatment so people who have more experience can help you along. I'm fairly new here myself but everyone has been...
I sent you an email with a name....
I had only INDETERMINATES and no "+" but my LLMD says I have Lyme disease. I'd get these results to a pediatric LLMD at your earliest convenience....
I found a good webpage that gives different ways to draw out toxins that cause pain, fatigue, etc. It is http://goodbyelyme.com/free-articles/detoxification/remove_toxins ...
Dr. Zhang's AI#3 was given to me for detox and it helps with my anxiety. Perhaps it would help you also....
What do you mean your tests were "technically negative"? My Igenex western blot had no positives, only a few indeterminates and my LLMD said that means you have Lyme disease. My immune system wasn't...
I have also been diagnosed with a sleep disorder, fibro, depression, and menopause. That doesn't change the fact that I have Lyme disease. I grew up in No. Virginia and had multiple tick bites. I...
So glad your prayers are being answered. I know mine will be too....
I'm so sorry that you have had to go through all of this. My Lyme MD lets me decide how many drops to take of the antimicrobial herbs he uses based on how bad I herx. (I'm taking Samento and Banderol...
Wow. Very powerful. So glad I watched it....
I think most of us are misdiagnosed with other illnesses before we get the correct diagnoses of Lyme Disease. I was told I had fibromyalgia and chronic fatigue syndrome....
Googling Lyme disease doctor Thousand Oaks and Lyme disease doctor San Luis Obispo will give you two names. I go to the one in Thousand Oaks. We can't post names on this forum....
I just saw my LLMD and he said the Inderal is making my pulse rate too low and I need to stay with the Klonipin. However, he gave me Dr. Zhang's AI#3 for general detox and I took one and the anxiety...
Since starting Samento and Banderol my anxiety has been awful. I had a little anxiety before but not like this. I can't sit still and have to move around which is difficult when you have as much...
Another good probiotic is Ther-Biotic Complete from Klaire Labs. It does need to be refrigerated. My ND has me taking it with meals....
Looks like a great book. I think I will order it....
I had no positive bands, only IND ones. I am herxing from the Banderol and Samento so I definitely have Lyme disease....
I think the first thing is to indicate what the Igenex test showed for your bands - where there positive ones, indeterminate ones, what? For instance, I had no positives, only indeterminates. Then,...
I'm so sorry you are going through this. I have not been able to work for 3 1/2 years and remember how hard it was to decide to quit but I just didn't have a choice. My fatigue was so bad, I just...
I just got diagnosed 3 weeks ago and started treatment with herbals. My anxiety got bad almost immediately. Straight GABA will only work if you have a leaky blood/brain barrier. The form of GABA that...
I absolutely would work on the thyroid issues. The "normal" range for thyroid labs is way too wide. You want your free T3 in the top quarter of the range and your free T4 right at mid-range. TSH will...
Mine is by Nutramedix also. I was to start with 1 drop of each 2 x per day and go up 1 drop per day until I got to 30 drops. I only got to 5 drops of each before the herxing was too bad. have dropped...
Jen - I'm so sorry you are going through this. I'm newly diagnosed with Lyme Disease also and have probably had it for a long time. I was told a long time ago when I had a lot of constipation that if...
Sunny - I'm new to this forum and this illness also but my LLMD has me on herbals and he told me I could control the herxing by reducing the amount of drops I took. So when it got to be too much I...
My LLMD wants me to take put the drops in about 4 oz of water, wait about a minute and drink it. Wait 20 minutes, then take the second one as the first. He also wants it on an empty stomach 30...
I think someone posted this link a few days ago and I had read it already. Thanks for bringing it to my attention again. I was diagnosed with fibromyalgia in 1999. I met the criteria as far as...
I also have "unidentified bright objects" on my brain MRI. Can you elaborate on how they indicate Lyme affecting the brain? Thanks....