I have dysautonomia and hear a lot about this. There are several good youtube videos to give you an overview if you'd like to learn more about it....
This is how I eat every day because I am I guess what you would call a "clean eater" but I think of it as eating how my body was intended to be fed. I think our body runs best on whole foods nature...
Has anyone had this test or does anyone have thoughts on it? "A gallium scan is a test to look for swelling (inflammation), infection, or cancer in the body. It uses a radioactive material called...
It is interesting how many systems Lyme impacts. I first heard about Chronic Lyme through another POTS patient who found out that was the root cause of her POTS....
Unfortunately, I do know for sure that my EDS was inherited and my specialist said 70% of EDS patients get POTS on some level. My great aunt, Mom, and sister have EDS and my sister had POTS as a...
Thank you Traveler!...
I'd never heard of Q Fever but have now added it to my list. Thank you Achieving Grace. Hopefully I figure out a LLMD soon and can get to work searching for answers....
What infections did your LLMD offer to test you for, or test you for, other than tick born ones? I am really interested to hear everyone's experiences with this. I just learned about toxoplasmosis --...
Does anyone see a doctor in Illinois who specializes, or is at least familiar, with CFS? I'd also like to be looked at for ME. My chronic fatigue like symptoms (PEM, swollen throat/armpit lymph...
I have Ehlers-Danlos Syndrome, and Postural Orthostatic Tachycardia Syndrome. I have some unexplained symptoms for 6 years: low grade fevers and swollen throat and armpit lymph nodes. They cannot be...
Yay! My first response. Thank you! Thanks for the idea on the wedding. One reason we don't do that is several people we want at the wedding and reception would have to travel cross country, so I...
Garden Peace, I did a post yesterday and then piggybacked in two other posts I saw for LLMDs in/near Illinois. So far, I've gotten one response. It's sad how nervous everyone has to be about sharing...
Hi everyone. I'd love information about the doctor. I believe my email settings allow communication that way. I had to beg for a measly ELISA with my GP. I never was too sure about pursuing Lyme...
Did you ever find a LLMD in Illinois? I'm finally going to go down this avenue of searching for answers to my "post viral syndrome", involving lymph node issues and fevers and fatigue and POTS. My...
For me, it took a two times of having an EKG during chest pain to see what was going on to understand what was something to worry about. I have POTS and get heart palpitations, so now I've become...
I've wondered this same thing. I'm not diagnosed with Lyme (yet), or on a treatment protocol, but there is definitely something living in my lymph nodes. For what it is worth, I noticed no difference...
Congratulations! I always read about so many people, who even after years, still show bands or co-infections. It's so nice to hear a success story....
Thanks to the kindness of people who read my blog who have patiently badgered me, I am FINALLY taking the plunge and looking seriously at infections such as Lyme Disease. Hopefully with your...