HAPPY NEW YEAR TO ALL!! Anyone know of good, experienced SS Disability Application Advocates? The SS site strongly recommends getting an attorney or advocate. Anyone know of a good experienced...
Hi Folks- Have any of you asked friends or family to read this article to help them "get" what it's like to have a debilitating, invisible chronic illness? It’s titled, The Spoon theory:...
Thanks, I just ordered a used copy of the book via Amazon. Thanks for the tip--I’ll read it first and then see if I want to have family read it. All the best to you gang!!...
Hi WWJD20- Thanks for the link to the blog--will look into it. Cynthia...
Hi mystery1- When you get the air hunger, does it give you pain on your sides? Like about where the bra strap is on your sides? At first I thought it had something to do with the bra strap, but never...
Hi Razzle- Thanks for the “head’s up.” How long ago did your go there? I don’t really want to go to Mayo, but need evidence to present to my family about why I don’t want to go there. Fortunately...
Does anyone have this and know much about it? When I’m in flare-ups, I often feel too weak to breathe--especially hard is inhaling. It gets worse as the days progresses to the point where all the...
Hi rockinreel- Thanks for your response and welcome to the site. I’m pretty new to this site as well. Sounds like you’re making some headway at Mayo so far. Did you see an infectious disease...
Howdy! Anyone happen to know if there are any LLMD’s at the Mayo Clinic?? Am getting some pressure to go there. Anyone been there? Thanks. Wishing everyone strength and healing, Cynthia...
Hi Roxi60- Thanks so much for your response. My mom has been helping me pay for my expensive LLMD. She’s thinking that my insurance might cover a Mayo doc better. Fortunately, I LOVE my LLMD! But I...
Howdy! Anyone happen to know if there are any LLMD’s at the Mayo Clinic?? Am getting some pressure to go there. Thanks. All the best to everyone! Cynthia...
Hi Gang- Not sure how to respond to individuals (since there’s no button for reply for each post), except by email, so I’m responding to several people here. Still a neophyte! RE: Let me know if you...
This was the article that I referred to earlier for anyone who hasn’t read it. It’s VERY short, sweet, credible article on Lyme being difficult to treat: "Lyme disease: scratching the surface,"...
THANK YOU SO MUCH FOR RESPONDING SO FAST!!! I’m really in agony emotionally, plus am in a painful flare-up and had to cancel my Thanksgiving plans (husband will go without me), so your responses are...
Hi Folks- I’m sure I’m not alone in having just received an email from a sister referencing Quack Watch. My disease trivialized in one fell swoop---from reading one website!!! I feel devastated by...
Hi Folks- Any of you had Hyperbaric oxygen chamber treatments? My LLMD just recommended them for me. Just wondering if anyone else has tried this treatment before? Wishing you all speedy recoveries!!...
Hi Ccbrunk-- Good for you for giving yourself the B-12 shot. I used to have nurse friends give me them. Where do you give your injection?? Rear end, was it very hard to get used to doing them? I have...
Hi again- RE: Breathing trouble. I just re-read the forum rules and it looks like it is OK to give a link, etc., if it’s not clinical trials or promoting anything. So, here ya go on the website for...
Hi Healing98! I have the same symptom, air hunger, I’ve been told it’s sometimes called. Feels like I’m too weak to move my diaphragm, like I’ve got a belt around where my bra-strap goes, like...
GABA is great, imho....
RE: Doctor in greater Seattle area? I’ve got a great LLMD already, but I’m trying to find an open-minded primary care physician. My Lyme doc wants us all to have a PCP (primary care provider) as...
RE: The hair isn't falling off in splotches or anything, it just seems to have stopped growing. [i] Hi there, I've got hair loss, too. A bit different from yours, it's weird though. I've lost the...
Thanks, everyone! I really appreciate your support, ideas and opinions. I suppose I’m too much of a people pleaser so when these docs get so irritated with ME about my Lyme doc’s treatment, it’s...
What are your, if you don’t mind my asking, reservations about Heparin?? Cynthia...
Hi All- I’m looking for a LLMD or integrative MD to get as a primary care provider in the greater Seattle area. Not afraid to travel to find a humble (can admit they don’t know something, not on a...
Thanks! That quote is really perfect--that’s going on my mirror! How much do I hate having an “invalid” illness (in many people’s eyes) requiring treatments that are equally “invalid” (in many...
A couple of docs I've seen raised all sorts of cautions about using Heparin prescribed by my Lyme doc. Have docs gotten some kind of warning about this? Seems as though it made them EXTREMELY...
Hi Folks, I'm a newbie today. First of all, I'd love some tips on ways that you shop for doctors. The reason I can't just rely on word-of-mouth is because the kind of doc I want is kinda rare, at...
Hi Krissy- I can’t eat wheat either. I’m no expert, but One thing to keep in mind, is that the wheat out there now, may be vastly different from the past due to all of the hybrids that have been...