Look into monolaurin for tackling ebv. From personal experience it's very affective....
Look in to Amantadine...
First bite 2006 misdiagnosed with mono and sinusitis. Symptoms went away. Bit again 2012 and all hell broke loose.Got 3 weeks of abx and got worse over the next year. Found my llmd and have been in...
What are your diets like? Abx are one thing but in order to improve more efficiently your diet needs to be sugar, gluten, preservative, carb free. It's all about decreasing inflammation. You do that...
2006 was more than a missed diagnosis. My doctor didn't tell me I tested positive for lyme and told me I had mono. I found out when my llmd demanded records from my pcp and he discovered it. All hell...
Oh yes and my infections. ... positive tests with rash for lyme, ehrliciosis, leptospirosis and clinically diagnosed bart....
By challenging my brain I mean I stayed in school. I I'm graduating with my mechanical engineering degree in may. It was so hard but so wOrth it. The brain has an incredible ability to compensate and...
Also I was undiagnosed for a year in 2012 and had a missed diagnosis in 2006....
From the start ive been on tetracycling/amantadine fall/winter and Biaxin/plaquenil spring summer. I begged many times for my doctor to try others thinking it wasn't working anymore but he stressed...
I want to key everyone know there's hope! Almost 3.5 years ago I thought I was I was literally going to die and after 2.5 years of abx today im back to my old self! Got some twitching but doc said it...
I did it and it has been no easy task but I suppose it's relative since some majors are easier than others. I'm just about to graduate with my mechanical engineering degree. Sophomore and junior year...
Back when my temp would drop that low I'd become delirious. Typically happened when id wake up from a nap....
I had it. You're not alone. I played mind over matter with it because if I didn't I wouldn't get anything done. It went away when I started cats claw andrographis and resveritrol before starting abx....
I did it except it wasn't doxy it was tetra. It was a diabolical combo. I lasted for a week but the herx was scary. I'm sure it works but I would be careful it you don't know what kind of infectious...
Awesome news! Mike please dont get me started on fracking. I'm an engineer and everything the media and enviro extremists have claimed is sickingly misleading and untrue. NY would benefit greatly...
I had the same experience. BP was high too although I had always been an athlete in perfect health. Glucose spiked over 150. Now its normal and my BP is right around 110/70...
High CPK. If you have elevated creatine it indicates muscle damage and inflammation which irritates nerves causing burning many times muscle twitching which did happen in my case.. Normal is below...
My chronic tonic doesn't have alcohol in it. I live down the road from them and the nice lady makes it specially for me. I'm a lucky one :D...
Oh I know what a herx is. Had plenty at the beginning of my treatment over a year ago and was almost literally scared to death. This isn't a herx. I've plateued. I did forget to add that I'm also...
So my last symptoms are twitching and dizziness. Its been like this for a while now and my doc and I are starting to think it has more to do with the toxicity of the abx than it is the other stuff....
I've known he's had this for years. Ever since he began having problems it was pretty clear what it was from when they couldn't figure out what was causing it. And the fact that he lived in new York...
For the first time in 2 years I can say NOPE! The only symptom I've experienced this month is twitching and even that is almost nill. Balance is back, no burning muscles, no numbness/tingling,no...
Take a read. More interest in an actual cure... http://www.northeastern.edu/news/2014/04/lewis-3qs/...
It was the first to come and first to go for me. Really terrifying. I could only compare it to the worst and longest high I've ever experienced. It was like living life in 3rd person for 8 months. I...
Touché...
I have had muscle fasciculation everywhere for 2 years. It's terribly annoying. Doc said its from irritated nerves since emg was clean. I took him for his word. Try not to Google. It will drive you...
I had a hunch that it may have been the sugar. This morning I'm feeling so much better. Still some joint pain but not terrible.Definitely staying away from that stuff. Thanks...
So I've been feeling real good lately so I decided to go out for a few drinks with my pals. This turned out to be a painful lesson. Usually I can drink a w light beers and be OK not this time I had a...
Acctually it doesn't seem like a runaround at all. The the monitor will tell a lot especially seeing as things are so sporadic with these infections.a lot can be missed unless timing is perfect. My...
Run to an LLMD. RUN as fast as you can. Please...
The strain they are dealing with had a 60% fatality rate. It's mind boggling to me that they would bring them back here seeing as the only treatment is hydration... If it's sanitary conditions they...
I'd just like to say something since I see a lot of people (not just here )changing abx around hoping to find a quick answer for what works the best. Seeing symptoms flair for long periods and the...
Yeah... I had the same thing back in the day. Thought it was a spider bite. Nope. Nope it wasn't. Id get to an llmd . don't chance it....
Confusion, terrible headache/pressure, depersonalization...
Also church helps. This ordeal sent me straight to god. I've always been catholic but I'm even more so now......
I Look back to how bad I was a year ago and immediately grow a smile on my face....
Mine got deleted :mad:...
My mom has high ANA + speckled pattern along with thyroid issues and turns out she has Lyme....
Tetra is a good antibiotic. Although it's not as strong as doxy it can achieve much higher blood concentrations because higher doses can be tolerated making it more effective in later stages. It's...
I was told it has to do with inflammation if the vestibular nerve. Lyme and company can settle there and cause annoying balance issues. Mine relatively mild but when it's bad it feels like I'm...
Rock bottom was from June 23 2012 to Nov 2012. Literally thought I was going to die every day....
Well. Many LLMDs treat clinically since the tests are crap anyway. It took me almost a year to get into my LLMD and I took doxy and herbs until I could see him to get the fight started. He said I...
PLEASE get the MRI. The hospital will work with you on a payment plan. They are actually very good and will accommodate IF you ask. Getting the MRI will greatly reduce your stress which will help...
So it's a little over a week later and I'm shocked at how fast it's healing. Still swollen a bit but the 3 lacerations and one that required a ton of stitches are almost completely healed with very...
Yeah I wasn't pleased but they were beating themselves up enough already soits safe to say they realized their mistakes. The pain was excruciating but I will say that it certainly took my mind our of...
Your story is mine in the same order. My doctor thinks the twitching is from irritated nerves and neuropathy. And the headaches were most likely from lack of oxygen/blood flow to the brain. It's...
Me too....
Yes sorry....
Its working well. I switch between this combo and tetra/amantadine every 6 months. The biaxin comes with brutal herxs so I slowly worked my way up to 1500mg....
It wasn't totally gone and I'm still on abx but it set me back for sure. I literally only had some muscle twitching left. Doc has me on 1500 biaxin and 600 plaquenil a day. Hopefully it turns out...