Currently pregnant and opting to wait. I’ll give it until November / December and see how it’s all going. There are also studies that show decent efficacy for the first shot. I wonder if you can...
That makes sense. The doctor also said she knows it’s a false positive test...
I don’t fully know. I have to move to a more high risk OB anyway so I’ll get all my records. They are testing me for a blood clotting disorder and Lupus as well....
Is this from Cell Core Biosciences or another brand ?...
I’m almost 12 weeks pregnant ! Most of my blood tests came back normal. I had a false positive for syphilis. Doctor said it’s common with autoimmune conditions and wants to test me further,...
Hi all! Are there other amazing resources for Lyme outside of this board? FB groups? Other message boards? Thinking more social media not ILADs or obvious sources....
Yes! I’m glad my PT is back next week. She does integrative manual therapy and is amazing. But the office was closed because of COVID...
I’ll likely get it. I get the flu shot (preservative free that they give pregnant women). Never had an issue with it. I would likely need to anyway - and I do my part for those who are worse off than...
To add - I am back on pulsed ABX and doing well. The last month has just been harder because she keeps the lymph moving on that side. My LLMD also recommended some new supplements to go with my...
Hi all! Long time poster here! The past year or so I’ve had major issues with my lymph on the right side. Never realized it until I started seeing a PT for pain management. What tips do you have for...
Anyone else have issues with hormones and adrenals? If so, how soon after your lyme diagnosis did these issues show up ?...
Hey there, thanks! I can’t find the post - do you mind sharing the link?...
Yoga teacher here! Your body is not ready for intense exercise yet and that’s ok! I have a closed, free group for Lyme and yoga you can join. Let me know and I’ll message you the FB group. Bottom...
Who has done this? I’d plan to do detox between now and my next LLMD appt in a month. I’ve been doing Cowden so I’d keep the non microbial tinctures and my supplements My PT does lymphatic massage...
Who has an infrared sauna and which one do you like? My doctor recommended one - plus I found one that is super low EMF compared to others....
Hi all! Still willing to pass on the PCP who is covered under insurance for anyone who wants it. She’s in Fairfax. Sadly nothing in FXBG that I know of - only Richmond and NOVA My doctor is also...
How long have you been seeing the NP? I’ve always wondered if his office is taking new patients. To answer the original question - I’m not sure the IV is worth it from what my LLMD tells me. If...
Girlie - remind me, do you travel to see Dr J or are you a local? I have a great PT I’d recommend to anyone in the DC area who does Integrative Manual Therapy. Your scapula issues sounds just like...
I never thought about switching b vitamin into the afternoon! My doc has me on vitamins to help with adrenals for morning, afternoon and evening. But I’m open to anything. I can also see how trying...
Energy increased taking it as directed (one pill, then half pills). Nerve pain and lymph system went crazy as the main issues. All according to my osteopath PT 🙃🙁😪 it was unbearable pain and...
I’m on day 96 and former abx user of 4 years. I was doing well and definitely had some major lymphatic issues and my PT did the massage for me. I also have super low cortisol and I think that isn’t...
Who else has experienced this after years of Lyme? I tried cortef / hydrocortisone and while it helped my energy it wrecked havoc on my body 😭 Please tell me I’m not alone and there is a way out of...
Thanks ! I’m starting my yoga therapy training in January :) this is my calling for sure - working with autoimmune and cancer survivors. That said, I’ll always have a soft spot for teaching studio...
Such a personal choice - I can’t use B clay for constipation or GI issue - yet chlorella has been a god send!...
Thank you! I’ve def. come to terms that I’ll likely not be 100%. I just want to feel like I can have a child and be ok - and get through a day without the exhaustion. Or teach my yoga classes AND and...
June was 5 years. I’m getting married next October and starting to feel sad that I’m STILL in this position. I got 70% better. That extra 30% haunts me. I also found out I have Addisons Disease and...
Thanks ! Did you plateau or go backwards ? And were you also on other meds at the same time ?...
I’m a month & 1/2ish in! Aside from a solid week out of commission with the flu, it’s been a good experience so far! I was previously on abx for 4 years before this and other treatments mixed into...
I think integrative approaches are best - Horowitz has great books filled with info. My experience (almost 5 years down this road of treating) is that I made a solid 75% progress with abx and natural...
Thank you! I’m on a Cowden break until I’m feeling up to it - just 30 drops of Takuna and BP detox. Hopefully I’ll feel up to it tomorrow or Wed, and then I’ll reduce and make my way back up....
It’s worth it ! I love that stuff...
I’m in the US but I order via amazon...
Confirmed today at urgent care along with a bad ear infection. How do you all cope with continuing protocols and other meds (now Ceftin + tamiflu). Good news is this isn’t so bad since I got a shot...
Also wondering for folks who tried Cowden - how many followed the book or added tinctures to other protocols ? What worked or didn’t work long term?im so new that I’m strict on the book...
I can speak to questions 3 and 4. DNA Connextions was 100% worth it for me. I treated for almost 5 with abx and Horowitz protocols - plateaued with my LLMD. I believe in it because (a) you stir up...
Girlie - I swore babesia was my lingering coninfection and my DNA Connextions showed Bart. I also get some sweating (mostly hot and cold) buts it anxiety related and hormones. Does Dr J look at...
Did you do the full workbook and kit, or only selected tinctures ? Funny enough I was herxing a little on day 3 of the detox ! But I never detox well. I’m just excited to see how this goes....
Did you ever use Cowden in conjunction with abx ? I felt a solid 75% better on abx over the years but I truly have a goal of kicking this things ass for good....
I’d like to have a kid myself and I absolutely would take the abx. Dr Horowitz addresses this in his books and his pregnancy protocol is an easy google search. I 100% would trust his advice after his...
I went to see a new LLMD and was so confused when I had two strains of Lyme and Bart show on my testing. June will be 5 years of treating ☹️ Countless abx. Supplements. You name it. Mepron and all...
I wish I could post a photo of the results. I can’t see how to add an attachment. So IND means the bacteria was present but smaller in size and / or only showed in one sample test. It showed...
I did a deep tissue massage per my LLMD....
Follow up! I’ve had some recent testing with a new LLMD. Anyone used DNA Connextions urine testing ? I had 1 strain of bartonella and 2 borellia show up as IND (indeterminate). So not fully positive...
I’m going to do the bio heath one, per my new LLMD. So many rules! No food or drink before, fill the tube with saliva in the first 30-45 min around 8am. Caffeine? What is the point of not drinking...
I take anxiety medicine after suffering through for 4 years. Best decision I ever made. I use a psychiatrist (this is KEY to have someone how understands therapeutic dosing). And I got lucky that’s...
Oh and I did ween off. I chatted with my doctor about it first and I was so happy and proud that I was doing well! My frickin hands went numb last night too and my boyfriend had to help me :( I’m...
I do have ceftin and tindamax still left. I was trying to not take any. :( I’m also trying to get in with my osteopath to do my lymph massage a little earlier. Any other recommendations for detox?...
Diagnosed CDC + June 4 years ago. I can’t believe it’s been that long. Off abx and started seeing a new LLMD. Seen him once and already happy with him. He’s running a battery of tests to see where I...
Thanks all! I have a script for Alinia and this makes me feel better...
Hi all ! I updated my email in my profile but it is listed as visible Girlie - I don’t know who you see ? I see Dr A...