Turmeric is for inflammation, which causes a lot of the fog. You gotta "put the fire out" to get rid of the fog- so I take a lot of Curcumin!...
Cccmama, could be. I'm glad you're seeing progress. Looks like you started seeing it after about 7 weeks? That's really wonderful and I hope you steadily continue to see it! I feel sick and limited...
I'd say I could see very slight improvements after 6 or 7 months.My llmd says 5% a month is doing well, but it might take a while toget to that point....
Wow, streaks are scary! Did you have a PICC three years ago too? What did you do for the infection? My doc said he has a "low tolerance" for IV meds because I should be seeing results within 3 weeks....
Oh, and I'm getting my meds from a company called QMed Rx...
*I meant "just get back to oral meds" not herbals :) its late and my brain is all lymie lol...
I had Bartonella but I took an ondamed test which showed that I no longer have it. I also have mycoplasma and annaplasma. I'm wondering if the herxing is actually the doxy killing the mycoplasma? As...
I did the Advance Labs culture, which took 10 weeks to get the results back. They even took a picture if the spirochetes in my blood. eeeew....
Hey guys, it's definitely been a while since I've been on. I hope you're all doing ok. I've been neck deep in treatment. It's been over a year of treatment now. I feel like I've been on every...
Ubiquinol, d3, multi, sacro b., magnesium, 5HTP, alpha lipoic acid, vitamin C, and sometimes Sam-E...
Well thank you. That does help. I don't want to feel like I'm an abnormally difficult case! I hope your friend does well on the IVs. I've heard they cross the BBB, and can really help kick the bugs...
Please email me the link! Thanks!!...
Is this person doing better on IVs?...
I was tested for babesia and it was negative. I don't have any night sweats but I guess it co u ld still be an option. Maybe I should get another test? My llmd addressed babesia and put me on...
And stacestar, that is very interesting . I never thought about the gluten in my abx. I'll check it out. Thanks!...
Hey everyone, thank you so much for all the responses. Orchid, my llmd put me on samento and banderol for 2 months before starting doxy to breakdown the biofilms. These two herbal abx are known to...
Hey Girlie! Ya know, I've had lyme for 15 to 20 years, and up until last year, fatigue wasn't a big issue for me either. Then it hit me like a bulldozer and got worse after I started treatment. I...
I'm really frustrated and confused. I've been treating lyme and bartonella for nine months with everything from doxy to clindamycin, bactrim, azythromycin, rifampin, samento and banderol, artemisia,...
Thank you so much! This is a huge help :smile:...
Does anyone know of an llmd in these areas? My sister is sick and wants to be tested. Please email me if you do. Thank you!...
Hi Dylan, I'm sorry to hear you have these symptoms. This is considered neurological lyme. I've had the same vision and depersonalization stuff for over 10 years. The lyme is in my brain and my eyes....
Oops... sorry lymebabe- just reread your post. Twice a week?? Wow, that would be around $700 a month for me!...
Hey Lymebabe- How often do you do colonics? I just checked, and it seems they are quite expensive. If it's once a month, I could probably do it, though....
Thanks everyone for your input. I just changed from doxy to clindamycin 4 days ago. I'm herxing pretty bad from that, so we'll see if I make any progress. I'm getting my root canaled teeth pulled...
I'm taking samento, banderol, and clinadamycin. Its possible, but you'd have to go slow. I increased drops by 1 twice a day, every day....
Hey there. I guess I just need to vent. Everyday is a struggle. I'm exhausted and some days I hurt so bad. Just started on another antibiotic and having candida issues. I eat so healthy. Why am I not...
Hello! I am currently taking samento (cat's claw) and banderol. Here is some research that has been done on the effectiveness of S&B on biofilms: http://www.townsendletter.com/July2010/sapi0710.html...
Hello! I am at 30 drops twice a day on both samento and banderol. I increased by one drop every day. I herxed but it was manageable. My doc said that if it got bad to stay where I was with the drops...
Done and done!...
Hi, I'm somewhat new to the area and since I've started treatment, I don't go out much. So, I don't know a lot of people and would really enjoy a cup of coffee, or tea, with someone who I can relate...
I get on pinterest and search "hilarious" and laugh my butt off at the stuff that's on there!...
You guys, it's NOT YOUR EYES that is the problem. It is the BRAIN. The brain cannot fuse the images that you are seeing, therefor it results in double vision, blurry eyesight, and over stimulation....
Hey Margaret- please look into convergence insufficiency. It is the cause of the over stimulation. This has been my main symptom and has plagued me for over 10 years. I had been researching what the...
I'm not sure about Lupron. When I had endometriosis, I had a laparoscopy done and it was a very minimal procedure. They removed some very small pieces of tissue and then I was put on depo provera for...
Here's the abstract to the study: http://www.ncbi.nlm.nih.gov/pubmed/21149142...
Hey everyone. So, before I found out that I had Lyme, I went to a vision therapist for this same issue. It's called "convergence insufficiency or poor binocular fusion." There have been at least one...
Wow! Thanks for all your input guys! I think I'll try the honey thing. I've got some organic local stuff here, so I'll give it a whirl tomorrow morning. Shelly- I'll look into that brand too. Sounds...
Can anyone else tell me what you use? Is coconut sugar ok?...
Yep! Twitching has become so normal for me since I started treatment, I barely pay attention to it anymore lol! It's more annoying than anything. Oh, the joys of this crazy disease.......
Hey there ccpoly! I usually use around 4 or 5 cups of salt and one bottle of hydrogen peroxide. I don't take the temperature, but I can tell you that mine is usually pretty warm. It takes me about 10...
Yes! I feel like I should be an X-Men character. Mine hurt too. Feels like they are " constricting." Very strange!...
That's a good idea healing- I'm going to see me doctor on Thursday, and I'll ask him about it. This has been going on since I stated the samento and banderol. I've been increasing the doses by one...
Traveler, Just saw this. I'm so sorry to hear about your baby :( My heart goes out to you right now. It's so hard to loose a family member. Big hugs....
This is sooo uncomfortable!! Unbelievable itching and burning. Feels like some sort of nerve thing. It's all over! My arms, legs, stomach, back... everywhere!! Do you have this? What do you do for...
I just checked it out online, and this is what I found : "Xylitol is a processed sugar. After being hydrogenated and having toxic chemicals added to xylan from corn or other plant material, and then...
Thank Garden Peace! Does it have that funky after taste that other sweeteners have?...
Hey everyone, I have a cup of decaf every morning with coconut milk. I've been trying to find a non-sugar sweetener, but have had terrible experiences. And although I've tried getting used to Stevia...
Wow guys!! Thank you so much for the responses and the recipes! Garden Peace- I'm pretty sure that's my new favorite website. Thank you so much. And can't wait to try that pudding!!!...
When you find yourself having conversations with people at the grocery store about food bars... and 10 minutes into it you realize you're talking about how peanuts are not really a nut and aspartame...
Going back to Indiana to see my family and celebrate Christmas next week! I haven't been home for Christmas in 3 years. Can't wait to snuggle up with a cup of coffee (decaf :) and talk about life...