Thanks guys! I am on mino, Malarone and IV rocephin. Nope, can't exercise, can barely make it from one room to another without falling from balance issues. Starting the turbo sonic machine. Whole...
the nurse was in for a dressing change Monday and taking my vitals. Blood pressure really high. I've been monitoring it, and it just keeps jumping all over the place, mostly elevated. PS doc...
Bump...
Is he more expensive than Dr J in Washington? Has anyone been treated by either doc, and if so, would you care to share your experience? I am debating between the two, but finances are a concern. I...
I have constant symptoms, but they are more pronounced on some days. I did have severe psych issues (super bad anxiety, rage, etc) years ago, long before I knew what was causing them, but they sort...
I know it's lengthy, but here is an excerpt from Dr. Burruscano's guudelines on Managing Lyme Disease, which I find very informative: LYME DISEASE REHABILITATION Despite antibiotic treatments,...
Thanks Lymie Girl, that price does seem a bit high. They charge more for the capsules too than what i paid on a different site. Maybe I will give the tincture a whirl. Thanks for the info :-)...
Thanks Lymie Girl. I have capsules. A "serving" is 4 capsules, and I am wondering how many times a day you take them. I will definitely start with 1 capsule.i am curious about the tinctures. Are they...
Just wondering if anybody has taken this - if so, what dosage? My doctor suggested trying these but didn't tell me the dosage and it's not on the bottle. I am no longer using that doctor so I can't...
I can't remember where I've parked. Now i take a picture of where my car is, so I can find it when I'm through shopping. Thank God for smart phones :smile:...
Cheetah I have been checking a lot lately to make sure there is no interaction between the herbals/supplements I am on and the antibiotics/meds. I have read on a few sites where you shouldn't take...
Oks those , I just checked and I don't see ANYWHERE where it mentions those two interacting. But, interestingly, I read on more than one site where there can be major interaction with mino and fish...
My LLMD said IV zithro is not more effective than oral zithro, and therefore he wont prescribe it for me to infuse, only to take orally. You are fortunate to have a doc who can "think outside the...
I never thought about it, but I had one drained from my back. It never came back, unlike the rashes that used to come and go, come and go......
MarieLS the pharmacologist was looking at her computer when she reviewed what i was on, so i didnt have to tell her anything. But I did ask her if I could take mepron instead (it gives me diarrhea),...
I am supposed to start minocycline tomorrow. I've never taken it before so I asked the pharmacist to make sure it doesn't interact with any other drugs I am on... Turns out, I should not be on it...
Is it for lyme or a coinfection?...
Superj50 His prices are on his site I sure wish my doc believed in pulsing......
I read about that. Maybe I can try that with the PICC in place? I am hesitant to do the infra-red sauna even though the doc said fine. With all that sweating it can't be good on the adhesive ......
I too was allergic to the adhesive, but we tried a different brand of dressing change, and what a difference! How are you feeling today? Is it swollen? Red? Bumpy? My fingers started turning blue on...
Have you asked your LLMD? I took rocephin for 6 mos before I noticed an improvement,so perhaps you might have to give it more time. However, Ask your LLMD cause there are other IV medications you...
I just had my right arm PICC pulled and then had an ultrasound done to check for a clot. All clear, so they gave me a new PICC in the left arm. I bled really badly this time. The attending doc put it...
Traveler You mentioned Bart - is this a Bart or lyme problem? I ask because I am not on a Bart med now, only rocephin and tomorrow I add Malarone. Next week I add Zithromax....
Happy33, you had the "extra saliva" too? I get that and I sort of feel like I am drooling a bit, but no one else notices (I've asked people I know well to tell me if they notice a symptom with me so...
I go to bed with pajamas with feet and a hoodie, so I can relate. I'm always cold! Had a panic episode on the escalator the other day, and when my husband took my hand he said "wow! I can't remember...
I have had speech problems and was wondering the same thing. Some days others can't understand a thing I say. When I saw the first Lyme doc last year, and i told him about it, he said the same thing...
Don't worry! I think they all migrated to my yard :-(...
ah, dont look a gift horse in the mouth!...
Can Mepron be pulsed? Would that alleviate or at least help with the diarrhea it caused? I was taking it with azithromycin and I believe it's the Mepron that gave me bad diarrhea. As soon as I...
Dr Joseph Burruscano has wonderful exercise guidelines in his online, 37 page treatment protocol. I am not too computer savvy or I would add the attachment. Very informative! Check it out... :-)...
Astroman My LLMD questions flagyl as a cyst buster. I am now taking grapefruit seed extract on my own. Just started it, hope it helps!...
usedtogarden I just responded to your email- hopefully it went through! The rocephin that I order comes in a two week kit including supplies, but you can order separately if you have leftover...
Usedtogarden I am in the same boat! After exactly 1 month of IV Rocephin, the "lyme doc" who ordered it ordered it pulled. His office called the homecare agency who then called me to set up the...
I too use infuserv and am very pleased. what a difference between what agencies charge and online infusion companies charge....
Remember, ANY alcohol while on Flagyl is a serious no no.... just sayin......
Thanks Trav. I just did mine and am going to post it on facebook...
Mom I have a PICC, and my doc got the auth from insurance without a problem. I did not even have a CDC positive blood test. I was very adamant that I wanted one. However, they only covered 30 days. I...
thanks IHL - is sevendust toxic? OK around pets?...
Thanks Cheetahjade, that sounds almost as delicious as the mousse!...
Hey thanks GreenBlue, my husband is online now looking into it :-)...
Ah, if only I could have done a selfie a moment ago; there I was, the Flagyl slowly dripping into my IV, and when I looked down, I noticed a tiny tick crawling on my arm, close to my PICC!...
I was told to eat as much alkaline foods and not as much acidic. I went online and pulled up a list of alkaline foods... Good luck!...
"The home saliva in a glass of water test first thing in the AM can actually show it, Google, not kidding" thanks Astroman, gotta check this out! /community/emoticons/wink.gif ...
What does your doc day? Mine said IV was a must based on advanced stage.....
thanks Asada, i will check Qmed RX out. I use infuserve, and they are great but if yours is less costly... I am scheduled to go back to the LLMD in December. In the meantime, I have to add Mepron and...
Thanks guys for the encouragement! It's been so hard to stay positive lately. I'm always dizzy; I have difficulty speaking, walking, writing, typing, thinking.... A real mess! I want so badly to...
Jenna, How long do you have to be off antibiotics beforehand?...
Wow! Our stories are so similar! I too am 2 months into rocephin and was hoping to see a difference. On all kinds of orals beforehand. Do you have coinfections? What problems did you have with the...
Great answers, thanks guys!...