Bigsky38 and hopelessINspokane, I live in Seattle and have three great Dr options. I know that two of them will see you in person the first couple visits and then can treat over video conference if...
Sheeks175 - We are hoping to have one in March 2019 so check back on the website for more info as the date gets closer. We should have a set date by October 2017. I was treated by Dr. M also. My...
Thank you very much. There is a lot of great presentations and information. Hopefully we will have a bigger in person turnout next year and more will join us remotely....
Hello! A few months ago I asked the moderators if I could post about a NW Lyme workshop that me and a few others were putting on in Washington state. The moderators approved my post. I wanted to...
Hello traci, I was bit by a tick a few months before I got pregnant with my now 7 year old. She had multiple health issues and it was very apparent that she had Lyme. Once I finally got diagnosed I...
I was a patient of Dr. M for over 4 years and loved her. She is amazing. I know Dr. R and he is very knowledgeable. Both are great LLMD's. My daughter who was born with Lyme and co(she is 7) is...
Just want to BUMP this again. Looking forward to meeting more people in the OR, WA, ID, MT and even Canada area. Let's make this meet-up a BIG one! www.nwlymepatientworkshop.com...
evianangel - you are more than welcome to come! I know a few people planning to come from the BC area. The more people to better - great way to network and find support....
Thanks Traveler! artermix - it will be held in Eastern Washington to allow for the whole NW to be served....
Good morning, I emailed with Traveler to get approval to post about our new Northwest (OR, WA, MT, ID, even CA)group. A few Lyme patients from the Pacific NW are starting a group and would like to...
Yes - what Traveler said about water. I make sure to make a very large glass of ice water in with me and finish it while I'm in there. I then drink another one after. I drink a lot of water during...
JAdams85 - Nice! I love my sauna - I got mine in May 2014 and use it 2x's a week at least for 30min at 120-130 degrees. At first I would get what I call "sauna hangover" because I would have a...
mommaonamission, The discipline issue is a tough one. We have two kids without Lyme and one with. So the other two feel like our daughter having Lyme gets away with everything because we discipline...
mommaonamission, Hello! My daughter was born with Lyme and co. We discovered that I had Lyme when she was a little over a year old and then she started having seizures at about 15 months and we had...
The itching is the worst. Sounds like you got a lot of great suggestions. If you are still itching after trying all of this then you can try Grandpa's Pine Tar Soap. You can get it at any health...
Hello lymehater, I did have a healthy baby boy in 2011 while being treated for Lyme. His cord blood tested negative for Lyme. I was in treatment when I got pregnant and took abx during my whole...
Good morning! You are correct - the test is not always reliable. My CD57 when I was first diagnosed with Lyme was 28. Now it is 42 and I have been off ABX for over a year. It is still low. Now my...
Mine was 28 when I started Lyme treatment in 2011 and in 2014 it was 54. I'm not sure what it is now....
Rifampin was what my LLMD treated for Bart....
My middle daughter was born with Lyme but I did not know I had it AND was not in treatment. My son was born while I was on ABX for Lyme and being treated. His cord blood tested negative and I did not...
Yes, its dark green almost brown/black bar of soap. It also comes in shampoo because I had lots of scalp itching also. Seriously I feel for you, the most frustrating 9 months of my life until I found...
Ouch! That rash really looks like it hurts. I have gone through many rashes myself. Once before I knew I had Lyme and it was all over my legs and midsection. I was miserable because of the itching. I...
I had abdomen pain really bad with Rifampin - I feel like out of all the ABX I have been on that that was the worst. It hurt to pee. You are on a lot of abx - I never took that many at the same time...
I have an IR sauna at my house - just a two person. I use it 3-4 nights a week at 140 for 30 min. I have been using it for 1 year. I have been off all ABX for 1 year as I was doing well and LLMD said...
ladynuge, Are you talking about Dr. M is WA state? If you are she treated my daughter who is now 5. My daughter had many health issues including seizures and was in treatment for 3 years with Dr. M...
I loved Mepron - it was my favorite. Is that weird to say? Take it with protein like a tablespoon of peanut butter. Or an avocado is a good option. My daughter who was 3 when she took Mepron took it...
Yogi - I started treatment with ABX 3 months before I became pregnant with him. At that time we had not tested our daughter so we did not know she had Lyme but suspected it. My pregnancy with my son...
I always use the mustard seed powder bath for detox. It really loosens things up. Of course it's not permanent but gets me through the night's with the kids. You can also sit on one of those big...
Do you have Amazon.com in Canada? :) You can watch it on Amazon. I checked it out from the library a few years ago but I'm in the states so maybe it's only in libraries here. It used to be free to...
Hello st0rch! I think we have all been where you are now and there are many that are at your same place coming here for answers. This site is a great support. All I can say is trust you gut. You know...
Yogi - my daughter has been off meds for a year. She turns 6 at the end of July and she is doing well. I did not know I had Lyme when I was pregnant with her so I did not have any antibiotics while...
Yes! I do! I have had them since 2009. Unfortunately I end up picking them so they don't go away. They have all gone away if I don't pick only to return a month or so later. So strange....
Congrats Yogi! I was in your shoes 3 1/2 years ago waiting for the results. I got good news and I'll be thinking of you!...
My LLMD told me that breastfeeding "should" be fine while on meds. She was not concerned about the med and my OBGYN was not concerned about the ABX at all since I was on them while pregnant with my...
Lymefight - I was never one for meds but I felt like this was the best bet to put my daughter and I on the path to health. Both of us have been med free for a year and doing well maintaining with...
Unfortunately not enough is know about breastfeeding and Lyme. I breastfed my daughter who was born with Lyme but at the time I didn't know I had Lyme and I passed it onto her. I am pretty sure I...
Have you tried Boswellia? It's a great herb and I take it in pill form and it helps with joint pain. I took it during my Lyme treatment and you can buy it from any health store or Amazon which it...
Hi Lymefight! My daughter was 2 when diagnosed with Lyme and she was on Amox and Zithro for three years. She is now almost 6 and doing great. I think kids take it all in stride, I know my girl did....
Just want to say "HI!" to my Oregon people. I'm from Corvallis but moved to Seattle 11 years ago. My family still lives there and I visit often. Anyway - love seeing other Pac NW folks on here. GO...
I had a baseball sized cyst on my ovary that was removed May 2014. They had to remove my left ovary anf tube because it was so twisted up - my LLMD believes it is related....
Emailed you both with the Dr name. Good luck! I know my daughter would not be doing this well today without her help. She is still on Keppra for seizures but I don't want to take her off of that and...
coralmoral - My 5 year old (2 1/2) at the start of treatment went to a Dr in Seattle and after two years of treatment she is doing great and not on any meds. She has been off meds for 10 months and...
I have had is off and on for a year. I believe it can be related to Lyme because I am very active and have a strong core and still have the pain pop up every once in a while. The only thing I have...
IHL, I feel for you on having a child that may have Lyme. My daughter was 18 months when I was diagnosed with Lyme but she was always just "off." As I was I! I knew something was wrong with me but...
I itch a lot after I have gluten. I can tell when had just a bit too much holiday goodness....
I think it depends on the person. How bad do you actually feel? Throughout my whole healing I worked out 5-6 days a week doing cardio and my dr was fine with that. Again it depends on the person and...
I have had VERY bad itching off and on and for me it didn't matter what meds I was on or foods I ate or didn't eat. I have it under control but sometimes it does flair up. I can't tell you why since...
I like the clay best. I LOVE mustard seed thought. I use it and add a little clay also. It is the best I have found and really enjoy the sweating that happens in those baths....
I loved Mepron! One of the best, I would take it with peanut butter. My daughter was on it when she was 4 and was not a fan of the taste of course but would also take it with a peanut butter chaser....
Qrskidmore, Everyone is different so it's hard to know. I passed Lyme onto my daughter but I did not know I had Lyme and was not in treatment. After being in treatment for 5 months I discovered I was...