A friend's niece just graduated HS and has been diagnosed with myoptic neuritis-lots of vision problems. She's receiving lots of steroids so I am terribly worried that it is really Lyme in disguise...
Oh dear, I am so sorry to hear that. Will keep you in my prayers, friend....
I'm anxious to hear also, have been considering these both as well. Again, another slick website so my antennae went up immediately, lol!...
Moon61, I do believe you are right about getting an 11 year old boy to do a coffee enema, lol! But thanks for all the info. How do you find the glutathione--notice any difference? How long have you...
I just read this about milk thistle (from the treatlyme.net website) " Glutathione is the master detoxification agent. The liver is the organ that removes fat-based toxins, and it contains the...
Man, so frustrated on your behalf about the PANDAS/PANS. And really glad to hear that Galaxy is really good--I would like to have my son tested with them but their website is so slick and I'm very...
Thinking of you, Margaret, hoping there's no diarrhea today! Hugs!...
AML: no guilt allowed! Had I known how to follow up on a lymphocytoma on my son's ear in Dec. 2012, we could have nipped this in the bud. Instead, I settled for the doc's 'spider bite' diagnosis and...
Picture--if you have him read a few of the stories about people who have been through so much with Lyme disease, it may spur him to action. For example there is a thread just a few below this titled...
Not something else--not fair!!! Thinking of you, hope that doc finds something and can treat it. Hang in there-...
Since the pain has stopped we're leaving it at that for now. He's been on milk thistle now for over 2 months plus another liver detox pill. However I just read this about milk thistle (from the...
Trav, so nice of you to ask! Yes, he said that if it hurts more, we might need to have an ultrasound done. However we've been lucky and it stopped hurting as quickly as it started. I'm pretending it...
Interesting question, as we never saw any rash or other signs such as high fever that we can remember. The extreme fatigue started in October 2012. In May 2012 he began to have a plantar wart that...
Unlucky, I hope to have the same story as you soon. I am convinced my son also has Bart, but our LLMD doesn't think the co-infections are as bad as the Lyme. Hoping he'll read Horowitz' book and...
Lymelymie, prayers for you and your situation! Your great attitude and strength are a tremendous asset. The best of luck!...
What can you do? Sleep in separate rooms, lol! I've been doing that for 15 years now--works for us! Good luck to you both and passing healing thoughts to you......
Traveler, I have emailed his doctor who has asked what all he's taking. Waiting to hear back now. Now that you questioned if its the spleen, I looked at that site and see that the liver goes over...
Lymebabe, thanks for letting me know!...
Hi everyone, my 11.5 year old son suddenly started having pain in his lower left ribs last night and again this morning so I am pretty sure it is his spleen. We had to go off antibiotics a month ago...
Wonderful to hear! Keep going!!!...
Thanks so much, Razzle! When you talk about Globe Artichoke, you're saying its in pill form, right?...
Thanks for the info, opugirl!...
My 11 yr. old son was diagnosed yesterday with hepatitis. Doctor says is from antibiotic, so have stopped Flagyl for 2 weeks and will retest blood. In rereading side effects of Flagyl, I see two...
A friend with LD is taking Tetralysal and the doctor said not to take extra magnesium. Would the bit of magnesium absorbed in an epsom salt bath be any problem? Anyone had any experience with this?...
Dawnlouise, you're certainly eating healthy--are you off gluten and dairy too? They are major gut disrupters, particularly gluten. For something to bind to toxins, you could try bentonite clay. Its...
Bravo, Soscared! Well written, and it is so important to hit all the points you did!...
Appreciate all the detox ideas that are in one place now, very helpful! 2 questions: I've read not to take bentonite clay when on abx. This is true or not? What about colloidal silver when on abx?...
Spacestar, I put kefir in fresh squeezed orange juice every night for my son. He doesn't love it, but I'm able to get 1/3 cup in him every day. I have had to use mostly white sugar to make it though...
Thanks for the info, Mommy to 2--my doctor mentioned he'd read about enzymes for LD and we're on Bromelaine. I've added in Japanese knotweed myself and have ordered GSE already. I'm going to send...
Hate to be negative, Thia123, but I suspect the same thing....
Traveler, I've only been here a few months but I am always happy to see your posts because they are amazingly informative, thoughtful, and positive. I'll always remember your email help as well--you...
Fantastic news! I can practically see you floating on air right now!...
Hi Roots, I'm so glad you came on here to share and let us support you with thoughts, prayers, and suggestions. I don't have anything at this moment to suggest but I wanted to let you know that...
MarieLS, in the 'for what its worth' category: when I took my son to the acupuncturist, he didn't know about LD either. I explained about so many toxins being released and no progress, but that at...
Jim, at least your pain has names now--go fight 'em!!!...
I too like clay for things--a poultice of clay overnight is the only thing that helps my daughter's knee pain from Osgood-Shlatter (basically from growing pains). She doesn't have Lyme, but I got...
I see what I think is livedo and scratches mostly after he takes epsom salt baths. Would this make sense--is it sort of a herxing reaction?...
Todd, its my son, and he doesn't have any symptoms that I know of, but sometimes hearing about other people's symptoms point out things that I haven't realized before....
Todd, what urinary symptoms do you have? And do you have a rash that is a raised bump that itches at times, sometimes looks like it is the whitehead part of a pimple but you can't pop it?...
Maine, I am so very sorry that you're going through all of this. I often wonder why some people seem to get dumped on. Prayers are coming your way, and I'm so glad you keep posting here! I think it...
Oh, this is good to know. I remember hearing that people saw the streaks during treatment, but I had understood that they were seen before treatment as a rule. My doc says my son doesn't have Bart...
Maine, flank is exactly where? I think I've only heard it in relation to horses, lol!...
Chapelle, I am lol at how your post ended! Congrats on all of it!...
Great ideas! Grace, he takes his Flagyl with breakfast, lunch, and dinner....
Do you think we can wait a week? He's drinking 2 liters of water daily, can't be dehydration....
Apologies for so many questions about this, I never think of them all at the same time! From my previous question, the probiotic should be taken 2 hours after antibiotics. In the morning my son...
If you take a probiotic and Bromelain together, will you reduce the usefullness of the probiotic?...
He's only on Flagyl right now. Was on Doxy the month of February. No B-complex vitamins either. Seeing doctor next Friday and will ask. Thanks!...
In the past week my son has had extremely dark brown urine a couple of times. It doesn't happen every time, and it has just started. I believe it can be a symptom of Babesia. He was tested but it was...