Hi, I'm based in the UK and also have Lyme, Babesia and Bartonella. Currently in treatment with American LLMD. There's a support group on Facebook called Lyme Disease UK Discussion Group, if you join...
Yes unfortunately, I wasted a lot of time and money on Dr R. If I had gone to my new Dr. a year ago, I would be well on my way to getting better. I'm based here in the UK and I didn't realise how...
Hi Greenblue, No, my new LLMD is not in Seattle, in fact he's on the East Coast! If you would like more details, then please feel free to send me a PM, I will happily share with you all the details....
I was under Dr R's care for 8 months and whilst he is very friendly, I seriously doubt his knowledge and experience to treat Lyme & Co. At my first appointment with him, he was confident enough to...
Hello Kate, Sorry to hear that you're not feeling well. I can certainly understand, as I 'm in the same position. Just a thought, but have you considered a yeast infection? My LLMD always says that...
Hi Girlie! I'm a patient of Dr R in Seattle and I'm also on Amoxicillin (4500mg per day). I know that Dr R. says for Amoxicillin to cross the blood brain barrier, the doses need to be very high, from...
I was told by my nutritionist that even a tiny amount of gluten can stay in the body for up to 3 months. So unfortunately, if you are gluten free, then you really have to stay that way. Consuming...
Hi LymePickle! My symptoms for Bart are: Shin pain on right leg Bone pain on right leg Pain in both heels and at back Anxiety (could be lyme as well!) Insomnia (only started since treating...
Hello Healing! Thank you so much for your help! Im supposed to be on 600mg as well, but took 450mg and had a massive anxiety attack, so came down to 300mg. I take the 300mg on an empty stomach, once...
Hi Jessica, Thank you so much for your advice. I don't really have any issues with Rifampin apart from it making my main symptom worse! Yes, before starting Rifampin, I didn't know what a herx is,...
Thank you all for your support and concern. I'm really sorry if I have upset anyone by my comments. It's just so tiring to treat this disease and then see no respite whatsoever. I really feel like a...
Thanks Girlie for your answer and time! Yes, I'm doing as much detoxing as possible, but nothing's helping. With the symptoms worsening, also have been feeling unwell, fatigued, lack of energy,...
Was wondering if anyone who has taken or is taking Rifampin could share their experiences with me. I have now been on Rifampin for about 3 weeks at 300mg (taken all at once). I am trying to work up...
Hello Chapelle! Congratulations on feeling so good and making it to recovery! I'm also 5 months into treatment, but just found out a month ago that I also have Bartonella (clinical diagnosis). I have...
Thank you Tick Bite and Jessica for your advice. Really appreciate it! Yes, I'm going to stick with the Rifampin and increase the dose slowly. Doing Rifampin with Biaxin. Also taking Amoxicillin. How...
Hi All, I'm looking for some advice and help. I started Rifampin about 2 weeks ago for Bartonella. I'm slowly ramping up on it. Started by first taking 150mg and then 300mg. Last Friday, I increased...
Hello Manuel, I really think that you need to get your wife to a proper Lyme Literate Doctor as soon as possible. From reading your wife's symptoms, it is possible that she also has co-infections as...
Thank you all for your messages! Traveler - I always follow your posts, you're such an inspiration to us all! Thank you so much for your kind words. It feels very nice to be a part of the Healing...
Hi MisterMike, No blood tests were completely negative for Bartonella despite getting them done twice with Igenix and Infectolab in Germany. But then they only test for 2 strains, so I must have...
Thank you to everyone who have taken the time to respond. Your advice and support is greatly appreciated. It turns out that some of you were correct and that indeed my progress is being hindered by a...
Hi LymePickle, Yes, we're talking about Dr R! I'm also on Tinidazole and for a while, it helped with my main symptoms and gave me some relief. However, I crashed really badly this month, all progress...
Hi LymePickle, I too take GSE and have gone up to 1 gram, however did not notice any side effects nor did I herx on it. My LLMD (incidentally we have the same LLMD's) says that taking anymore than...
Hi all, I'm thinking of changing my LLMD and going to see another one, who is based in San Francisco. However, I would like to hear of people's experiences first if they have seen him for Lyme. I am...
Apologies if this question has been asked many times before. But please can someone tell me what is the difference between a flare up and a herx. I have read and read what information there is on the...
Hi Kate, I'm going through the same thing right now. I've just completed 3 months of treatment and every month was seeing progress. However, this week has been awful. All of my symptoms that had...
Thanks to everyone for their advice and encouragement. I am really glad that I joined this forum. The support, hope and encouragement that people give to one another, at times to a complete stranger,...
You guys are very brave! I really admire everyone here for their courage, patience and hope. I wish I could be as brave too. I'm trying to keep it together, but not doing very well. I cry all the...
Thank you all very much for the replies. I really appreciate it! I understand that co-infection testing is just as hard and inaccurate as testing for Lyme is, and that is why I had all the tests done...
Hi all, Just joined this forum and looking for some help and advice. Here's a brief history. Got bit in July 2013. Lyme blood tests confirmed by Igenix and Infectolab in February 2014. Started...