Yes, I agree purple tulip, this has been my first real illness in 4 years! I don't know if that's a good or bad thing!! Maybe my body is getting back to normal? Or I'm just unlucky and have nasty...
Traveler, I'm taking muccinex DM which is supposed to thin secretions. The only other new thing that I'm taking is d mannose . I've been taking it for recurrent bladder infections. I know d mannose...
Hi all, I have recently been trying to kick a cold for the past few weeks and have been using muccinex to help clear head congestion. After I take it, I experience slot of herxing type reactions. Has...
Hi guys, thanks for your replies. Other than rotation of abx over the past 3 years, I treat regularly for candida through diet and supplements. My endurance just will not come back 100%. I still need...
I have been on abx now for 3 yrs! I have attempted to go off and within 2 weeks, my muscles start to ache terribly and fatigue sets in!! I'm not sure what to do. My Llmd has said some of his patients...
Georgia Hunter, many insights and helpful information could be had from this! Please write the book, it has been almost 4 years since I began treatment and there is still so much to be learned! Good...
Margaret, I haven't been on the site lately and I'm not sure what procedure you have done, but I know you and I started with this forum roughly the same time. We have been battling this crap for a...
Jack dg, those seem like "normal" neuro Lyme symptoms to me. Most of my Lyme is neuro and muscular so I understand what your going through!! As you get better they will pass but be prepared for a...
Geenah, sorry to hear about your pcp. They generally are not a friend to us lymies! I ran into the same problem when I was first diagnosed with a real jerk of a pcp. He pointed his finger at me and...
Does anyone ever herx from eating raw garlic? I know it is a natural antibacterial. I experience a worsening of symptoms every time i eat it :cry:...
Sounds like it could be neuropathy. I get those warm burning sensations in my feet sometimes. It has gotten much better with new abx though. What are you taking?...
CDC.....Ebola.....and we believe anything they say about Lyme disease???? /community/emoticons/mad.gif ...
Has anyone ever suddenly for no apparent reason developed a "sweet" taste in the mouth?? I've been having this off and on lately and it makes everything I put in my mouth sweet tasting! I'm not...
I remember right before I was diagnosed with Lyme, I was in my car, needed to roll down my window, and couldn't remember how to do it /community/emoticons/shocked.gif I thought I had lost it for...
Hi Rollin, sorry to hear your feeling bad but it sounds like a herx. I always feel bad after lemon water. The "bad" feeling has gotten better as I have become better though! Hang in there!!! Lemon...
Traveler, if anybody can heal themselves, it would be you!! /community/emoticons/yeah.gif Many prayers being sent your way for those herbs to kick in quickly!!!...
BCDARR, I'm very sorry that you are going through this with your husband. This disease is soooo hard on marriages!! I, luckily have a very stubborn husband who puts up with my Lyme attitude often!! I...
Margaret, I'm going to my cardio this Mon to f/u with him re: the hole in my heart. I have been taking a low dose of Ritalin for mental clarity and a little extra energy. I was going to make metion...
Hello Wryter!! Haven't heard from you in awhile, how are you feeling lately?? Have you gotten any of your muscle strength and balance back? I hope you are seeing much improvement and you are well...
Has anyone been to the Mayo clinic?? Just wondering if it would be worth time, travel, and money?? I've always had the feeling there might be something else making my body sick other than the lyme....
Traveler, I am so sorry to hear that you have been re-infected!!!!! Did you get bit by another tick?? How are you feeling??...
Thanks Traveler! /community/emoticons/smilewinkgrin.gif Guess that's why I'm so grumpy and tired!!...
Katemorgan, I used to get ear whooshing sounds as well. They have long since gone but occasionaly I get ear ringing. Has your LLMD recommended ear drops for you? Mine has in past, but I can't...
Pirouette, I'm sorry your having these issues as well! I have been a fit person since my early twenties until I got sick with Lyme. I would love to be able to do all the things I used to do, but its...
Unfortunatly, I had to take prednisone due to a sever case of posion ivy /community/emoticons/sad.gif I really felt awful while I was on them!!...
Is it true that long term abx can cause weight gain?? I am gaining a lot of weight and am not sure why? I was on 3 weeks of prednisone. Could that be it or the fact that the couch instead of the...
sayyadina, I'm not sure if this is the same as what you experience but, sometimes on part of my body will break out with patches of cold chills. It's usually just one area. It tingles and then goes...
I have that to wellbeautiful, my LLMD ask that people not wear perfumes or scented lotions at their appts because of this!! I guess this is common? I know there are a lot of natural cleaning products...
Delmar, I get these every so often, they are miserable, but strangest thing is after it goes away, my symptoms are much better!! Maybe it is a herx? I hope you are beginning to feel better?...
Traveler, I haven't yet other than attempt low sugar diet. After the way I herxed ramping up the nystatin, I know this is significant problem. Do you know a good book or literature for a candidia...
Akkami, I also get that tingling on my scalp as well. My tongue used to tingle but has stopped for almost a year. I think it is "normal" for us Lymies!...
Girlie, sorry to hear your feeling bad, I'm going through a rough patch myself right now, when I herx from abx, I stop for 2-3 days and resume on a low dose and this almost always helps! As far as...
Thanks Traveler! I'm starting slow and my probiotic is 100 billion strong! /community/emoticons/yeah.gif ...
Traveler, uugh! That scares me because I can only take small amts of abx as well!! I've wondered about just what you have stated. I feel as if mine maybe just being kept at bay as well. My LLMD from...
Girlie, I know we use this at work for tx of c-diff symptoms, but don't know what it does in relation to lyme. I'm interested to know myself!...
Tbrown2, Do you take anything for your immune system? Vit C, Vit D? You may want to supplement like crazy for your immune system while doing your physical training coming up. A friend of my husband's...
Just started a new abx and nystatin to go with /community/emoticons/cry.gif I haven't felt this bad in a long time!! I have stopped both and am going to take a couple of days off. Guess all the sugar...
Louise74, have you tried acupuncture?? I have a really good one, he saved me from quitting nursing school years ago because I had excruciating back pain at the time....
Thanks guys!!! I will try these! Garden Peace...That chocolate pudding sounds awesome! If you have the recipe I would love to have it!...
Akkami, my toes, since I have been ill have always felt "tight" and like they want to curl under. I also have muscle twitches in them as well. Do you get any muscle twitches or spasms in your hands?...
Any suggestions or ideas would be appreciated!! Or maybe good food recipes in place of sugary foods and other junk /community/emoticons/smile.gif ...
Thanks Traveler, I have decided for now not to do IV abx and instead am hitting my yeast pretty heavily. I think that has been my problem. My diet has slowly slipped off a "sugary" slope and I'm...
Extreme muscle tightness and pain!! Being out of breath with any activity and I was a runner doing 20-25 miles a week! /community/emoticons/cry.gif ...
Teragram, what is the flylady method of cleaning your house? Is it like mine? Like "fly by the seat of your pants depending on what your Lyme allows you to do??" kind of thing?...
Icurseticks, I almost always have stomach issues as well. Doxy was always the worst! There are plenty of other good abx out there that aren't so strong. I hope you find one that works. Don't give up!...
The debilitating weakness in my arms and legs!!! I'm on my feet all the time at work and began to think I was going to have to quit!! That was one of my first symptoms to go...
I agree as well!!! Traveler you have been the calm in our "storms"!!! I took your advice and have not gone the IV route. Thank you for your common sense approach to this disease!...
I used to get horrible ovarian cysts that would burst 3-4 times a year!! The pain would send me to the ER. Since being treat for Lyme, I have not had any..... /community/emoticons/yeah.gif...
Delmar, Ceftin was one of the best abx for me!! I was on for about 3 months. I had to go on to something else because it wasn't as effective anymore. Hope it works as well for you!...
Chapelle, I live in Missouri. Lymebabe, I don't know if I have any other infections. I have thought of going to Mayo clinic for this because insurance would cover. I believe my LLMD would do these...