Wondering if anyone has had a herx from treating mycoplasma? After getting sick last year and being diagnosed with Chronic fatigue syndrome (mayo), Firbomyalgia (state university Hospital), etc, I...
Im kind of seeing a few of them. One is monitoring since he doesn't do IV's and the one doing the IV is a infectious disease Dr. affiliated with a major hospital. He is more of a cdc type Dr. in my...
Ok, 18 Doctors later, not including 7 ER trips, three lumbar punctures, 4 MRI's, visits to the University of Michigan. Mayo clinic, etc. etc, Im wondering if this is a good sign. I have had many Lyme...
I was diagnosed with post viral fatigue syndrome that started 9 months ago. Months ago I started getting a numbness feeling in the tips of my fingers on one hand. It has since progressed slowly and...
http://www.treatmentcenterforcfs.com Im not promoting this place (even though i'm a patient), but it has a lot of information on the viruses. His Beaumont Hospital video presentations are long but do...
My slow decline started with a unknown chest infection and manifested from there. Fast forward 6 months and was tested for EBV, CMV, HHV6 (Labcorp). I was told that my elevated IGG HHV6 was causing...
I recently came back from the Mayo Clinic in Minnesota, attending their CFS/Fibro clinic. Interestingly I was given a RX to help combat brain fog based on new studies. I was told that you would know...
I went back in November of 2014 with an open mind that I wanted a diagnosis of my symptoms. I was given a diagnosis just before I left from another Doctor, but Mayo didn't know that before I showed...
I was looking for something to help my decision making. I have some good LLMD's that would go on my IGENEX test and symptoms. The only issue is that I have had many other labs done all negative and a...
My body cannot really tell if anything is working. My Liver enzymes, SED rate, and my Estrogen has all doubled (High) all within the last two months of treatment on Doxy/Zith (I'm a male so the...
I'm in the US, but Infectolab just sent me a test kit DHL to utilize by having a Dr. withdrawl a blood sample and send back within 2-3 days. I know the issues that non LLMD's seem to have with my...
I forgot to mention, i don't recall herxing after taking meds, just a slow decline. The only thing close to a herx was the second day of taking flagyl my face and hands were kind of number and i was...
The LLMD would treat me for HHV6 with natural supps, not antivirals ABX. There is some worry about liver problems doing viral and bacterial treatments at the same time. The ID Dr. treats Lyme IF you...
And to make it worse, im doing five days of iv steroids as a test for my symptoms. So far after three days i dont feel better. If my immune system takes a bit of a dip after this and i chose the...
I have had lots of Lyme type symptoms over the past six months, including cardiac involvement, small joint swelling, and Brain lesions. The brain fog is getting scary. The hard part is two LLMD's...
I just got my results today and I have two copies of C677T MTHFR. I was recently taken off meds due to what was possibly toxin build up. This would make some sense now. My Homocysteine levels were...
I called them and they are sending me a kit to have drawn at the local Drs office. Hopefully it doesn't get lost at sea on the way back as I see they prefer to get in within 48 hrs......
The August 2014 version of the IGENEX Western Blot for IGM says on it that bands 31, 41, & 83-93 may cross react with antibodies from viruses. I left a message with Dr. Harris at IGENEX trying to get...
I left a message for Dr. Harris at IGENEX about recommended tests to confirm but I haven't heard back yet.....
For a variety of reasons, I want another Lyme test to back up my positive on a western blot through IGENEX. I tested Lab and CDC positive through them, but I didn't get the 31 epitope test to rule...
I have been researching it for awhile to and its confusing. My August 2014 IGENEX lab report said bands 31, 41, and 83-93 may cross react with viruses. I had these three plus one more. I recently...
I don't think anyone knows. Although studies show the presence of the bacteria in sperm (50%) of men and secretions of women (100%), I don't think they have done studies to see if they can in fact...
Unexplained anxiety was one of my first major symptoms. It wore me down since I was having night anxiety and I couldn't sleep. I believe that's how my other latent viruses or co-infections came out...
My Dr. said if I start the IV medicine that I don't need Actigall if I only use IV for 5 days on and 2 day off (with oral Omnicef) each week. Is that a option?...
I do a few Epson salt baths, water with Burbur drops and lemon, detox tea, and a bunch of supps that may or may not help. I recently took about 9 days off after an episode (possible Doxy cranial...
I have some Valcyte I picked up today prescribed by my NON LLMD Dr. Lerner for HHV6. He claims I have reactivated Mono from it, although my EBV is within range. He claimed that I could be on it up to...
Thumb area. Right now I am in bed about 90% due to the head fog, pressure, dizziness, and weakness that has progressed over the past few months. There is nothing I would like more than to get better...
I had an old EBV high IGG titer that quest labs said was a past infection. I think I was exposed to mono as a kid, but the hhv6 thing is the one that showed up on labcorps that Dr. M.L. is basing...
Dr. Z hasn't suggested Chelaton so far. My first appt. cost 140.00 for a new patient, 10.00 for something else on the bill, 169.00 for a quest allergy draw, and 95.00 for a hair sample. The Igenex...
He didn't say why he thought they were reactivated. I was feeling good up to the day of the pericarditis chest pains and within weeks i had my first small bouts of fatigue. Those symptoms have never...
Thanks for the replies. I am waiting till next week to talk to the LLMD, but the ID Dr. still thinks the lesions, weakness, joints, etc. are all caused by the virus. I did find some disturbing...
I cancelled out of courtesy and impulse since the Dr. to do it was a vascular surgeon and meds were ordered. I also tested positive for IGG Bartonella, which is maybe old infection since cats loved...
I have a huge dilemma. I have been sick for five months slowly going down hill. All kinds of neuro symptoms as well as brain lesions. Two months of orals without improvement and finally due to get a...
Dr. Bruscanno's treatment guidelines, hints, etc. has some good info in it as far as suggested antibiotics and supplements, etc. Also, many of these things can be found on this forum or in the "new...
It may be a bit hard to read like this, but this is the current price list and test codes. I had the basic IGM and IGG westernblot for 200.00 This was paid directly to the lab and the Dr. was paid...
In a span of 4 months i had five lyme tests. One elisa on blood, one western blott on blood, one spinal fluid pcr, and one unknown lyme type test from a high ranking state university. All were...
Staceygar, if you dont think Dr. M. is going to get tou in sooner, i would call Dr. Z. in romeo and see what their timeline is. I ended up getting in fairly soon on their canellation list. If your...
It appears that someone cancelled and seeing as how I had called before in the past, but they didn't call me back some time ago, they let me take the spot. What I can tell you is that I wrote out an...
Same here, anxiety was my second major symptom that lasted a month before treatment, went away, but now coming back while temporarily off medication. I was also told that symptoms will come back in...
I sent you a IGENEX price list of what they offer. It may be a bit complex but perhaps the Dr. can explain what some of the tests are they may be the best off of the list. As my email says, I only...
I was taken off meds this past weekend due to what the Dr. thought was toxic build up (Herx) that affected my heart and head. I felt the same symptoms for five days after stopping and the last two...
I have your same symptoms and many more (Neurolyme) and I have a can next to me right now. I have been eating them on for several weeks and off along with almonds. I cant say for sure they have any...
I have made great strides in the diet but I could do better. I don't drink alcohol, don't smoke, don't drink caffeine. Mainly drink lemon water and burbur drops for detox. I have done a few Epson...
I realize it takes time. Doxy 400mg daily for 8 weeks, Zithromax 500mg for 3 weeks, and I only made it 2 days on one daily Flagyl 250mg due to facial and finger numbing after taking it. I thought it...
Has anyone here had such physical symptoms that they took a week of high dose cortical steroids as a trial to see if any symptoms got any better? I realize that we don't want to take them unless in...
Cool, I just got into Dr. L. in Saginaw after your email for Monday on a cancellation. I heard good things so soon I will be able to compare Dr. Z in Romeo, Dr. L in Saginaw, and Dr. L in Beverly...
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Hopefully me email gets through with the three ILADS name that I have, one of which im going to right now in Romeo. I also listed a couple that the Dr. gave me for Dr's who prescribe IV's if needed...
Is there anyone out here in Michigan that has had a positive lyme diagnosis that has found a good place for treatment? I potentially have Neurolyme with brain lesions, joint problems, heart problems,...
Sick four months with FOUR negative Lyme tests from other labs and ONE CDC positive from IGENEX. The Positive from IGENEX was done the same week a negative from Quest labs on a western blot....