I haven't been around much lately due to this very same issue. My doc went ahead with the HIDA Scan showing an ejection fraction percentage of 36%. Depends on the doc whether anything below 40% is...
Mine both got up in the 80's when on IV Rocephin. They came right back down when I was finished....
I definitely had the numb tongue thing. I noticed it back in May and was diagnosed with Lyme in August. It was actually one of the first symptoms to resolve itself after starting antibiotics. After...
Hello All! I submitted my Lyme story to Project300k.com's, Faces of Lyme section. The website's goal is to share 5,769 different Lyme stories. 5,769 being the number of people diagnosed each week. I...
I live in Parma and would be happy to give you feedback on my Dr. in PA, as well as a phenomenal neurologist here in Parma! Let me know by email if you still need this information!...
My "high tech" copy/fax/scanner at work blue screens 50% of the time I use it, and when the signal won't come in on the radio, I just stand by it! Lol!...
My most debilitating Lyme symptom has always been the heat intolerance and the sweating. When I was on the Doxy, I was sweating more. Then I did six weeks IV Rocephin, and it increased more. After a...
I have the same problem. It's mild aquagenic urticaria caused by Lyme. I take short, cooler showers and it helps a little....
I just started Ceftin after meeting with my LLMD. I find it to be surprisingly gentle on my stomach, although the burps taste awful. I've had to pee a lot, too....
I, too travel to PA, but there's one near Cleveland that doesn't take insurance. Feel free to email me, I may have few options for you!...
The flashes are called phosphenes. Oddly enough, each person's are unique! Mine are green and purple....
I don't want to argue, but he does have several websites promoting himself as a LLMD. I agree names shouldn't be listed, but this is an old post and I've certainly visited his websites....
In the poster's defense, the particular doctor is a very public LLMD, and does not hide that. He has several websites, etc....
I sweat 24/7. Most of my symptoms have diminished, except that. I'm always hot, and it's by far the most debilitating symptom I have....
Razzle, I actually haven't heard of those! I'll look into it. I was also thinking of taking HCL and HCL activator. Have you heard of those? My doc thinks that the Lyme exacerbated the condition, but...
I have autoimmune atrophic gastritis, my stomach lining is gone for the most part. I've also been prone to ulcers. My stomach always cramps, but nothing severe. I feel just awful for anyone that has...
When I was on the 2 grams of rocephin, I was getting very nauseated. My doc cut it down to 1 gram a day and said to still eat with it to prevent stomach upset. They also said I could take an over the...
Turns out I'm just too pale lol! I'm a redhead and my skin is practically see through. My doc said my virus and sinusitis aggravated my capillaries and that there's no cause for concern, which is...
I try to avoid panicking most of the time. But when I got out of the shower last night I saw what looked like two bruises on either side of my tailbone. I had my husband look closer and it's two...
Thanks happyjo! I've been trying really hard to stay positive. Plus I have two grade school boys. Some days are a disaster, but all in all, I feel much better than I should! The Lyme caused a host of...
For me, definitely the EBV makes me super fatigued. It seemed way worse when it happened at 15 and 17. But I caught a nasty cold and all my glands swelled up with it and the doc said my cold was...
I haven't posted in a while, so I figured I'd send an update. I still haven't gotten to see my LLMD, my appointment is in one month. But, my ID doc is amazing and has had me on a picc of Rocephin for...
I'm 31 now, was infected at 26....
This is so frustrating and is something I've dealt with, and luckily, succeeded. I had to convince my doctor it was not a false positive even though I found an embedded tick five years before, the...
I, too, was concerned about a false negative with Quest. However, I did test CDC positive using Quest. The problem is that I tested positive only on the IgM side of things (those tricky little bugs),...
Oh no! I'm so sorry! I'm curious as to your next step since I'm guessing my doc might do the same thing. Did your doc say anything about what to do now?...
My ALT went to 69 and my AST to 73. My doc cut my dose in half, which of course isn't as effective. Now I'm on 1 gram per day. This Thursday we will decide if it needs to come out or not, but I feel...
While I continue to wait to see my LLMD (still over 2 months away), I'm letting my Infectious Disease doctor treat me how she'd like. She had me on 200 Doxy a day, not a lot! I still feel awful, but...
I didn't know I had Lyme at the time, but I experienced a molar pregnancy in 2011. I got Lyme in 2009. I'm terribly sorry to hear what you are going through. Lots of hugs!...
Mine feels bruised sometimes....
I just emailed the name of a pediatric LLMD that's in the same city as Dr. J. I wish Dr. J didn't book so far out!...
Fellow Ohioan, I sent you an email. =)...
Please email me if you will travel to northern ohio. =)...
Btw, thanks!...
I actually am hypothyroid. Appears to be hashi's as my levels are just out of range, but my antibodies are really high. I also have atrophic gastritis and pernicious anemia. My chest x-ray was clear,...
Sorry guys, don't see my LLMD until November, so I'll probably have a ton of questions until then! My phlebotomist friend was going over my bloodwork, since it's taking forever to get to my PCP, too,...
I was infected in Brunswick Hills, Ohio....
Mine was there for only a couple hours, and was not engorged. But, the mouthparts came off and got stuck....
I'm having a hard time staying positive, as well. I try to remind myself that the Lyme causes depression, as do the three autoimmune diseases I've also been diagnosed with. So, I try not to get...
I have a friend who is suspecting Bart from a severe lice infestation! At least that's what her doc thinks......
Hello All, I've been asking a million questions lately, but I keep coming up with more. During my last neurologist appointment, he gave me my blood work to take to my PCP until my LLMD appointment in...
I always feel like I'm running a fever, but it's usually normal and I cannot tolerate any temp above 70....
It's so weird! In a way, it's like this disease makes us superhuman! My temp is back up to normal, seems to drop at night and goes really low in the early morning....
I should add that I'm shaky and my hands are cold....
I started Doxy 200 mg per day on Tuesday. Yesterday I ran a low grade fever, but now it's really low, 96.9. I retested for accuracy. Is this normal, or should I call doc?...
Really?! I sweat uncontrollably 24/7, so Babs totally makes sense. I have not been tested for coinfections. Should I ask my ID doctor, or wait till I see a LLMD in November?...
OMG, Razzle, thank you. I have been searching for this online and couldn't find any info. You guys are the best, even if this disease is the worst!...
Fantastic idea, since my insurance won't let me have zofran! Ugh! Thanks!...
I'm totally disappointed that it will take so long, there just aren't a lot of options where I live. My neurologist is definitely ISDA. He said I was negative for Lyme since I only tested positive...
I'm definitely feeling lymie. I have a ton of symptoms. But the doxy itself isn't causing ill effects thank goodness. I haven't yet been tested for coinfections, and my first LLMD appt isn't until...