Sunny - I would send you an email with the Dr's info but your email is not turned on. I just sent in my blood from the triple draw. How long did it take for you to get results? My problem is that I...
stonybrook university has a very good Lyme lab....
I've been away from this board for a looooong time. I had a relapse of my Lyme back in November 2014 and I went on IV rocephin for 8 weeks. I followed that up with oral doxy/tindamax until three...
I just wanted to give an update. Things are going terrible. I am hoping that it is a bad herx. symptoms that I haven't had in a year have come back gotten worse every day for the past few days I'm...
Tickbite - I am using the eclipse pump bslls that deliver the abx over 1 hour. Last year v the balls were delivered over 30 minutes. Different pharmacy. Priroutte- I came down with the flu in the...
I posted about the Galaxy Diagnostic Bartonella testing a little while back. While doing my research on whether or not I want to spend almost $1,500 on their testing, I did find that the best bart...
Pirouette - Why only 1g. I thought the standard treatment was 2g/daily. The last time I was on IV, my third week was the absolute worst. Before I started the IV I really didn't believe in herxing. i...
Cd3764- what are your symptoms. Mine are all peripheral nervous system also. I have hypersensitivity to anything rubbing against my skin, muscle twitching, burning, my skin leaves impressions when I...
I just completed my fourteenth dose of rocephin. even though I did this a year ago I forgot how rough it can be. The first week was a breeze. The second week every symptom came back muscle twitching...
I am also using infuserve. They say on their website that they don't take any insurance. i don't think you could beat their price anyway. I'm paying $360 for two weeks supply of rocephin and...
There was a time that mdl in nj tested for a few known European strains. I don't know if they still do. I know they only test cdc bands got US strain. Not sure what they do for European strains....
I am currently on day six of iv rocephin. Your symptoms usually get worse before they get better. This is my second time on iv. Last time I was at my worst, mentally and physically at about week...
Akkami, Where are you getting your meds from. I am also in IV and the rocephin is less than $200 week through infuserveamerica. I am using a nursing service for dressing changes, but you can do the...
I was just re-reading the recent study by Dr. Zhang of Johns Hopkins in which he tested 165 FDA approved drugs against Bb. Metronidazole performed extremely poorly in his study. According to Table 4...
I was on ceftin, but haven't been on biaxin at all. I think the ceftin made me herx about 3 weeks into it. It is similar to rocephin since it is a cephalosporin. the main difference is its a short...
I was taking 400mg of doxy and I 'pulsed' 500mg 2x daily of flagyl for 10 days on and 10 days off for 2 cycles. I think that I herxed the first cycle, not sure after that. I'm currently on Rocephin...
I have suffered through going to work almost everyday. My employer has been very understanding, but I haven't really taken advantage too much. My insurance has picked up all of my orals and I get...
I take 60 billion 2-3 hours after my morning abx. Sometimes, especially if I'm supplementing by abx with an extra one, I'll take another 30 billion before I go to bed. For example, i'm on IV Rocephin...
Mom of 2, the cost for me is $720 for the medicine plus you still need to have the line inserted. I just paid a local IV nursing company $350 for the line. Then, I am paying $135 for them to come out...
You could order the Igenix blood work before you go to your llmd. You can ask your PCP if he will order the test. I don't see why they would refuse it. It would help you save time with your llmd who...
I had a picc line covered by insurance last year. They covered 30 days of meds. At the time I was herxing so bad I thought meds weren't working so I never tried to get more. Especially at $2500 a...
Well the line is in and I did my first dose. No issues. Went out for dinner with my wife fit sine Portuguese food. This morning I took a tindamax fit cyst busting. I plan on taking 250mg 2x daily in...
The midline is in. I'm going to start first dose of rocephin in a few minutes. Hopefully recovery starts now....
Today is my 24th wedding anniversary and as a present to myself I am getting a midline put in tonight and starting Rocephin. It's just a coincidence that it starts on my anniversary. My doc was on...
Jackie Moon - If your doctor didn't explain to you that this is a side effect that could become a serious issue then I would be a little concerned about his/her knowledge. It doesn't mean it will...
Is it only 1 injection a day? I thought the reason that IV is preferred is because IM requires multiple injections daily....
All of my symptoms are peripheral neuropathy so I was nervous taking it. If you don't take either one for an extended period of time, their is no permanent damage. I would give tindamax a try. You...
Hornet, At my worst, I had many symptoms, but the main ones are the ones listed above. Three weeks into my Rocephin I was at my all time worst. I was on for only 4 weeks. When it was time to pull the...
I took both tindamax and flagyl. the side effect to both of these drugs is that they cause peripheral nerve damage. it could be permanent but is usually temporary and stops when the drug stops. I...
I was on 400 milligrams of doxy for months.I never really had any adverse reactions to it except once in awhile and only in the morning I would get nauseous after taking it if I didn't drink enough...
I have been eating a new brand of greek yogurt (at least to my stores) called Maia. It's from grass-fed cosw, non-GMO, gluten free. They use cane sugar and it contains 25 billions probiotics. I...
Out of curiosity I contacted Galaxy Labs to find out how many strains they test for. This was their answer: Our genus-level PCR primers pick up at least 7 species/strains of Bartonella which grow in...
I just wrote about a new Bart test that might be much more accurate and the Dr that helped create it. He is vet who is a leader in vector borne diseases. He has found that in some cases people with...
I will ask for Rifampin on my next visit. I really doubt my llmd will give me a Rx for it. About 2 months into treatment I asked him about Bart because I have always had burning and tenderness in my...
So now I have a few weeks to decide whether or not to try this 3 day test. I haven't been on any meds specifically for Bart like rifampin or clarithromycin . It is my understanding that many abx will...
I was on 400mg of doxy for about 6 months. I guess I have an iron stomach because for most days it never bothered me. There were some days when I got nauseous and even some that I threw-up. I think...
Traveler, Here are some of the links to information on the new Bart test: http://www.cvm.ncsu.edu/news/2012-05-04-Uncovering-Bartonella-the-Stealth-Pathogen.html...
I will not be seeing my doc until Dec 3 so I definitely won't be doing the test before then. i will discuss it with him, let him read the articles and get his opinion. He will do it if I ask, but I...
I think it is clinical because their are no reliable tests. If there were reliable tests, this wouldn't be such a controversial disease. I am leaning on being willing to spend the money on the test...
I'm not sure why no orals along with the IV. It was the same last year when I was on the IV, he had me stop with the oral - Bactrim DS as the time. I guess I can try to find the houttuynia tea....
The backslide was devastating to me. I had a pretty good summer. i was able to go on with my life pretty normally, with the exception of carbs. I was able to wear most of my clothes and go out to...
My symptoms are all peripheral nervous issues. My feet are burning, I have muscle twitching, my skin is hypersensitive to the point that what clothes I wear is a big deal. and putting my hands in my...
I've been doing a lot of research in the last week or two and I came across some articles about Dr. Breitschwerdt and his new Bart test and the fact that he feels many lyme infections are actually...
Those are all my issues. Mine is head to toe, with the most sensitive being the calves and feet. It is either an active lyme infection, or the damage done by lyme to your peripheral nerves. Just like...
i have the Nystatin Oral - Swish & Swallow. I don't really use it since I take 60 billion probiotics, it keeps the yeast infection under control. There are no side effects that I know of from it....
It's an anti-fungal? it keeps the thrush at bay while you are taking abx. What's the question?...
Wow. I figured it was a toupe, but I never guessed 67. I found a site that says he graduated med school in 1978, so he could be that old. I would have guessed upper 50's. That doesn't leave many...
There is no way those results are CDC positive. You need 3 bands on the IGM to be CDC positive. There is a typo somewhere in there....
Lovemychildren Mom, are we talking about the same Dr. S in Howell? I don't think he is anywhere near 69 years old? Is this the one right next to the Wawa?...
I was on rocephin a little over a year ago. I was in bad shape, physically & mentally when I started. I thought it would be a life saver. I was expecting it to rush through my veins and I would start...