physedgirl09 and octobrsky13, you can both personal message me, i can help you. i live in n.j. and have been down a very long road. don't use the dr. in middletown. there are others and the one i'm...
RMTC40, I am walking in your footsteps and have been for 3 years. My son is now just 18 and we started around age 13/14. We've been down the abx and herb/detox road. I have information for you, my...
thanks all, i needed that!...
8 weeks, Bactrim That is what our one LLMD does not matter what. Bactrim covers more of the coinfections than Doxy apparently....
What part of NJ? I am in central/south and my email is enabled, I can send you info on what I have. Also, there is a support group, a year old here in Shrewbury/Tinton Falls that many people find...
My son has been taking it for almost 2 years, every afternoon after school along with alka seltzer gold and lemon and also pinella brain nerve cleanse. Not sure how much it helps, but he won't do...
This disease takes a lot. My son was 11 and only got amox. By 13 he had ticks and a few months later after a round of doxy for acne had raging - intrusive thoughts, etc. He is 17 and we are still...
I am the mom, I do understand - been 3 years of nightmare now, raging, anger just awful in a teen. 2 years of treatment. I do understand, just not sure why he is wicked nasty only to me 24/7 365....
Hi, I sent you a private email, have not chatted with you in awhile, sorry this is happening.......
I have been using Ultimate Flora for my son. 50 billion at lunch, 100 billion at night with 2 candex to keep the candida he had last year at bay. Amazon has the best prices 90 ct. 50 billion can go...
Congrats Chapelle and much thanks on my behalf and everyone you have and will help. You are amazing. I have been helping many people also, but sadly have not gotten my son well yet. I hope to someday...
Hi jamieleigh, I am well seasoned with lyme and co. I live in Middletown NJ and have thoughts on dr.s for you. My email is enabled....
Thanks blueberry :)...
Thanks you all, as you probably have surmised by now, I'm not so great at keeping my mouth shut :) . cd, I have to take a page out of your book maybe. Yesterday I flat out told her it was really hard...
That is the problem, I've been telling her for a year now. Gave her tons of info and Trav. was kind enough to give me info for Ct. TWICE when I lost her first email :) - thanks Trav! So in Fall and...
If you FINALLY have a blood test - and maybe had lyme and co. a long time.... like 10 + years. If you have ONE positive band, do you have lyme? IMO, I'm just being lyme stupid here, but I really need...
Please send me the information you have for Dr. D in Marlboro as well? Maybe there is something new I don't know? My email is enabled Thank you....
I live in Monmouth County and can give you a list of drs and thoughts on them, my email is enabled....
I can't make it better for any of us, but HUGS HUGS and more HUGS!!!!!!!!! Try to stay strong and rest when you feel weak, you mom more than understands and I'm sure feels the way you do. Spend time...
http://commonhealth.wbur.org/2016/02/big-data-lyme-disease ...
Dr. S is our doctor as well, 21 months now. Dave and I differ a bit on this topic. He has some very good points about doctors as well. If you would like to PM me, it is enabled and I could chat with...
There is a meeting today, I know this is kind of short notice. If you are on facebook, the group is new, Central Jersey Lyme Support group. Here is the post for the meeting today - speaker is a rife...
I do not live in Canada, but I do think you should find and LLMD and be fully treated......
Sorry PeteZa and Traveler. I deleted my post, didn't mean to overstep.......
Hope you are all ok and get well - or at least go have some fun! (whatever that is...)...
Sorry Garden Peace, that is awful news... prayers... hugs!...
This explains my son a lot. He lost friends with things he said, but most of it is slammed at me. I know he struggles with serious intrusive thoughts and more (ocd, odd, tics and then of course they...
Hang in there, some good some bad things there. Hope you are the parents that win out :) I don't know why life beats us up over and over and over... getting harder and harder to get back up... :(...
Chapelle, emailed you Afiya4health, thank you, will be interested to hear how it goes. I'm seeing how we do the next 2 months. I know this is long, slow, painful and hard. Hugs!...
I'm so sorry, this sounds like our life..... so the why me, I get that, I just don't know why either.... :( HUGS!!!!...
My son had SERIOUS rage at 15.... I now believe it's mostly the Bartonella which is very hard to resolve. He was neg, in blood work for it, but our LLMD diag. it clinically last Feb. He detoxes,...
As you know, we are using Doxy, Rifampin 150, 2x a day and Abart and seeing Dr. S. We are FINALLY at 15 drops 2x a day... took 5 months to get here, and it's beating Andrew up, but we are staying the...
I realize we all want to hear positive stories and they help us keep going every day, so just thought I'd put it out there, glad you heard it :)...
Son is taking Pinella Brain nerve cleanse... Nutramedix...
http://lymeninja.com/72-leslie-hodge/ Feel like I should listen to her every day!...
Sorry cd - didn't realize I did that, have been typing so many names in personal emails lately, I did it without even noticing Really sorry... usually don't do that......
I know people who love Dr. E. She uses both herbs and abx I think. I did hear you wait 2-3 hours in the waiting room and her treatment is not what it used to be before he husband died from lyme and...
Hi Sayyadina - we haven't chatted for awhile, but I'm always thinking of you! Breathe... hang in there... wellness has to come for you somtime, it's such a long hard road though, I know. How are the...
Dave, hang in there, you will get there. You know we are 2 1/2 years of nightmare, 20 months into healing. Will see Dr. S today. It's peeling layers of an onion, a slow steady painful process and...
there is an excellent dr on LI, Dr. G my friend here in nj takes her son every week, all the way out there, he is holistic and studied with the best......
Dave if you are not happy with Dr D, you could try Dr. M in the city, would be convenient for you during work weeks. You could bring all the work you have had done and files with you so it's not...
There is Dr. Z and Dr. O in Shrewsbury and Dr. D in Marlboro as well. Close enough for you... We are 20 months with Dr. S...
Don't know here, but our Psych. / Dr. who is rather famous... indicated that most of those tests are a waste of money, you already know you have the infection, it needs to be treated symptoms will...
You can try Dr. Z or Dr. O in Shrewsbury or Dr. D in Marlboro. Me email is enabled. My son is with Dr. S for 20 months now. He is quiet. I bring my list of questions, he answers them all and explains...
Vegetables good, sugar, carbs, yeast, anything that turns into a sugar and can feed the bacteria... bad :( Hang in, it's a long road, but wellness will come. Take a good probiotic too, Ultra Flora 50...
klustpooh, my son was not treated for about 2-3 months. Looking back, he had a fever, but all of my children have had that (not lyme), he complained about his legs hurting (thought it was growing...
So sorry Trav. - I thought this was IN ADDITION to regular treatment, something to help with symptoms. Guess I did not read it properly. Sorry I posted it everyone!...
I'm sure it's hard to find a pediatric LLMD, but that would be my way to go. They (hospital infectious disease specialist) under treated my 11 year old and he is now a raging psych case for the past...
She should def. check it out as soon as she can and see an llmd... in my opinion..., the longer a person waits and the more it can grow... the worse it gets... Maybe it is just arthritis or some kind...
Thanks everyone - you are always invaluable to me and I heed your advice tremendously! What would I do without you????...