Dr. K just opened up her own practice on 2831 N. Milwaukee Ave after being with a group practice. She was recommended to me by a couple ILADS doctors. I haven't been there though. I am only aware of...
Hey ya ll I just wanted to chime in I had all of these symptoms with adrenal insufficiency. Mornings were just awful. I felt like death warmed over. I am not sure that is the case here but checking...
That is correct. My Bart was very very strong. Bare in mind you can't possibly start at that dose. You have to work up to it over months. *****This should not be done without some sort of Dr...
Nope. I mentioned above Round 1: 9 months of rifampin and biaxin. It didnt kill it all of bartonella. Stopped. Round 2: 1 year of biaxin + 1.5 years of biaxin and rifabutin. Total therapy for round 2...
Thanks! Oh you can share my Doc's name if you want. I wasn't sure if I could on forum because of rules. Can I share links? If I can't you guys can erase it. This link outlines my entire treatment...
It has been an insane grind through severe sickness, hard therapy, losing all ability to function, and lots of prayers trying to get better but....... This month is 1 year of being Bartonella FREE....
I did not have TMJ issues. There are a TON of different types of dystonia however. Mine was more a tremor ( Parkinsonian type ) and very abnormal twisting of the neck, hands, and elbows. I couldn't...
Good luck with it. I am 4 years waiting. You need a disability lawyer to even get a hearing in front of a judge. Good news is in most States ( I am not sure it may be all States ) your disability...
I had dystonia specifically caused by Bartonella encephalitis. It's not a common symptom but does happen. It's gone with antibiotic treatment. It was kind of stumbled on when I was given strong...
IV Phosphatidylcholine is pretty pricey. I think it was like $400-500. I am not aware of an oral version. I was at a couple of long term Lyme clinics that gave it to me. Most LLMDs don't love to give...
Johns Hopkins is in open argument over the whole thing. Some doctors are fully on board with LLMD and ILADS and other are in complete denial and sticking to the old thought on Lyme and co's. I...
Yes lots of tiny specialized blood vessels around the eyes so you could see how Bartonella could be problematic with that.......
Yes it's a real pain to diagnose. I was first diagnosed symptomatically of course as most LLMDs do. Symptoms: Still kneck Visual changing and melting of colors Hallucination of objects running across...
I have had a bunch of people email me because doctors just don't seem to understand the fact the Bartonella can cause encephalitis / meningitis which I have experienced strongly. Yes...
Bartonella did it to me. Make sure to tell the eye doc to watch the retina. Eye problems are common....
I have had tularemia. It's odd. It DOES produce boils but for me it was near areas where I had contact. Mine were on my fingers of my hands. The problem is that bartonella also produces boil like...
I emailed you. Doctor M teaches infectious disease at Johns Hopkins and is an LLMD with office right next to the hospital. All the best....
Hey did you ever get checked for SIBO ( small intestine bacterial overgrowth ) like I mentioned? It's a simple breathe test. I was about 130lb. I went on SIBO treatment I am back to 185lb. I was just...
Bartonella bartonella bartonella. Look up detached retina (or retinal problems ) and bartonella. Very common. I have to get my retina checks all the time being on bartonella medication. Most of my...
Yes I have been seeing Doctor M for about 14 months. I have been around the circuit of well known LLMDs and they all named him as the most respected on Bartonella. Anything published lately about...
Rifampin isnt usually one to cause depression. It is suppose to be excellent for reducing brain inflammation that can lead to depression. That being said I have herxed with bartonella and babesia...
I took colostrum powder with abx and I was fine. My LLMD actually recommended it. Great immune booster. It's not "exactly" milk dairy either....
Colostrum powder. I use symbiotics. It works great....
No doubt at all that these tests miss infections often and are very inaccurate which is why it is very wise to treat symptomatically and why ILADS ( & even galaxy ) recommends it. Everyone on this...
Low WBC is really common. In many cases it is your body finally identifying infection and fighting it. Some of these infections are unique in that your wb's self sacrifice to kill them. I was on...
Having had many negative bart tests with other labs before a positive galaxy test I can tell you galaxy is about as good as it comes for bart. That being said it is very expensive and nothing is...
I missed this. Ugh. Yes Prescript Assist is soil based. I have issues with Lactobaccilus because of a tad of SIBO but Prescript Assist is much better than the rest for me. I read it holds better in...
I am not big on starving or adding too much into my diet either. I try my best to be gluten free dairy free just because it is anti-inflammatory but I never had to do any other crazy diets to get rid...
Well seeing as Babs ( as well as malaria ) is a red blood cell protozoan parasite I would think Alinia can be used for that. I never heard of alinia for malaria though. I took it and couldn't tell...
I tested for and treated SIBO and switched from Ultra Flora critical care to Prescript Assist and I am doing a lot better with gut issues....
Levofloxacin isn't "necessary" to kill Bartonella. The other combos will do the trick. It just takes longer. Dr. M and some other big name LLMDs have 30 years at it and don't feel the benefits of...
Oh I hear you on this one. I was 9 threshold /10 pain for month. I had a couple months on and off near that. I will never use that number on scale again. Ever. I don't feel most can even understand...
I am on magnesium taurate and it makes a difference...
Yes my llmd ordered test. C4a is internal inflammation marker not just Lyme. I have read elevated c4a and low Vega indicates mold issues. Honestly their are easy mold tests like real labs that...
I tested negative six times for bartonella. 2 years after I got infected my body decided to make a defense and I tested positive then! I used galaxy labs. They are best for bartonella. Igenex more...
No 3500 is still active bartonella. It took a couple months of therapy to drop to 3500 which is alot more typical for Bartonella than 9800 which I felt like death. Good news you probably tackled some...
I went back and looked at my c4a. When I first started it was 9800. After a bit of treatment I was also in 3500 range. I was reading Dr B studies that note both are typical for bartonella ( I dont...
I am not quiet sure that the dosage amount of serrapeptase is the issue as much as breaking biofilm is more the issue. I was on 6 @ 40,000 serrapeptase daily for about 8 months. I have seen others at...
Really interesting, especially about the ammonia. That makes perfect sense when I think about my symptoms especially during bug die-off.[/quote] I can't take credit for this stuff. I am just passing...
Oh @Girlie it's tough all around for us no matter what the severity of our situation is!!!!! Just having to deal with how brutal these infections are at times is well enough. I talk to friends about...
Prescript assist is a really good non refrigerated probiotic I use. Soil based. Yah I am a "dirt eater." Lol...
I echo everything people have said here. I lost all my money property and job. I can't get temp disability and my insurance covers little. I have been lucky from a lot of help from my church and my...
Myers didn't do much for me. Glutathione works really well as a herx moderator and generally cools down internal inflammatory. I do IVs often. Higher doses than FDA say are really needed for...
I took my artemisinin with meals. 500mg at breakfast and 500mg at dinner. Are you herxing? It's some potent stuff....
Take that as good news no lyme! One less infection to deal with. I am the same. Bartonella has been more persistent with me. It is not out of the ordinary to have 12-18 months of treatment for it....
Galaxy labs is pretty dang good for Bartonella. It is really their specialty. They mention that it takes a minimum of 3-6 months to develop antibodies ( if you do at all ). They do cultures for...
I am not sure that being "on or off" treatment necessarily is the indication of WBC dropping. My WBC was stable at 8.0 for a while while I was sick. My WBC went way down on my first treatment for...
I have been learning recently from my LLMD that WBC being low also "can" be caused by your body finally identifying and fighting bartonella as it did in my case. Something weird happens in that your...
Yah that is a good description of it. I can't see how almost everyone who is fighting chronic long term inflammatory infections over a period of time won't get some version of adrenaline fatigue?...
I am on hydrocortisone but that was after I had my cortisol levels checked and I was at adrenaline crisis levels. I am also on thyroid meds. Both have made a big difference for me but like I said it...