Hi everyone! Thought I would drop by to say I am still doing well and still receiving IVIG. I am no worse and no better, but I will take it! Just saw my Llmd and he is trying a new mix of ABX so we...
Mtlassor...this has been a horrible ride, a year almost of being told you have the most horrible and dreaded disease. I almost gave up and succumbed but it just didn't make sense. I know I have lyme...
It's been awhile so wanted to check in, so many thing going on in my life right now. My mom was found recently to have breast cancer, I am just beside myself and trying not to stress myself out too...
Hi there I second the url that Girlie gave you. Keepin ammonia levels under control is crucial. It can bring on some pretty nasty stuff besides hampering your lyme treatment. I take neurotox myself,...
It is hard to motivate oneself when all you want to really do is crawl into bed or on the couch and just veg out. I plan for fun type things and than really focus on them to keep me going. As far as...
Traveler I read a few websites and it says not to take unless your doctor prescribes. It does come in different milligrams. Mine come from the pharmacy. Deplin is also listed as a associated medicine...
I take L-methylfolate. My llmd says this will be a lifelong drug for me. I don't know if you can so much cure it but just relieve the symptoms and potential problems because of the mutation...
That does sound like a bomb, holy cow I would be confined to the house for days 😱...
Bahaha...😉...
Lol. I am glad we can have fun with these 💩💩conversations. 💚💚...
Lol....will go to sprouts today. Enough of this 💩💩 conversation Thanks girls 😊...
Also..not sure if it's realated, I couldn't really gain weight before and now i am like 5 or so pounds heavier. It can't be all poop lol...
It's mg malate, no good? Everything was just the opposite before the med change 😜...
Hi there This happened to me as well. I can tell you I have been treating about five months and I am not getting any worse and feel my treatment is actually healing me. I had another emg and ncv this...
Okay...embarrassing but need your help Since changing my abx I cannot go number two I look like I am pregnant. What are others doing in this situation. I am trying magnesuim and so far...nothing....
That is odd? I had mine done a month or so ago and received complete results. I agree with Girlie, give them a call and see what's up. My whole blood came back negative but serum was positive. Their...
Glad to help 😊...
One is whole blood and one is serum...
Hi there I am plaquenil, zith, and biaxin for my abx. Just removed rifampin and replaced with biaxin. He also just added a-Bart which is coming from New York I am taking 1000mgs of all abx except...
I am going to call him today to get his thoughts CD, and I think your right on this being a cover your butt procedure. My husband said the same thing plus what you said about just doing when lesser...
Yeah, congrats!!!!...
I asked was it to test for lyme, they said no. I specifically said lyme doesn't show on csf fluid often but they assured me it wasn't for Lyme. I think other autoimmune diseases show in the csf...
Well...they said they could not rule it out but only found one area on forearm that they saw some activity that "could" be MND. I thought they would say no it wasn't it as it was sounding that way...
Hi everyone Today I go for my last emg/ncv ( I have determined that) to rule out and or confirm MND disease. I am terrified. I know I have tested positive for lyme via DNA and also have three...
Cat how are Toby's treatments going? Are you seeing improvements? I think of you often as I struggle myself. As for me, nothing has really changed but I am experiencing harder fasiculations in my...
Mine went to OON deductible. Depending on how high yours is you may receive some back. Worth every penny to have this testing done. Let us know your outcome....
I did the 499 panel as well. Go there first before testing for co infections. I was DNA positive and had three positive bands, two indeterminate and was ingenex positive and cdc indeterminate. It was...
That was years ago for the doctor in denton. I see that doctor now, he is great....
What do you treat it with?...
I had tests ran through lab corp and they were equivicol and no bands showed up at all. I than had my tests run three months after treating lyme through ingenex and had a positive through pcr DNA as...
Melimom Please treat. There are other protocols than abx. I am one of the unlucky ones that didn't have a clue about lyme and have had strange symptons throughout my life that finally came to a head...
I have very bad fatigue from rifampin as well as muscle and joint pain. I also wonder if it hasn't increased my fasiculations as they got really bad after I started it....
Thank you Traveler for all of this information!!!!!...
Thanks Trav, I was hoping you would reply 😊 Any info you can find would be great and appreciated....
Husband picked up my results today from my llmd. Igm 31++ 41++ 58++ 34 ind 38 ind Ingenix result ind Igg 41ind 58++ Igenex negative Plasmid b burgdorferi positive IFA positive Can't find a lot of...
Thank you pirouette 💚 Do you take iv abx? I am so scared of being sick where I can't work. We need my income but I also need to be well...
Hi everyone its been a bit since I posted, I have been busy and waiting patiently since my last llmd appt to get my ingenix results, they are back finally. I paid more for the advanced testing and it...
I do take nystatin but not the powder form. It hasn't caused a herx that I am aware of but I take a lot of abxs. It helps control fungal overgrowth and I have had no issues with it knock on wood 💚...
I haven't experinced a herx from nystatin but commenting to bump your post up so others can see and perhaps share their knowledge....
One day you will be able to enjoy the simple things again, this will happen keep telling yourself that. You have all of us to express your thoughts to, we won't ever judge and will lift you high....
Time is so precious. I understand how you feel completely. When I start feeling like that I thank God that I opened my eyes in the morning and hold on to the little things that may happen during the...
I hVe to add that since I added LDN my neck and shoulder issues which could be pretty bad have actually gotten much better. I usually don't promote meds but I suggest maybe talking to your llmd. It...
I have them for sure on top of neuro issues. It isn't pleasant being me most days....
I know they have the gold on Amazon, I will have to look into it. I will check into cutting the ceftin in half Thanks....
Girlie. Just started the ceftin last week and only taking in the evenings. It's 500 mg. I think it's too much with the others. I need to go get some pinella. Is there anything else you recommend ?...
And thank you for your kind words. Means a lot....
I think he is trying to see if I can handle iv abx having recently added the ceftin, I think that threw me over the top. I have been in bed since late yesterday and starting to feel a little better,...
This is the worst I have felt so far. Weak legs hard to walk, tingling in calfs, numb fingers, abdomen pain kina like a bladder infection, bad fasiculations all over, and feel feverish. I am taking...
Iheart. What part of tx is this doctor? I am making sure it's not where I am going...
Iheart. What area was this llmd in TX?...