Is anyone affected primarily on one side of their body? I have severe nerve pain head to toe on the left side of my body (head, face, arm, sciatica nerve). I am trying to figure out if it is the...
My doctor thinks it might be bartonella. I haven't been treated for Bartonella yet. Nick are you taking antibiotics or herbals to treat the bartonella? I am suppose to start a new antibiotic...
Anyone get scalp nerve pain (stabbing, burning, pin pricks)? If so what helps?? It is the absolute worse!!!...
I was wondering if anyone has found an allergy medication that works that doesn't make their peripheral neuropathy worse. Thanks in advance for your help....
I so far have tested negative for Bartonella but have high EBV levels. It is just so crazy because in the the 3.5 years of treating this disease I have never had burning pain throughout my entire...
I have been on antibiotics for the majority of 3.5 years. Most of symptoms have been neuro numbness tingling stabbing pains, twitching, some joint pain. Lately whenever I am on antibiotics I have...
Does anyone get a burning tongue? It has been numb at times but now it just burns horribly and I can't seem to get any relief. I know that it is nerve related. If anyone has had this if you could let...
Hello, I am starting Bicillin shots next week and wanted to see if anyone had experience with them. My biggest symptom is peripheral neuropathy. For those people that took them did their neuropathy...
My arm is still swollen. They think it is from the allergic reaction to the adhesives. They dry wrapped the site with sterile gauze hoping it would calm it down. The nurse who did it today her...
Has anyone ever gotten an ultrasound of their picc line arm to check for blood clots. I was wondering what the normal procedure for this is. My doctor sent me to the surgeon today because I was...
Would you take flagyl if you had really bad neuropathy? I am on IV Rocephin right now and my doctor wants to add in IV Flagyl. I took oral flagyl for about 2 weeks a year ago and it made my...
No temperature...
I am on my 5th day of IV Rocephin and have horrible chills. I have never had chills in the entire 3 years of treating. Anyone else experience chills on IV Rocephin. Thanks...
Hi everyone, I just started IV Rocephin. My main symptom is neuropathy (stabbing, numbness) of hands and feet but otherwise I am pretty functional. My doctor wants to add in IV Levaquin and I am...
Has anyone taken IV daptomycin for lyme. What were your experiences good or bad? Thanks so much!...
I am getting a picc line put in next week and will be given Rocephin and Azithromycin. My worse symptom is neuropathy (hands and feet). For those of you that have neuropathy and were on IV meds did...
Anyone experience neuropathy from Biaxin and Omnicef? I have been treating for a year and a half. Having neuropathy worse than when I was on Tindamax. Thanks...
Thank you so much for your reply. Do you pulse Flagyl or do you take consistently? My llmd wants me to take it consistently which I am having a hard time with. Thanks again....
My lyme symptoms are mostly neuro and I have been in treatement for about a year. I just started tindamax about 6 weeks ago and have been having an increase in numbness and tingling throughout my...