Wow it’s been eons since I’ve been here!! I never did get any answers, but my skin is still totally weird :/ I hope you’re feeling better by now!...
What makes this so confusing is that we all have different pathogens, different HLAs, and differing levels of time infected. So it's not a one size fits all. What we do know is like the study posted...
That is what immune tolerance and cross tolerance is all about. It really depends on what you have. I know for me if I catch a cold it can take me out for months. Lyme creates a situation in the...
Oh, the symptoms of this? Everything that you're feeling right now. All of the symptoms that we all have. It depends on what opportunistics you have, how far into it you are, what your HLAs are........
There was a study done on CFS patients and it had a 2/3 success rate in less than a year with Rituximab. So that's encouraging. I am always hesitant to talk about this for the reason I previously...
Rituximab seems to work. Its a monoclonal antibody that targets and wipes out the bad B cells. It's chemo, but not chemical since its an antibody. I would assume this would need to be taken in...
https://crymedisease.wordpress.com/2016/08/02/inhibition-of-apoptosis/ (I forget how to make links clickable, sorry!)...
HIV is a T cell problem. Lyme AIDS is a B cell problem. There are over 300 types of acquired immune deficiencies, it is not synonymous with HIV....
The immune response had is one of down regulation, the opposite of autoimmune. When an immune cell munches up antigens that are tlr 2/1 agonists (ospA is pam3cys) then that cell is effectively...
From Psilo- SO MUCH YES. THIS. "It isn't an "imitator". It is a cause. One of many microbial causes of modern day ailments. Microbes that by their nature survive through immune suppression, molecular...
Yeah, that's the only point I was making lol. That doctors don't seem to know how to find it when its SO OBVIOUS. If they'd look then they'd find it everywhere, but they don't so it sucks....
Yup. Like Willy said, you can't find it in the blood but the CSF is full of spirochetes. And the other dude who said "These look like EBV-transformed cells" in spinal fluid. Immune suppressive...
Here is probably everything you'd ever want to know about steere https://badlymeattitude.com/2017/05/14/steere/...
Mcsweegan is even more of a chode. He goes around on forums and pretends to be patients and puts a lot of bad information out there. He was involved in bioweapons and weaseled his way into a lot of...
Right. Another interesting one is Mcsweegans travel history.....
So it's pharmed ecoli...
Wormser is such a tool. Alan Barbour is the expert on antigenic variation, so maybe searching around for his papers would be more fruitful?...
The point I'm trying to make is that ILADS doesn't talk about immune suppression, and what we learned about OspA and the Lymerix vaccine is proof that a crime was committed and it offers hope for all...
"What you're talking about with OspA is soooo important but if half as much research was done on these other infections or different borrelial proteins we could keep finding things to be worried...
I feel like I should apologize. The only thing that I'm trying to convey is that I'm interested in this. Really the only thing it means it that the immune suppression is really bad in some of us, and...
Honestly JulyMorning, we don't even know if the chemo (Rituximab, B cell depleter) would be effective. There has been one study done on CFS patients with great results, but we'd need a lot more than...
"It’s Pam3Cys or a triacylated lipoprotein; the degree of acylation is equated with its toxicity. So what is acylation? It’s the zig-zaggy lines that mean Carbon-Carbon-Carbon, yes, hydrocarbons,...
Oh, and the data that was put out while they were making the vaccine is really interesting as far as antibodies go. I never realized that the antibodies themselves could be so harmful! I recommend...
It's all very interesting. I am trying to find ways to talk about this that don't result in arguments or serious alarm, because I agree with you that it doesn't deserve that. I don't care to talk...
I think that guy might be Durland Fish, or someone similar. He's known to go around slandering and libeling lyme victims. Real low :(...
"We recognize that there may be other contributing and at times independent causes for persistent symptoms in CLD patients. In essence, not all patients who remain symptomatic a er being treated for...
I'm saying that Lyme gives you post sepsis syndrome. So, basically yeah, immune suppression. It happens like this: Spirochetes shed or bleb their Osp's to evade the immune system. when an immune...
Aw thanks Traveler! Sorry lol I'm not very tech savvy ;) And sorry everyone else, I realize I'm not doing an exceptional job of explaining this. I hope what I copy and pasted will suffice. Not having...
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC182019/pdf/aac00017-0141.pdf "Imagine an immune cell floating around inside of you and it has these little things poking out of it. The poky things are...
People do get better, but the wonky B cells won't be fixed with killing drugs like abx was my point. Some of us really don't get better no matter what we do....
It's all about he HLA that predisposes what outcome you'll have. Pam3cys isn't good for anyone, and I say it is fungal like only because of what TLR manages it. What makes it permanent is the...
I should probably elaborate a little on the Primer shell thing. Since there are hundreds of different strains of borrelia, if you're only testing for plasmid DNA, which is variable, then you're not...
Sorry if my posts sounded weird, I actually had to edit one because I re-read it and it sounded really really rude LOL. Sometimes its hard to get a good feel in writing, if you heard me verbally...
I honestly don't think that the whole truth will ever come out. If history repeats itself we may only see a change in the case definition after the main offenders have died. It helps me mentally to...
As far as the military involvement in Lyme, there is a document floating around from the navy talking about working with borrelia. It's a reply from Goldwater to mcsweegan, mcstupid wrote a letter...
It is impossible to vaccinate against a pathogen capable of antigenic variation. You're right about how the vaccine got pushed through- all it does is tolerize people to arthritis. The whole point of...
Thanks Astroman!...
Here are some links: lymecryme.worpress.com - This one is the easiest to understand badlymeattitude.com - This one is the second easiest to understand truthcures.org - This one has the charge sheets,...
Oh, the immune tolerance/cross tolerance to other TLR's is what make the disease chronic. So it's not just about spirochetes. It starts with them, yes. But killing them won't undo the damage to the...
Okay, I can help explain. Posy- I am still very sick. To make a long story short, it's just more of the same. Constant fluctuations, no real breakthroughs. Psilociraptor- OspA is a fungal-like...
Not surprisingly, HIV and Lyme patients both have antibodies the a substance called "pam3cys". Its a triacylated lipoprotein and that's why we have immune suppression. HIV patients have a T cell...
Igm antibodies turn on this allergy weirdness. When they were formulating the failed vaccine they studied how the antibodies react with different parts of the immune system/body. Mast cells are...
Hey, Your story sounds like something I could've wrote myself. I got diagnosed with MCAD, my doctor is terrified to give me anything given the crazy reactions. Your doc says they don't want to "put...
eosinophil cationic protein...
Hmm... Maybe you should get an ECP level done then? I know its an indicator for babs which really messes with iron and RBC...
The surgery is for adhesions. my uterus, bladder and intestines are all stuck together again. I haven't got my PTH results yet for the parathyroid part, but I did go to the website you linked to. My...
Why wouldn't she? Thats stupid! I haven't noticed any difference in my fatigue at all since this started....
You should try and get the whole panel. Especially TIBC. I keep hearing how iron and ferritin levels don't carry much weight when it comes to HOW your body is able to use it. If your levels are off...
I go in tomorrow for those tests and to get the plan ready for surgery. How low is your ferritin?...
My doc says that this is verdict for my high Iron and low Ferritin. Anyone have experience with this? I'm still pretty concerned about my bone issues (I have growths all over my bones that haven't...