Thanks so much for your kind words, Girlie. I won't be able to travel to NYC to see my LLMD but will try for a phone consult. My current symptoms have lessened greatly. Over the past month my blood...
Hi friends, I've been gone a long time (2+ years) with no lyme symptoms, hooray :). But due to recent strange symptoms I have had a re-test and would greatly appreciate your help interpreting the...
I saw Dr. M. a couple of times plus two phone consult follow-ups that she initiated--LOVED that. I also loved her thoroughness in asking for all my records & any treatment updates from other doctors,...
Thank you, everyone! Like so many others on here, I'm claiming 98%-99% better as a sign that I'm healed. As long as I can maintain, then it's blue skies from here. Praying the same for all of you!...
It's been about 6 months since I last posted. You all helped me so much, so I wanted to come back & share some hope: I'M BETTER!!!!! I just had a healthy baby girl 3 months ago & lyme seems to be in...
Thanks, Onetime! I'm sharing this with another forum member on here who is in TX and with my friends back in TX who have become hyper-aware of Lyme because of what they've seen a few friends go...
The "cooling, menthol, windy, tingling" feeling Zach described behind his eye in another post is something I've been having in my back right shoulder blade for over a month. It actually feels...
Zachsmom, thank you for your original detailed post!!! What a nightmare you've accompanied your son through!!! The story is really staggering and heartbreaking. I did want to share that, thanks to...
Welcome, Chickee95. You're in a really good place for all of your questions and to get some support! I just want to give you some hope: 1) A Lyme-Literate MD will recognize your symptoms and your...
Yep, I just got the email. Responding now. Thanks!!...
Yes, I also have a pediatric LLMD in NYC. Please email me....
Hi Kayaklove, I'm in your age range & have been doing a lot of research on Lyme & pregnancy for the same reasons. There's limited information but it is still hopeful. (I haven't read anything about...
Hey IHL, I hope you're doing ok. Are you still having these near-fainting symptoms? I haven't been on the forum much this week, lots of dr's appointments. Saw a WONDERFUL young well-informed...
I had the under eye circles since childhood but my allergies didn't begin until I was 26 years old. Never even had a cold before then. My Mom definitely always said the circles indicated my body was...
Hi JLM, I believe your dr. Is going off of Burrascano's recommendations against aerobic exercise. I'm not an expert here, but I think the reason it can be dangerous is because when you heat up your...
I've had dark circles under my eyes since I was a kid. They show up in all my grade school pictures since the year after I got the tick bite so I definitely believe they're related. They're really...
Hi GH, I remember when you posted about this before. I'm not sure why it isn't sparking more interest. Maybe we don't understand the impact of a lithium deficiency? Personally, my weight was the same...
I've also got a handful of names for NYC, experience with a few of them, and a few names in NY/NJ states. Please email me....
Jessica, I really feel for you! That's a lot of kids & personalities to take care while you're down multiple levels. Please keep posting here so we can lift you up!! Just a few words/suggestions that...
Deepak Chopra and Oprah have another totally FREE 21-day meditation series going on right now online. This one's theme is Gratitude, which can be hard to cultivate in trying times. Each day's...
Awesome news, IHL! :-) Your last few posts have been so upbeat even when everything is not going perfectly. Kudos to you for your perseverance...and for celebrating every small win along the way!...
Welcome back, SailorKim! And what a relief to get the correct diagnosis! Now, on your way to healing. :-) Thanks, Trav, for the info on band 58 here and the other post. Super informative. I'm...
Typhoid is very very rare in NZ and a growing 'epidemic' in Fiji, with 24 reported cases this past New Year's in a population of just under a million. They believe it spread among the guests at a...
Yep, DarcyDano, I had this for a good month!!! Then a herx from h***. In that initial honeymoon so many scary crazy symptoms went away, like the incredibly nauseating vertigo, inability to walk...
Melimom, welcome to the group! Yes, for so many of us this forum has been an absolute godsend!!! Finally, we can all see that we are not crazy or hypochondriacs and that someone else out there has...
For me it's excessive yawning, especially when exercising. As well as frequent sighing. I've always explained the sighing as I forget to breathe: it actually feels like I subconsciously hold my...
JLM, this is great news for you! What a difference from a couple of days ago! Sounds like your doc is being very thorough to make sure you get all the bugs at every form of their life cycle. Yes,...
Thanks for sharing, Ziege! This is really encouraging! My pharmacist at CVS always asks how my meds are working for the Lyme & how I'm feeling, so this now makes even more pleasant sense. :-)...
Oh wow, praying for you, Alyrose! is there an actual diagnosis for what is happening with your heart? As in, what is actually causing your SVT/heart to beat so fast? Hoping the meds regulate...
So sorry to hear this, JLM! Very frustrating! Try to stay calm and know that we will help you here. First, it is FANTASTIC that you caught the rash so quickly! You have a great chance of avoiding the...
Gkamom, I am sorry you felt so much guilt at getting the news, but am really happy you finally got the diagnosis. I am so glad that you now know your instincts have been right all along. I remember...
Sorry to hear this, Raging Bull! That is so scary! Unfortunately, the stairs and hills are really hard for a lot of us, resulting in the heart and breathing issues. I am having the same problem if I...
Yes, Girlie, I feel the same way! When I was first sick I went home during winter: symptoms were a little lessened. It was rainy and cold on Maui, and I was still tired & sickly but not debilitated....
Hey Mysteriousme, I am sending you an email now with some NYC LLMDs. None of us can say you have lyme, of course, but I will tell you that I had or have all your symptoms. Tons of us on here have...
Hey, IHL, I'm going through this same thing myself for the last few weeks. It's been getting worse as the summer has gotten warmer. I don't have an answer for you but I will as soon as I figure it...
Hey Margaret, Yeah, I suspected you were probably just doing the charcoal since that's what you listed. But I thought that maybe since people often use bentonite clay and activated charcoal...
Hey there, no shame in this lame lyme game. ;-) I was curious, so also googled your symptoms. I found some similar questions from people who were doing liver cleanses or the Master Cleanse. Someone...
9 months ago I could barely hold a pen. I frequently dropped my purse or work bag when lifting them. My fingers were very weak while typing. These all went away after only a few weeks on doxycycline....
Great regarding the CDC positive! (It's a hard result to obtain!) I edited my original response slightly so as not to confuse other readers. Yes, LLMDs *almost* never take insurance. However, once...
As you can see from Girlie's helpful responses to you, we have some pretty amazing moderators on this forum! I just tried to help other new members with the same question as you. Another of our...
Hi Jordan, I just responded to a new member, Amiranda1189, with the same kind of question right below your post. My response in her thread may help you interpret your result. Here's the link:...
Hi Amiranda, Glad you found this site, there is a ton of helpful info here, as well as really wonderful helpful people. First, I'm sure we will all ask you "What do you mean, you had Lyme a few times...
Thank you for that information, Daffodil! I will likely get that test through Armin Labs in Germany in the future, after adequate treatment, when I want to know if this thing is still in my system....
Forgot to address your numbing shot question: I always need the max dose of numbing agent, and it still wears off very quickly. Not sure if this is Lyme or genetics at play. Anyway, I've had...
Sorry to hear this! Teeth problems rank right up there with car problems & moving--headache!! I'm not very knowledgeable here, although I've had tons of invasive dental work done myself (before...
St0rch, we completely understand your anxiety and desire to get a positive test. Please know that if you see an LLMD (or any doctor that is truly knowledgeable about Lyme) they c an diagnose you...
Welcome back, Ginger! I did notice when you stopped posting and wondered what happened. Glad to see you've reached out for support. Please keep posting! I really relate to everything you've shared....
Thanks, JessicaMommy! I read through and then clicked on another link. It is the simplest explanation I've ever seen to help people understand the basics of lyme. Both are helpful. Thanks again for...
So I have seen 3 docs recently who all say that my current infection is not "Active". These are all different types of docs as well: traditional LLMD, OB/GYN, & Holistic Doc. But how do they know...
I have the same question, Jess. I'm starting a new thread about it with questions about White Blood Cell Count. But basically your test shows on IgM (current or recent infection) that you have 1 band...