Anyone know if we will always herx when we take abx. I treated for 3+ years felt good for 2 years. Taken 2nd dose of bactrim and the herx is back. Does this mean lyme is active again? Or am I always...
Thanks Traveler and PeteZa, I think I have some Japanese Knotweed around and will try. Traveler may I ask what low does herbs you are taking? You can PM me if you want. Yes stress could be playing a...
I went through 3 years treatment, IV abs +...., been feeling good for the last 2.5 years back to work and functioning quite well. Over the last month symptoms have been coming back quickly. I want to...
You are right Girlie. I looked back on my protocol and I could take ceftin. I was cipro that messed with my QT. I wish this lyme brain would go away and I could read the difference between the two...
If I were you I'd follow your Dr's orders and stop taking ceftin. My cardiologist said I can't take caftan because it causes a elongated QT. There are a lot of other drugs you can take. I pulse my...
Thanks everyone for your replies. I was wearing those REI treated pants, hiking boots, sox plus drenched in deet. It still climbed up my leg and attached. I feel like I did all I could. We even got...
I'm camping in yellowstone and noticed a tick in my leg with a bullseye rash. I called my llmd in seattle and she called in a script of doxy to start. I have recently finnished 2.5 years or treatment...
After doing my 23andme my LLND had me take lithium orotate along with some other supplements. I didn't have any negative effects, but since I changed up so many meds i'm not sure what helped, but the...
Hi LimeyLyme, Yes, I was housebound and couldn't work or drive for 18 months. I have POTS, lyme, bart and babs. My POTS symptoms were so bad I couldn't stand for longer than 5 minutes. I spent the...
The 1st time I took coartem I herxed pretty bad. Now every round I take I feel better and better. I love this drug, it works great for me with no adverse effects!...
I'll send you a PM with my Doctors info...
Yes my Dr checks my sed rate and it is normal. My C4a (inflammation marker) is 77000. I just retested for it, hopefully it will be down some....
After being on a medical leave for 18 months I'm finally back to work! I honestly never thought this day would come:) It feels so good to be off the couch and doing something normal. Never give up...
I sent you a PM...
Thanks for all the kind words!...
I've been on a medical leave for Lyme, co's and POTS for the last 18 months. I have applied and been denied for SSDI twice. My job won't hold my position any longer so in 1 1/2 weeks I'll try going...
Yes Lyme can cause POTS. I was diagnosed with POTS 3 months into treatment for lyme. Yes it causes me to feel dizzy and awful and is by far the worst symptom to deal with. Both my LLND and my...
LOL thanks for the laughs!...
Happy day!...
Hi Healthy12345, I can give you my ND's name and # if you email me, your email is not enabled:)...
Yup it happened just like that for me. Did you get a picture of your "bulls-eye?" Regardless of your test results you may want to get on antibiotics (doxy) for a few months. Be sure you get on a high...
Sent you a message!...
Hey Gingeranne8, I've been treating for a year and a half. I also take breaks and each round I'm feeling better. My main symptoms now are numbness in my arms and legs and sharp shooting pains though...
I'm on the same protocol now except I take bactrim instead of cipro. I use a 1 week pill box with morning, noon and night. I take abx's and supp's in am and pm, and probiotics midday. I've been...
Did you get tested through Igenix? If not I would. Also go to a lyme literate Dr. so you can get treatment for your symptoms....
I read the article. Can you please tell me what these NCS treatments are like?...
Yes I had horrible pain for the whole month of Dec. (left side). I just kept treating and now it seldom hurts. I know how painful and scary it is. Have you had a cardiologist work-up? I know I felt...
Hi Flossie, I'm just about in the same spot as you. I've been in treatment for 18 months and my lingering symptoms are neuropathy in hands, feet and legs. I have POTS so I am dizzy when standing and...
MaireLS, Your BP and HR are too high. My cardiologist has me go to the ER with those numbers. He has me on a beta-blocker and if my bp and hr stay that high for longer than an hour I double the...
Yes keep him on as long as possible. The negative test means nothing. It's always better to be safe than sorry!...
I was told if band 23 is positive you have lyme since 23 is specific to lyme. My western blot was 23+ & 41+. I have a picture of an bulls eye rash on my back but thought it was a spider bite since I...
I've found alpha-lipic acid helps my neuropathy. It takes a few weeks but it's cheap and OTC. Good luck....
Thanks for posting this link it was very helpful. I'm being sent to SSDI doctor next week. Feeling a bit scared and could use some prayers or positive thoughts;)...
I went there but unfortunately it didn't help me:(...
Thanks Rowingmom will do....
Haha no, the 1st time I ordered it I got Japanese and used it up. This time I think my lyme brain ordered Chinese and I haven't opened it...
Ok so I ordered the wrong thing online and got Chinese knotweed instead of Japanese. Does anyone know if they work the same and can be interchanged? I hate to send it back if I don't have to. It...
diatplay- email me and I can let you know my experience....
Try to trust your Dr. If you feel nothing it may not be doing enough. I herxed for 6 to 8 weeks before I felt better on rocephin. I could not tolerate IV zith at all but another person in the IV room...
I just sent a picture of bruising on my pack to my LLND. She wrote back saying it was bart:(...
I did IV clindamycin with IV rocephin and it took a few months to start feeling the benefits and stop herxing. I also pulsed some orals but I think the IV's really helped me turn the corner. I just...
I bought a great 3 person sauna at costco and love it. Best money I've spent so far. Get it!...
No sugar and no bread. I got a good cookbook online called Recipes for Repair - A Lyme Disease Cookbook. By Gail Piazza and Laura Piazza. Are you taking nystatin?...
I wouldn't count to much on testing positive for lyme and co's with regular western blot. Igenex tests are more accurate but Ins may not cover. A LLMD/ND will diagnose/treat you based on symptoms....
I take plaquenil 2 to 3 days a week. I have lyme, bart and babs. I hope it's helping. When I 1st started taking it I would herx pretty bad so I assume it's killing something:)...
I getting ready to start coartem tomorrow. I'll be taking 4 pills 2x/day for 3 days. Has anyone taken it, and how did you feel?...
Thanks Carole_D that's perfect!...
Thanks for the reply Steve n Dallas. I've tried those door knob covers and she figured them out. I know I'm worried about fire and people needing to get in and out. Maybe an alarm? I called the Dr....
My mom has alzheimer's and still lives at home. My son, his wife and 2 small kids live downstairs and care for her. Today she got agitated and and left the house. Fortunately my daughter in law drove...
I did IV rocephin with IV clindamycin and it was a great combo. I used to get awful headaches while herxing from these but now seldom get them. Tell him to hang in there he should feel better soon....