i am getting acupuncture and chinsese herbs as well as minocycline 100mg a day? i also take 2 x reishi tablets for detox as welle 2x reishi tea in addition it take bubur 4x 10 dr and pinella 4x 10 dr...
Dear lymies. I have been diagnosed with late stage lyme disease by dr DML in Brussels , Belgium.I also have unusual symptoms that start every day at 9am to last until 10 pm when they usually (but not...
bump...
yes I am taking minocycline 100mg a day. I stoppede the chinese herbs last friday because i could not handle it anymore HERXING? I still get acupuncture jack dg...
Who has similar syptoms like me or has heard of a similar presentation ? Can anyone tell me what I have?It is a terrible feeling of malaise (general unwelness) that goeson, waxing and waning during...
I would like to ask you if you have feelings of malaise than can fluctuate rapidly I would suddenly feel unwell (terrible feeling) sometimes it can stay for the whole day but at other times I seem to...
no i have not had them checked, you think it might have something to do with adrenal fatigue? jackdg...
I would like to ask everyone on the forum if the following is something they have heard of or experienced themselves. Although I Tested positive on Borrelia LTT Elispot test, I wonder if I have...
This means your T cells have been in contact with borrelia and that in the recent past if you have<2 it i negative , if you have 2 or more it is positive In other words you have lyme disease with...
Hello , Today I am having an enormous problem in concentrating , I have a hard time typing this, and brainfog or what it feels like( like a feeling you are floating abit) .also i feel like a distinct...
have you thought of possible lyme disease.As it is called the great imitator maybe you shuold seeif your symptoms are not lyme related. You could do a western blot preferably at Igenix as it has the...
dear friends. My chief complaint is the daily malaise,brainfog and feeling of just being unwell most of the time. I am trying to determine whether this symptom of malaise is related to lyme disease...
I am feeling terribly unwell and have lyme and dysautonomia. But I am not sure if the lyme disrupted my autonomous nervous system or if it was my heartsurgery. My main symptom is of general malaise...
My symptoms are so annoying. I have a strange feeling in the head, I cannot put it into words, but I have an unpleasant feeling in the head, likethere is something not right in my brains. IT waxes...
hello marielS how did u finally get better . was that due to chronic tonic and what is chronic tonic and mariel S Can i send u a private email. Am I right you have been to DML our LLMD? I would like...
hello traveler I take burbur and pinella 4x 8 dr a day I also drink reishi tea and take a mycelium pill of reishi a day Still building up on the reishi and drinking greater plantain tea anything else...
hi mariel I was diagnosed with cfs in 2001 and with lyme in june 2014, I started iv rocephine on july 1 2014 followed by IVazythtromycine but could not tolerate it after second week, Then i did not...
Hello MarielS I am from belgium like you, I was wondering how you feel now , have you improved alot since youstarted abx thx jackdg...
hi scubasnowflake I am from belgium and i am treated by one of he worlds top lyme/ me specialist dr KDM at the himmunitas clinic Neder over heembeek near Brussels please google Himmunitas and you get...
hello revive when did your symptoms start to diminish ? was it soon after you startedtreatment or did you had to sufffera few months before it weened off?...
Hi Folks I am very unwell and my major symptom is due to autonomic dysfunction , however I have never read anyone having such distinct symptoms as I have Main problem is feeling terribly unwell...
i just wanted to know when did you see improvement in your symptoms. desperate to feel better jack dg...
Hello everyone I have started iv rocephine for 6 weeks last july followed by 2 weeks iv azythromycine which i had to stop because of intolerance. then i had a month of nothing and started the eva...
Hello people. I am very ill with bouts of severe malaise, sudden feeling of unwellness that comes and goes MY llmd tells me that my autonomic nervous system is not working normally. HE thinks the...
Is there anything known about lyme disease and the interference of the borrelia with neurotransmitters. So that the normal working of the nerves is hampered. I have a normal MRI so nothing unusual to...
girlie my MRI showed non specific infarcts that are of no clinical significance very small and normal for an age of 54 Nothing really abnormal My regulare md says that the lesion is not visible on...
I forgot to mention that my LLMD wants me take 100 mg minocyclin a day .I wonder if people here have taken it for lyme disease and what was. IS it well tolerated and helpfull thx for yr advise jack dg...
HElp I feel terrible I cannot live likethis anymore. This morning I have been to a professor of internal medicine at one of the mayor teaching hospitals in Belgium where I live. He does not believe...
I have also a problem that my symptomes can fluctuate hourly or even minute by minute. I am feeling well then suddenly i feel unwell like a general malaise or nervousness, edgyness. This can vary...
I would like to have an answer to my questions do I really have lyme OR is it something else I cannot figure out .I am 54 yrs old and I have been diagnosed with CFS in 2001.At that time my mainn...
Hello Mr Mike and lighterbeing Howmuch reishicapsules and what doasage do you or did you take. I have ordered reishi tea and capsules as well. I wonder what the dosage of reishi u took daily?and how...
Thank you Mr Mike and Bellyful for your extensive and openhearted answer.It gives me the courage ,how difficult it might , tocontinue my fight .I would just be happy if I could get rid of half of my...
I am at my whits end and totally discouraged after a friend who is an MD told me that I probably will not get better.My main symptoms are a feeling of general malaise that will not subside, that...
MY llmd did some blood including cd57 and VEGF and other IL s interleukines Only the pge2 il 8 was raised pge2 13,5(nl max 5,5) IL 8 increased 1000x over normal value and MCP1 incresed and cd57 low...
I am very sick with lots of malaise , brain fog, nervousness and lyma positive. Iwonder if any of you have used Reishi to boost the immune defenses and if it helped diminished the symptoms of malais,...
I have been diagnosed withlyme positive ELISPOT and low CD57 Iwas diagnosed with CFS in 2001 PResently my main symptom Is one of a gnawing feeling of malaise that goes up and down like a...
Hello I have a major problem , been diagnosed with cfs in 2001 and lyme disease in 2014. I need advise I have crippling symptoms that start at 9 am sharp and during the day the symptoms fluctuate and...
My dr who is a world authority on CFS/ME has tested all his CFS patients for LYme .HE has begun doing this systematically since 2012 with the BOrrelia ltt elispot from Germany.Over 95%of his patients...
Thank you americanlymie for your elaborate posting and for the moral support, it is very inspiring. So what I gather is that you had a very rough time yourself. I have been on the Sapi protocol for 7...
I am 54 yrs old and have been diagnosed with CFS in 2001, but it started in 1998 after summer flu that lingered on, followed by fatigue.my main symptom since then.IN 2008 I got excruciating pain in...