Hi Nosila, I definitely will. I've decided that I need to follow that advice to "make your mess your message," so I'll keep beating the drum on this. It's such an insane way to live that I have to...
Hi everyone, I hope the stigma of this association doesn't upset anyone, but as a gay man who feared AIDS all his life and ended up in a diagnostic purgatory for many years that most of you will be...
Hi all...checking back in. I began my treatment for Lyme and bartonella back in March and I have a few updates... First (and mostly) the good news: Overall, I feel MUCH better--or at least I have for...
Hi Bellyfull, It is definitely a good idea to get the actual images from the radiology center. I assume the primary reasons for getting an MRI are to look for/rule out CNS lesions and tumors. If you...
Very interesting...it seems like a lot of the symptoms in the list are redundant (listed more than once, just phrased slightly differently), but it's still a pretty thorough list that includes most...
Hi all, I haven't looked at this message board in a couple of weeks because I've been busy (!!), but since so many people here have been so supportive and helpful, I figured I'd check in with some...
Hot skin is one of my strangest (among many strange) symptoms...my doctor suggested it may be due to babesia, but it manifests for me differently than you describe. Nearly every day between 3:30 -...
So this is a totally unscientific, emotional, self-piteous update. I took the day off work to try to find a new apartment because of the mold issue. I sent out inquiries about several. I set up an...
Roxie, the model I bought is T340B. I didn't do a lot of research...it was kind of an impulse buy with the excuse of getting myself a birthday present. ;) But I like it. When I'm confronted with...
This morning I looked at a drop of water under my microscope, as well as a small sample of the black fuzz on my air vent. Time to move!!!...
Also like these, although my scope can't see nearly this clearly. http://youtu.be/ar6Gy-3PKDY...
Not nearly that rapid, but I guess the motion is somewhat similar. Actually it looks exactly like this in dark field: http://youtu.be/gLGfhRuDSio...
I know I have black mold in my apartment ventilation. I paint and one of my canvases that was near a vent was carpeted in black mold. It died when I sprayed it with mold killer. It's an old building...
Oh my god, Georgia, thank you! I have got to get out of my apartment building ASAP....
I wish that I could zoom in a little more closely, but it's certainly more than adequate to view blood cells in pretty high definition. I look forward to getting the camera so that presumably I will...
Probably not for two months....
Hmm actually the ones from the urine look very much like mycelial candida, too, except that all the candida pictures I see feature "branching" and little cells collecting around the margins and mine...
Roxie, I literally opened the microscope box yesterday, so I haven't had any time to do anything but figure out how to use it and to experiment with basic blood slides. The microscope is from a...
A good photo reference btw http://alzheimerborreliosis.net/wp-content/uploads/2012/10/Biofilm_New_Haven_final_lecture.pdf...
Well this is certainly no replacement for my doctor, but I will share the photos with her. I've managed to take reasonable-quality pictures by holding my phone camera to one of the eyepieces. I'll...
I looked up Protozoa and yeast. The things I am seeing don't look unlike Trypanosoma Brucei, "African sleeping sickness," but I've never been to or near Africa. Whatever they are, I suppose they must...
Jo, what I see in my microscope isn't a dark, clearly spiral "snake" like the one pictured on that site. The wiggly "worms" look exactly like the ones in this video that the guy calls spirochetes and...
Why would a microscope be illegal? That's so bizarre. The only difference between a regular microscope and a dark-field microscope is that the light on the dark field has an opaque apparatus over the...
So my birthday was this week and I bought myself a microscope as a present. I had a theory :idea: : since I've seen photos in research articles of spirochetes hanging out with blood cells, maybe I...
PS I once had a boil on my bottom that was excruciatingly painful, and I didn't even know what a boil was, so that made it scarier. It grew to the size of a golf ball. Long story short, I went to my...
This is interesting...I've had a hard little cyst in one of my earlobes for about as long as I can remember. I asked a doctor about it years ago and she said they are common, especially in earlobes,...
In my case, my conclusion is beggars can't be choosers, and do what works. If antibiotics work, I'll use them. If they don't, I'll use anything else that does. If there is any known treatment for any...
Jack, I'm so very sorry to read that you've had such a rough path. I've had a lot of the symptoms you describe, including a radiating arm pain (sometimes extending from the jaw to the fingers), and...
Hey VB, I've had peripheral neuropathy off and on for over seven years now. At this point, based on all the reading I've done and some of my most pronounced symptoms, my hunch is that bartonella is...
I'm in DC, actually, and my doctor is in Virginia. I'm a little torn about the person I was referring to earlier. I was on another website's message board and she sort of took over the conversations...
Hi Simela, First, I'm curious who this other person is...she sounds familiar to me. There was someone on another site's message board who was very helpful and encouraging to me, but then at the same...
Hi all, This is two separate and unrelated issues. I hope it's OK to post something as random as this. First--bartonella. My doctor has assured me I have it based on my skin rashes and "rashes" and...
Congratulations, Traveler. Thanks for the news, and for bringing us hope....
I'm not well versed in Eastern approaches and philosophies like yin and yang (although I respect them as think they must be valid forms of ancient wisdom, just as herbal and holistic treatments...
Hi Traveler, Interesting...can you give us more detail about your physical reactions to moon phases? I track my symptoms on a calendar that includes moon phases in part because I read that the full...
I emailed his office months ago when I was looking for an LLMD, and I never got a response. (I tend to email vs. calling because I've lost a lot of hearing, either to Meniere's disease or to an...
Hi Aly, For whatever it's worth, the four antibiotics you were given are very similar to the ones I was initially prescribed about two months ago: minocycline, biaxin, bactrim, and flagyl (every...
I've been sick for longer than five years but only recently (January/February 2015) realized what has been causing it. I guess these things are invisible when you're not looking for them. I'm not...
Rnbelle--in my experience, yes. My bartonella tests came back negative--but I'm absolutely covered in the characteristic rashes, and have other telltale symptoms. Cognitive problems, including "brain...
I wish I had known about the event earlier. I am right across the bridge from there and (if I had the energy) would have taken a couple of days off work to participate. It's great that people are...
Happyjo, what is the Arlington, VA event? I don't know anything about it....
Hi, Twin, You'll be in my thoughts...I do hope things improve for you! If you don't mind, I've got one very specific question...my doctor also diagnosed me with bartonella based largely on my streaky...
I've read, and it makes sense to me, that in some cases, Lyme "relapses" can occur because the bacteria are never fully eradicated from the body. Supposedly (although contrary to CDC and its allies)...
Hi all, Someone asked me to post about my next appointment/status update, so here goes...I'll keep it as brief as I can. My first appointment was in February. Had a zillion blood tests, etc., and was...
I just took a very long bath in Epsom salts because I have been too tired to shower/bathe for days. I actually took today and tomorrow off work so that I could prep for my doctor's appointment...
Congratulations!!!...
Sorry about your fatigue, IHL. I used to think it was depression (even when I didn't feel melancholy) that caused me to stay in bed all weekend, but now I know it's Lyme. Just knowing that has made...
Hi Girlie, Thanks for the reply. My doctor told me to take burbur to flush toxins out of my system, and I also drink a "detox" tea once or twice a day. I'm taking zillions of supplements and some,...
Yes, that would be nice to know what the treatment regimen might be...I have no idea how long I'm in this for (OK, I do know...life). She mentioned last time that she'd expect to see a lot of...
I revisited my ENT specialist yesterday. He diagnosed me in January with Meniere's disease following a hearing test that showed a specific pattern of hearing loss in my left ear and two disabling...