Hi, When I lie down to rest, I feel the muscles in my neck start to very lightly quiver and tremble and tremor, and sometimes it is strong enough to very slightly make my head tremor (move). Has...
Thank you so much for your answers!!! What a rotten disease this is. How do you know if your twitching and tremor is from Lyme/Bartonella--or it's something congenital which you are born "unlucky"...
Hi Everyone, Can anyone please comment? After six years of orals (two years off in between), I have developed a tremor in my head or neck area (depends on the night), which begins as I start to fall...
Sorry to hear this--but it sounds like you are on the right track and in my opinion you should definitely check in or even get an extra phone consult with you LLMD. Also wanted to say I can relate to...
Hello, I haven't posted for over two years and I really need some supportive advice. I was bitten 5 years ago; my test results were positive for Babesia duncani, and the following were approximately...
Hello All, Thanks much for your replies, and I take no offense at all. I completely agree, herbals have an effect on the body: humankind has used herbals for millennia as medicine. And of course some...
Hi Everyone, To make a long story short, I was diagnosed about 2 1/2 years ago, neuro Lyme, babesia, possible Bart. Found a great doc in Pawling, got way way better. Now I am dealing primarily with...
Hi everyone, Does anyone have neurological symptoms predominantly on one side of the body? My left side gets most of the tinging, twitching, burning, while my right side seems--believe it or not--a...
Hello Girlie, Yes this is the first cyst buster--I am scared I had a stroke or a brain tumor or something, but I guess that is just anxiety kicking in. This morning I noticed that the mild facial...
Thanks achievinggrace! You certainly hit it on the head: "distressing." Nothing like waking up and having a burning feeling in your leg and having one half of your body feel slightly numb. Oh my Lord...
Hi All, Hoping for some feedback. I am about 2 years into treatment; neuro symptoms are still hanging on. Worst issues these days are twitching in legs (mostly left), under left eye twitching,...
Hello, I realize this is an old post, and I am sorry to reopen it, but perhaps someone will find it helpful. The person above posted their story with possible MS. I want to tell you something, if you...
And anyone with sometimes just one sore leg and not the other?...
Just found this post and want to re-open. Most lyme issues are in my legs--occasional weakness, often twitching, buzzing, etc--but sometimes one leg is just very sore like the muscles had a huge...
YES! EXACTLY!! FLUTTERING!!! Comes and goes. Bizzare. Like a bird flapping its wings rapidly in your eardrum. When I started ABX it turned into a constant drumbeat, like a washing machine spinning...
This is great advice, thanks! I spoke to my LLMD Dr L today: amazingly, he said that things like "inner vibration" feelings can only truly be described by Lyme patients--that if you say this to a...
Thank you Will 228. It is awful! This disease is so bizarre. Will can you describe what it is like for you? Do your legs twitch and feel like they are vibrating? Do you twitch kind of non-stop in...
Please help! I feel like I am going crazy. Sorry to bring up an older thread--but it fits perfectly! I recently ramped up Azith to 250/day. About three weeks ago, I suddenly got a big round of...
Wow-- Burrascano points a finger at Bart for heavy CNS involvment, however, I believe Borrelia likes to burrow its way into your nerves and brain tissue. I probably have both in those areas--plus...
Hi All, Thanks for your answers--I have read this thread several times, and it is so good to know that I am not alone in all this! Healing98 I hope your MRI turned out okay! For anyone interested who...
Thank you Traveler! I just ordered epsom salt, so I will try that. I read somewhere, in an older thread, that as the bacteria die, the inflammation in the joints actually goes down, leaving nitrogen...
Hi Everyone, Let me start by saying that this forum had been a light in the dark for me--thanks to all of you who have replied. Well, here we go: Since starting Azith, I have more muscle twitching...
Hi Everyone, I am getting kind of desperate. I am sure you have all been there. I am feeling rather scared--hoping this is a Lyme herx--not some horrible unmentionable nerve disease which suddenly...
I second all this. And by the way those jabs that you were talking about is exactly what I've been having for many months. They are short momentary stabs which feel like someone is sticking a knife...
yes! Lyme on the toe. Puffy skin, blistering, redness, purple, pain. Eventually my doc thinks it is yeast, but i am sure it was part of the whole lyme which made it more susceptible to yeast. It is...
Hi Roxie60 Don't be concerned because I had NO HERXING whatsoever on Amox. I even doubted if it was working. Only thing I noticed was that I had some more energy; I felt like I could bike to work...
This is such a crazy disease. Twitching and tremor were the first things to hit me (other than fatigue). Then I started waking up with numb fingers and hands. Dizziness. The neurologist found a small...
Hi Opugirl and Will and All, Thank you so much for your replies! It REALLY helps sometimes just to reach out and hear from others's experiences. It is such a bizzare disease. I can see my toes move...
Hi All, I was diagnosed with Lyme and Babesia duncani by Dr. L in upstate New York. I am now on 3grams of Amox per day and slowly ramping up my Azith. But all along through this, my calves and my...
And lastly I wanted to mention, if anyone needs help finding an LLMD in upstate NY please let me know. Best to you all...
Hi Todd and Georgia, The information you provided has really helped me. Thank you so much for taking the time. I truly appreciate it. And Todd it sounds like you really also got hit hard with Lyme,...
Hello, You can google this, my lyme doc is very very good and he is in Pawling. More than 30 years in the business. Best, Devin...
I started on it and ramped up to 200mg just recently. I have had no side effects at all, maybe just a little diziness here and there. No sun problems. Now I am just waiting to see if it starts to...
Hi Everyone, I know these posts are older: I found them because I too have swelling/pain in the toe with Lyme Disease complex, and it may be because I have a European strain of borrelia. How are all...
Hello, If you are new to Lyme, this is also for you. This is my first post. If you are not new to Lyme, I would be incredibly grateful if you could read on and answer a few questions--you won't...