Thanks everyone, I'm looking in Arlington and Alexandria.. A lot more reasonable...
Thanks, I appreciate it. & yes, my boyfriend will be taking this journey with me (& by that I mean driving me, lol). I've been checking groupon too, maybe I'll find a deal there but DC is expensive...
Ok y'all, it's official. I'm going to see dr. J in dc in early October. Since my anxiety is at an all time high, I'll be driving there from Chicago (10-11ish hours), yikes! I finally feel like I'll...
Thanks fronton! I got it this morning, I appreciate it...
Fronton if you don't mind emailing me Your experience or views on dr j and his clinic I'd really appreciate it...
In the process of making an appointment with his clinic.. Any thoughts or comments on his practice, protocols or anything?! Travel tips, places to stay, eat?! Thanks!...
Intermittent.. ID just came in and told me the exact opposite of what my LLMD says.. Soooo.. He refuses to take my Igenex test seriously and wants to do a spinal tap.....
Thank you everyone. Still waiting for my cardiac tests. I'll probably be here again tonight.. My vitals on Thursday when I first came in the ER were: 190/110 Bp and a hr of 175 My vitals yesterday...
My LLMD said I need to deal with my svt issues before I could go any further with treatment. Looking like my hr might need to be controlled with meds for the time being.....
I've been hospitalized for going on 24 hours now.. I was taken in by ambulance for the 2nd time in 4 days.. My heart is really going haywire and I honestly think Lyme is going to kill me.. I'm sorry...
I don't mean to scare you but I was just hospitalized last Thursday due to heart issues. I had to call 911 and be taken in on an ambulance. I'm seeing my cardiologist tomorrow and an a cardiologist...
Any one have experience with this or information on it? Docs are thinking lyme induced pots.. I'm supposed to see a cardiac electrophysicist and see if my heart is going haywire. Meanwhile I'm over...
Trav you got it! As soon as my lazy butt gets up I will shoot you and email lol. Meds are still kicking my butt from last night...
Jrpsf I have another LLND - just have to wait til the 23rd to see her. I liked her a lot! & I have a meeting with a Lyme friend pcp in Chicago which is great cuz she's like 30 min away and she just...
Also my LLMD refused to acknowledge any co infections for me. Flat out told me no. Only Lyme. Ummmmmmmm, next!!!! Spoke with my cardiologist. He's sending me to an electrophysiologist for better...
Gi issues continued...
Er doc didn't have a reason except for Lyme complications. I called my LLND and there's nothing she can do for me since my other LLMD prescribed my meds and I'm technically under his care, I Have to...
Thanks everyone. Sorry for always being so negative on this forum. But nothing is going right or even in the right direction.. Previous to the episode I was on: - cefdinir 300mg bid - nystatin...
Well...... Tonight I was rushed to the ER. My mom and boyfriend called an ambulance for me because my blood pressure got up to 200/110 and my hr was 165. I was shaking uncontrollably and also had...
No, I was scared to. But, obviously I need to....
My one doc prescribed me Valium, but I filled a prescription for diazepam (generic version I guess)...
Based off of those symptoms I definitely had another panic attack...
Are you treating babesia? If so, with what? & is it helping?...
Trav - I emailed you...
I'm 25 and I'm feeling like I have no purpose in life right now. I'm Sorry to be a Debbie downer but I'm done. I'm done with this guessing bullshit. None of my docs are taking me seriously...
I feel a rush of adrenaline. Like I need to keep physically moving around. I also get really flushed, my left face gets swelled and numb. It's bad. I'm at a loss right now. Idk wtf to do....
Do people heal on their own?...
I had to move back with my mom because I'm so sick. She called me today crying because she witnessed the panic attack I had last night and was so scared by how bad I'm getting...
So after speaking with different members on this forum as well as different lymies.. I've come to the conclusion that my protocol is NO WHERE NEAR where it should be with the amount of symptoms and...
I'm on banderol right now, up to 8 drops at the moment. I think my LLND will be adding samento at our appointment this month and I am also going to ask about the co infections because I think those...
My initial costs were as follows: Dr. S in Highland, IN - $350 Dr. H in Waupaca, WI - $300 Dr. M in Waukesha, WI - $425 Hope that helps. PS, I'm also in IL, Northwest Suburbs to be exact. -Aly...
Last week, I was having the issues with my stomach and suspecting c. diff issues.. well I got in contact with LLMD (last week) who told me to stop the cefdinir and prescribed me "clindamycin" to...
I think my boyfriend has Lyme disease.. I'm currently sitting in the ER with my him as we speak.. I have been saying for soooo long that I think he's had Lyme too. It just makes sense looking back on...
Barngirl- I just got it, thank you!! Update: I talked to my LLMD, he didn't seem to bothered about my stomach symptoms or other troubling symptoms popping up.. He said its time to change meds anyway...
Thanks barngirl! I appreciate it. You've helped tremendously. I see in your post that you saw one of the best doctors, if you don't mind me asking which doctor did you see? I'm just curious...
Vsl 3 is not convered by my insurance and is too expensive.. Does anyone have some recommendations for other probiotics I can take with florastor? Thank you.. I appreciate everyone's help.. I'm a...
Traveler- I don't know the box just says 250mg.. I'm confused. I just talked to my doc and he didn't sound too concerned. He told me to stop the cefdinir and he's giving me clarithromycin instead. He...
I'm taking florastor right now.. Is that enough? Sometimes I add culturelle but I have no idea what is enough or good to take.. I put a call into my LLMD and I'm waiting to hear back from him.. Could...
Two ER doctors. They said "a pretty young girl like you doesn't need to be in the ER so many times. You're fine and nothing is wrong. Maybe you should be seeing a therapist to figure out another way...
Here I am! Funny that the one day I look at the forum at work, I see this post.. However, yes heart related symptoms were my first or second real indication that something was wrong. I've been in the...
Plus the last few days I've been bloated.....
Barngirl - I think I forgot to take my probiotics the other day, but I'm not sure. My brain fog is so bad lately. I'm on cefdinir 300mg twice a day, nystatin 500,000 units twice a day, banderol (up...
Has anyone experienced this? What are the signs/symptoms? I've had an upset stomach for going on two days now.. Very uncomfortable & my BMs have changed.. Getting scared here.. Thanks.. -Aly...
Sarah- I'm not giving up on my doctors, I'm just making sure I have a plan c,d&e (because I've already gone through plan a and b) in line. I know it's only been a few months but I'm literally getting...
As many of you know, I'm in a suburb of Chicago, Illinois. I currently travel 4 hours each way to my LLMD and 2 hours each way to my LLND.. However, I just feel like I'm regressing as each day passes...
Weird because I had 4 "+" positives and 2 IND and I was diagnosed with late stage/chronic lyme.. so maybe the doctors have different views on the results.....
I've seen this little movie. I literally balled my eyes out. It is SO sad!...
Thanks Sarah!...
Just curious, does anyone have Facebook on here? & are you friends with anyone on here or any other support groups? I know it personally helps me to talk with people who are going through the same...
I'm in the Northwest suburbs and I travel to Waupaca, WI to see my LLMD and travel to Waukesha, WI to see my LLND....