I took the pure Cholestyramine powder. I did not do well on it. Since it is very strong, I would take it as far away from your herbals as possible, at least 3-4 hours away. I tend to have some rare...
Thanks GH. I hope you're feeling better!...
Hmommy, here is a helpful thread: http://www.healingwell.com/community/default.aspx?f=30&m=3667551 It has a link to the New to Lyme post. I bought the pure Nystatin powder at a compounding pharmacy....
Lots of good advice here H Mommy. Have you looked into the pure Nystatin powder that Pirouette has discussed here? It has been really useful in my treatment. Lyme and Candida can have overlapping...
Merry Christmas everyone! Christmas is my absolute favorite holiday. 🎄⛄️❄️🌠👼💕 I hope you're feeling better GH. It is so interesting. Each of us have our own genetic and pathogenic factors, which...
Thanks ToddPaul. I wish we could go through a doctor without it planting doubt if there is a negative test result....
Thanks robby. I may give them a call. Thanks for the link bluelyme. I will check it out....
Good to know ToddPaul. Thanks Bluelyme. :) I think I would look at my blood and wonder what it was. I am very tempted to get a scope though. Does anyone know if we can get testing at Fry Labs...
I agree whole heartedly. I'm at the point where I need to treat Babesia, but I hate to do it not having confirmation. I think dark field is the closest option. I don't think too many places do it. If...
Ditto to this. I wonder if Sierra would do dark field a la carte robby....
Thanks Krimpet. I appreciate it. I might order it online as well. It makes me a little nervous. I might give it a shot. I do like their products. I like the Tox-Ease GL. Oops. I misread your post. I...
A friend of mine went. She said it helped a lot, but did not "cure" her. When talking about it, she mentioned getting lab work, which is covered by your insurance, before going since patients don't...
Thank you for posting this Krimpet. I'm happy that the ENL-MC is helping you. I recently found out that I have Mycoplasma. I have some of the Beyond Balance products. Some say that Doxy is not enough...
These are Better Health Guy's notes from an interview with Dr. F. From what I have read, it seems that Morgellons patients have a severely compromised immune system. Anything that boosts the immune...
Gabapentin has helped me the most with my pain. It works better than Tramadol for me. I also take anti-inflammatories. Magnesium helps a lot too....
It was very likely the caffeine, which helps the liver with detox. http://www.elephantjournal.com/2014/12/can-we-still-drink-coffee-while-detoxing/ ...
Lyme and other biotoxins can cause someone to fail a VCS. For some reason, it seems to be used more often for mold than Lyme. I have no idea why. As for air samples, Page 55 under Point 3 provides:...
I would start with a nasal fungal culture through Microbiology DX or a similar lab to see if you have mold in your sinuses (you could still have a mold allergy even if this is negative). I would also...
I'm sorry you're feeling awful Jennydancingfish. It sounds like a herx, including physical and emotional aspects. Don't increase anything that kills the infections until your herx goes away. I'm not...
It looks like it could be Bartonella....
Good info Georgia Hunter. Thanks....
Yes. It can. It took a few months for my doxy headaches to calm down....
God will help you if you keep trying. It is hard to navigate you if you stand still. Just keep trying. I know it is hard. It takes time, patience and effort. Bartonella can cause anxiety. It is...
LOL Huddie. That gave me a chuckle. :) I have heard and read that Babesia causes vivid nightmares. They do go away with treatment....
I did get headaches when starting Doxy. They calmed down after a while. I believe mine was a herx. Since Doxy can cause serious issues for a very small number of people, you should ask your doctor...
I also wanted to mention that there is another medication called Welchol in pill form. It is less effective than CSM. However, I absolutely it because it was so easy, peazy. I could easily take it...
I'm so sorry Lymie Mom! That is awful. No offense to any doctors out there, but they can be clueless when it comes to costs. The procedure sounds pretty intense. Have you considered getting a second...
Cholestyramine works by binding to the toxins. If there is food or medicine in your stomach, it will bind to that, which makes it less effective. It also pulls toxins from cells. It was designed to...
Yay! I'm so relieved. Thanks for letting us know. :)...
Thanks Girlie. Yes. I'm well aware of that. I was just trying to give Huddie some examples of things that could be causing her symptoms. I'm interested in Ozone Krimpet. It kills so many things. I...
Detoxing too fast or faster than my body is used to causes me pain. Too much activity can cause me pain too. I am taking Adrenal Optimizer by Jarrow, which has Ashwaganda and Eleuthero. It causes me...
Happy that helped Huddie. Stress is our enemy when dealing with Lyme. Try to minimize it as much as possible and not worry. I agree that traveling overseas sounds awesome. I can't wait to travel....
No problem Fronton. It is so hard to know. We can only do our best to treat the infections and build up our immune systems. Hopefully, wealthy people will pour money into research so we can get...
I'm sorry to hear about your relapse Fronton. Thank you for updating us. Did you treat any potential parasites? I thought this interview of Dr. H and Darryl Hall (whom Dr. H treated) was very...
Beyond Balance makes a number of good antiparasitic / anti protozoan herbs: Parazomin MC-PZ MC-Bab 1 through MC-Bab 3 Artemisinin, as mentioned above Many garlic supplements (raw garlic is better...
Welcome kklotz121, If you have mold, it is best to treat it first. Mold can really put a damper on Lyme treatment. I'm sorry you're stressed and overwhelmed. Take one step at a time and just breathe....
I'm so sorry you're having kidney issues Lymie Mom! Please let us know how you're doing. Try not to worry. Stress does not resolve anything. Keeping you in my thoughts and prayers. Hugs!...
Petechiae can be caused by Babesia, Bartonella or Rocky Mountain Spotted Fever (that is not a complete list). Babesia and Bartonella both infect red blood cells. They are caused when the blood cells...
Hi Flossie! Thanks for letting us know how you're doing. It is always a pleasure interacting with you on the forum. I hope you find the right combo of meds to fully heal. I get that jumpy type...
I am taking Rifampin. I think it is one of the best antibiotics for Bart. Unfortunately, I think it takes a lot of time to clear Bart. I wish I knew how long. But, it is working for me. It is best to...
I use Gabapentin for intense nerve pain. It has been the best of the pain meds I have tried. That being said, there are days where my pain gets really bad in spite of pain meds. For the most part, I...
My Lyme doctor sent in my nasal fungal swab. She is treating me. If you don't have a Lyme doctor, an open minded Primary Care doctor or ENT could probably order a test. I did my test through...
It might be a Bart herx. You could try lowering the dose and upping your detox. If that does not work, you might stop the Sida. I found it very helpful in combination with other herbs. Buhner says...
It sounds like it could be a sinus infection, possibly fungal. Have you had a nasal fungal swab done to check for mold / fungal issues in your sinuses? It could be Babesia, but mold causes so many...
Bartonella can cause issues with Lymph nodes. Maybe the Red Root caused your Lymph system to drain too many toxins at once. I had to go slowly with it in terms of increasing my drops. You could try...
It is more effective without food. I could not tolerate it on an empty stomach. It felt like I was taking Ibuprofen without enough food in my stomach. However, many people do tolerate it without...
It is not hopeless. I know it can feel that way. Don't give in. I have been there too. Do you have a good doctor you trust? I strongly feel that a good doctor who can figure out the pieces of your...
Everyone is different. There is no universal rule. It depends in great part how well you tolerate and respond to a med. Ceftin is a great med, but that does not mean it is right for everyone. Ceftin...
I agree with Girlie. Lyme is not superfluous. I do agree that antibiotics can be over prescribed. However, this is different. It's not like your son has a bad cold. Better to get the Lyme bacteria...
I like Vitacost and Pure Formulas best. Pure Formulas carries more Pure Encapsulations than Vitacost. I also like iHerb. I'm not sure where to buy Researched Nutritionals or Xymogen. I think you...