good advice, Girlie! Again, thanks everyone for all the great input. Healing Well community is an invaluable resource. TMW...
as always, thanks Girlie! here's an idea: I buy bottles of astragalus and give it to all the family members (Ontario) for Christmas! I have had 3 separate requests in last 10 days of people who are...
Stephen Buhner talks about it/often recommends it - is my understanding. But it is NOT for chronic lyme, as I understand it. TMW...
Thanks Psilosiraptor and Missouri - this is a tough one, for sure. Any thoughts on astralagus as preventative? He plays sports so there is a decent chance he will get bit again . . . TMW...
Thank you Girlie, Missouri and Goshawk, Really appreciate your thoughts - yes, this is a tricky one, with good args for and yet some args against. I did ask a doc (lyme) I respect -- and given that...
Hi everyone, my friend's son recently removed a tick -- and they sent it to gov. lab (Ontario). Waiting for lab report, he started 300 mg doxy as preventative/prophylactic treatment. He has no rash...
Hi everyone - here's an update and another question. My friend's son has been doing 300mg doxy/day - as prevention since he removed the tick about 10 days ago. He has had no rash or symptoms, thank...
thanks, Girlie - really helpful! TMW...
Girlie, do you happen to know what the esteemed and famous Dr. H says - 200mg X2? ILADS Guidelines say 200-400 mg/day - so I guess the members have different views . . . thanks...
thanks - great idea! you need to get creative here! happy Canada Day - TMW...
thanks for the quick replies! Yes, from what I am reading, 200mg 2X day seems to be the best bet. of course, getting enough doxy (Ontario) is always a challenge! I will communicate this all to my...
Hi everyone, My friend's son pulled a tick out a few days ago - but no symptoms or rash yet . . . so at this point, this is all about being safe, rather than sorry. (I have had lyme for 6 years, so I...
Hi Yogi - I am so sorry to hear about your relapse, but also glad to hear that things are turning around. I have not logged in for ages (been doing quite well for several years, thank God) - but I am...
Thank you, Traveler! And thanks for the reminder about herbs -- good for me to remember in terms of my own ongoing healing. I am also setting H up with someone who uses a rife-type approach (energy...
Hi everyone, this is the uptight aunt, whose niece was bit Aug. 1 week-end near Orillia, Ontario. It has been a while. Just wanted to give a brief update - and it is pretty good news! To recap: H got...
thank you for your thoughts! T....
Hi everyone, uptight aunt here. My niece just texted -- she had some dripping of bright red blood this am when she had a bm. This has never happened before. She says she is getting lots of fiber....
There is a LLMD in Buffalo. Email me if you want details! T....
I always read it could turn urine orange. Yes, it is him. I was VERY lucky to get in there 3 years ago (somehow an appt opened with his PA) . . . and have counted my blessings since. I was on a steep...
Hi everyone, The good news is that H's hands seem to be improving today -- still red and sore and burning, but the area is smaller and I think it is feeling better. So trend is friend? She was well...
Girlie, I always took it with food as per directions of Dr. H. Good luck with it! T....
Thanks for the input, everybody. H will call the doctor in the am. She is in pain, I'm afraid. Any of the theories suggested here makes sense to me . . . she says there are no "bumps" or eruptions on...
Thanks everyone -- so worried for her! She is going to call the doctor first thing in the am. This doc is not the 'on call' type . . The pictures show the skin as very red and inflamed. She said it...
Oh dear. H is in bad pain. Last night thumb and index finger started to get red and inflamed and hurt -- today it is much worse and seems to be spreading on her hands. Almost looks like a burn. She...
Thank you Girlie and Sonne! This is helpful. I will report back to niece . . . . Happy Labour Day to the Canucks -- and Happy Labor Day to all the Americans here! I hope the day is another step in...
Hi everyone, Happy long week-end!! The update on my niece (Ontario) is that 2 weeks into antibiotics, she is seeing some improvements, esp. more energy, improvement with headaches, hip pain, etc. !...
I second Rowingmom's advice! My niece in Toronto was given the runaround with mainstream "medicine" in TO over the past few weeks. What I have seen is worse than unacceptable! We even had an ID doc...
so glad to hear things have calmed down a bit. I never got past 150 X2. Of course I panicked about that too -- but they assured me it could still do good at that dose given my weight (at 100lbs.); I...
Hi Girlie (bonjour! I am the product of 13 years of gov. funded French lessons -- which means I can barely read a menu!) This time maybe I can weigh in with encouragement, instead of just asking for...
Hi everyone, Good news is that H says she had pretty good energy today -- she went to the store and met a friend for a short visit. (sore back and neck and hands, but those are the major things...
Dancingbear, Sarah and Sunfun - and all members of the team, Thanks for the input and encouragement and kind words. Some victories today for H: nausea much better this morning than it was last night...
Thanks everyone, this is invaluable! I am mindful that I can't let my own anxieties (and experience) get in the way of doing what is truly best for H. And I am not the parent . . . Girlie, YES -- we...
Hi everyone, Panicked aunt is back. Here's a quick update on my niece's LLMD appt. (Dr. P in Buffalo) today. Please post your thoughts? Mine are mixed . . . H got a bad bite around Aug. 3. Started...
Thank you -- here's hoping. I have to keep upbeat and calm for H and her parents (any my 81 year old mother . . ) Funny, I have been feeling a little rough -- terrible inflammation yesterday . . . I...
Thanks, DancingBear! That is such wonderful news about Billy!! Things calmed down last night for H. She texted to say she had a burst of energy during day (first time in a few weeks) -- so maybe Doxy...
Thanks, Traveler - that is kind. But I have to get over the sick feeling that if I had been more on the job 10 days ago, we might not be here now. I know that is not helpful thinking, but it is...
Thanks, everyone. H's parents decided to keep her at home and watch her temperature tonight. They thought ER would be too traumatic. I defer to them as I am just the aunt! But thanks again for all...
Thank you, Dancingbear, I am so glad to hear that your son is improving. As you noted, I can't believe how quickly this thing is progressing (3 weeks since bite) Symptoms getting scary: headache,...
thank you, team! This site is invaluable. I will report your feedback to my sister, H's mom, so they can decide what to do tonight. H went for a burger with her boyfriend, which I think was good...
panicked aunt here again. H has been on 200 (X2) doxy since Friday. Symptoms flaring pretty badly and she is running a low grade fever -- feeling super hot/flushed. Is this a herx? I think so . . the...
again - thank you! This is so helpful. I will email you now! T....
Dear RowingMom, Thank you again for your input on Dr. P in Buffalo. It is invaluable. I have another question! Why did you go with Buhner, rather than Cowden or Byron White if Dr. P works with those?...
I am also researching LLMDs in NYC for my niece. (my husband lives there, so we could manage it). Also would welcome any feedback re Dr. R in NYC, Dr. L in Pawling or Dr. P in Wilton . . . the good?...
Thanks, Pirouette! 1) Yes, the yeast is a big deal and it happened so quickly. We have an appt. with Dr. P (LLMD) in Buffalo on Wed. (we are in Toronto) and I anticipate she will start nystatin - or...
Hi all, This is the panicked aunt again . . . H started 200 mg x2 of DOXY on Friday. She is about 108 lbs. She feels very sick. We have an appt. with Dr. P in Buffalo on Wed. I hope she will be...
Thank you so much, Rowing Mom! Your feedback is especially helpful as I know you are very informed about all this and have done such a heroic job getting your child well. I have learned so much from...
Thanks for the bumps! Really interested in any feedback on this doc. Have an appt. for my niece on Wed -- but not sure if its worth the trip and expense. Also have appt. with LLMD north of NYC (my...
Hi everyone, I am grateful for all the helpful input here -- esp. from my fellow Canadians! Given the constraints for docs in Canada, can Dr. C in BC do long term abx? Wouldn't he get in trouble for...
Thanks for your questions, Toronto -- I have similar ones! What about US prescriptions? What's the deal with them? Can you bring them back to Ontario and have them filled here? T.....
Thanks to all of you -- I will call them and find out about testing . . ....