Good morning, Sorry this got long, obviously since I started with good morning and am getting around to posting now around 3pm this turned into more then what it started with. Maybe some of you will...
Hey guys, It's been a little while since I've posted as my symptoms seem to be drastically increasing in severity the more I go on. It's like that last just push through it has ended and my batteries...
Thanks Girlie, your input is always so thorough and thoughtful. Just reading over the post a few times calmed me down a bit. I will start researching Pinella and Burbur and see where that leads me,...
Hello, (If anyone's thrown off by my name it used to be cherrybomb, but I updated it to something that's felt more fitting lately) So the core protocol herbs finally arrived. Woo! So excited to start...
Traveler, I was going through some old posts in searching for a symptom and I laughed so hard at your post because I've done the same on multiple occasions. Last summer, 2014, the dmv lady decided to...
gkamom, Thanks so much for your thoughtfull response. Yes, I had read another article for a pill going from $13.50 to $750 a pill. Ridiculous. Thankfully my doctor is pretty empathetic to my...
Lymeinthecukoonut, FIrst of all I love your username, haha I actually had the lyrica copay card when I attempted to fill the lyrica that my pcp is pushing so hard. She had originally prescribed it...
Thank you all so much for your input. Just to clarify she wanted to do the lyrica, cymbalta or savella instead of the oxycodone and klonopin not in addition to. And the lyrica is going to be around...
Girlie, Oh goodness. How brave of you to try to tough it out. Sometimes just being stuck in this body is so uncomfortable that I wish I could wake up tomorrow in a different one. Given the side...
Thanks Traveler, the support and different ideas on this forum are definitely a bit of a safe haven for me. I laughed at what you wrote since as of late I've said goodbye to my dignity and have...
Jrpsf, I completely agree with you. Based on the lyme symptom checklist I'm certain that Babesia is my main infection but Bartonella also looks to be plausible. I'm very much looking forward to my...
So my primary care doctor still hasn't been able to find an infectious disease specialist to retest me. She at this point is 100% confident stating this can't be lyme. But will try to continue...
I really appreciate everyones input. I've got the core protocol ordered and am excited to get this started, I decided to go ahead and order green dragon botanicals just to start this off right. I...
B777 your original post made sense to me, although I'm not really all there right now...haha I think it's great that you tried both and now have an idea of what you like and dislike about each. I'm...
Thanks Sarah and Girlie. What you both shared makes a lot of sense. I think I'll order what's needed for the buhner core protocol and get started with those, and as I feel more acclimated will look...
Hey guys, thanks for the replies. I have not tried either. It sounds like buhners is the most popular so I'm leaning towards trying that one first, though I've read good things about both that and...
My concentration and cognitive capacity have taken a big hit and I am starting to twitch. The neurological side of this scares me. I have an appointment with a llmd in December, but am worried about...
Hello, I'm trying to find a good llmd to retest, after er tests showed a couple positive bands and several inconclusive. I'm 23 and looking in the aurora colorado area. I've gotten in touch with Dr....
Hey jasflower, I'll post my current list below, though I'm sure I've missed some. AndreM, thanks for the thoughts, I definitely don't want to take antibiotics lightly. There's been days where I quite...
Hello, So about 2 weeks ago my symptoms had gotten so unbearable that I went to the er. I always dread it because of past experiences and this was none the better. It took 6 attempts and 4 different...
Hi, So I'm posting somewhat as a follow up to my last post but I hope it's alright as it's a different question. I spoke with hr and was told that theyd try to work with me, but since fmla was...
Hey guys, Im am going to try and keep this short... I have been suffering from chronic fatigue as well as random pains and 2 pages worth of other fun symptoms since I became ill with my gallbladder...
Hey guys, I know I'll be setting up an appointment with hr to see what they suggest, but I wanted to check in here first and see if any of you have had expirience with this. So to try and cut a long...
Hey Rockon, I just wanted to post a big thank you for you providing me some info on mast cells. I've done some reading up on it and it seems to be catching the symptoms that didn't seem to fall in...
Thanks Sherrine, I'm very hopeful that at least we're finally starting to look deeper at this. This illness whatever it may determine to be has taught me very much that we are the best judge of our...
Good morning, So finally I get some progress. It's taken six month of my primary care doctor being comfortable with just throwing all my symptoms into the fibro bucket and me pushing for further...
Thanks, I've definitely thought about going for a gentle massage but I just feel like theres something more to this to figure out, before a massage would get me good relief... Yesterday towards the...
The gabapentin seemed to help with some symptoms such as naseau, almost constant migraines caused by tension, and helped somewhat with my spasms in my arms and legs. My pain has been pretty much...
Hello fibro family :) I wanted to ask does anyone get deep down bone pain? And have you been able to relieve it in any way? I'm waiting on mri results to at least make sure my spine is OK and in good...
Hello, So I've been seeing my doctor to try and get my symptoms somewhat managed. We've definitely made some progress with some of my symptoms but some have been unaffected. I'm currently taking...
Thanks for reposting this, sometimes the biggest help is just to have what youre going through validated. So thankful for this forum and all you wonderful people.... :)...
Heating everything helps me survive...lol I actually have both an electric blanket and a heating pad. Both by sunbeam. Took a lot of exchanging, thank god amazon is pretty good at working with me......
Thanks for the replies :) Personally I thought the 1000iu of D3 was a really low amount as well, considering my vitamind D levels dropped down to 13, and my doctor wants them in at least the 30's....
I am currently prescribed Gabapentin, but am looking for additional ways to help my body. I'm currently very low in vitamin D3 so I'll be taking 1000ui of that for, probably forever. I'm also already...
Thanks for the replies, gentle hugs to you all My vitamin D levels were at 13, my doctor would like to see us get them to at least the 30's from what I understand. She suggested D3-1000IU daily for...
Thanks for the reply. I'm sorry we have to go through this mess. Update: From what the head nurse said it sounds like my doctor is leaning towards Gabapentin after hearing my cost concerns. (counting...
So I've been lurking around, finally realizing that I'm not losing my mind. And just had some hard news that brought me down a bit. So I was hoping you might not mind a bit of venting. I'm 22 years...
I'm going to give some background and I'm just really reaching out for thoughts advice etc. I'm 22 years old and have been healthy prior to this. I've been having back pain on my right side for a...