What fantastic findings and good news. TY Elena for sharing. I have also signed the excellent letter they told us about on the FB page. (TY Trav for the link!)...
This is fascinating-- will be following! Thanks everyone for posting!...
So sorry IHL. That sounds horrible. I see some good advice here though, maybe it can help. THINKING OF YOU... ~ Ali...
Ginger, please don't leave... the folks here can help in so many ways. Thinking of you... BIG (((HUGZ)))...
Bravo!!!! Thanks for keeping us posted! this is such wonderful news!...
Great thread- TY all so much for this......
Thanks Sick5... It's been a nightmare. Not a good experience at all. My (US) LLMD, in his last FAX (responding to mine) called my treatment "futile" and basically (politely) cut me loose. We won't...
Thanks Trav. :) :)...
Thanks for the giggle Trav! LOL Yes, wouldn't it be nice to "figure it out by Sunday"?? A Freudian slip, perhaps, on my part. I am really leaning toward the Jernigan protocol... there is a "special"...
Welcome! I am a sorta-newbie too and this place is a Godsend. Ask the questions you need to- folks here REALLY can help. That info "stick-ied" at the top is invaluable-- such a help. Be sure to give...
TY so much. Just having folks to run things by really helps. I admit that I think I am going to lean toward smthg fairly well laid out and simple to begin, as anything beyond that is stressful and I...
((HUGZ)) Mama V I am so sorry that happened to you. It must have been scary but you and your daughter handled it! Sounds like you are on the right track getting back to the detoxing. :) You can do it!...
Thank You, that means a lot. :smile:...
Yes, I knew they were already in tincture form. :) **grin** I was referring to something else you mentioned in the previous post, LOL. Thanks- do you know if what Dr. David J uses for lyme is...
Hi there :) Yes, I tried the Hansa Center's store but you're right, it was under construction the other day when I checked. Thnx for the link. I am using Jernigan's Neuro Anti-tox at present from...
Hi Trav-- once a day herbal tea-- of course that would be fine- I have a child on a GF/CF diet, LOL, so I am always doing things for his special diet (I am GF too.) ;) I can handle that. it just...
No need to apologize, it's OK. I understand we need to share all the info we can when it crops up in conversations. I am just having a hard time figuring things out as I have been pushed back to...
I am really not able right now to make the herbal remedies, even with such great directions. I can barely stand-- I truly can't stand without support. Walking is just such a brutal effort- I use the...
Thanks for weighing in-- All of this helps me. Truly appreciated. ~ A...
Super helpful info-- Thanks for this. Really helps me/reminds me to read extra carefully....
Thanks so much sunfun123... I appreciate the good thoughts. Yes, it's really tough here. I'm in Nova Scotia, BTW. Nice to meet another Cndn here too!vI see there are a few of us! :) Based on what...
This gives me more hope, DazedPete1. So glad you're doing better. I am going to really consider this protocol today- I may have more questions for you all, though! LOL I am full of questions! Yes, I...
TY so much for weighing in-- will have a peek at this too. Appreciate your help. Everyone here is wonderful about sharing info and experiences....
Thx for the link, Trav. I agree- CD did give great info there. Thx CD I didn't realize Cowden didn't address co infections per se. I apparently (via clinical dx) have bartonella based on my severe...
Thanks for weighing in, B777. I'm going to review Buhner's protocol since reading everything folks have said. Also-- am already taking s boulardii. I have the Natural foods store here order it in...
Already done x several months. Thx...
Thanks Cd... I appreciate that. :) The LLMD pretty much (literally) said "Best of luck" and cut his ties as far as I can see/read in that FAX. I feel that he wouldn't support me in this. I feel we...
I really appreciate that Antonio. :) Thanks. :)...
Since my LLMD has basically cut me loose (I guess he "fired me" as a patient) on Monday via a faxed reply to my note sent to him last Friday... I am pretty lost trying to figure out where to go from...
Thanks Girlie, it is so encouraging to hear your voice in the mist of all this brouhaha, LOL. It really helps! I know you have been following long w/ my "saga." And, yes, it was SO darned upsetting....
I use S. Boulardii and find it very helpful! Good luck and keep us posted!...
UPDATE for ya'll... Well, having been off the Plaquenil x 29 days, I sent a FAX to the LLMD this past Friday outlining what I'd learned about Plaquenil as far as adverse effects went and why I had...
BRAVO!! TY for the update!!...
I was thinking of you too, Margaret! (Am so glad Girlie posted this.) Hope you're doing OK. :) Give us a shout so we know you're all right! Thinking of you! ~ A...
What great news!! Congrats on your baby, and TY for encouraging us!!!!...
BRAVO ! What "great news"!! TY for letting us know!!...
TY Kim... Yes, all that is familiar to me and I am aware of it as I researched the Plaquenil. Did just learn of the extended half-life issue recently however. (I'm an RN... thus super-careful with...
Thanks Girlie! yes, that's right- about 2 weeks. I keep telling myself that too! :) It's just hard as it got so steadily worse from Jan til I went off it... we had NO idea (and still don't) re:...
Just an update (sorry not hugely positive...) :( 16 days total OFF the Plaquenil and still not one iota of improvement in walking or leg strength. Added Dr. J's Neuro Antitox ll basic on the 19th....
Awww, TY so much for "getting it" & for understanding. What you say makes total sense to me. I know you get it. Our eldest (only daughter who is 21) is out on her own- next town over. We still have...
Thanks Girlie- I will try that. And TY for the input and support. I am fast losing confidence in the LLMD... there are just a lot of clinical things that stick out like sore thumbs and don't sit well...
TY Girlie and B777... I appreciate you weighing in. I will remain off the Plaquenil and hope and pray for some improvement. This is scaring me to death. I cannot say that to LLMD as during one whole...
Hi folks, I wanted to update you. The LLMD FAXED me back and answered a few questions I'd sent his way, but b/c he didn't call as I had expected him to, I didn't get a chance to TELL him that I had...
I understand your frustrations... I am in a rural area of Nova Scotia and have an LLMD in Maine. We have 3 of our 4 kiddos still at home, and our youngest has special needs. The travel is very rough....
Girlie, glad the Herx is srtrting to settle down a little! My husband has to reassure me a lot like that too. Thank god for guys like them! Some kind of supportive person, whether partner or friend,...
Bravo on such a gr8 apt!! Keep us all posted!...
Teehee Girlie, as soon as I get my Neuro-antitox figured out, I will also be adding burbur and pinella! LOL. We are doing these in opposite order to one another just now! :) good luck with it, will...
Mommychops- good move on continuing to pursue an LLD. UGH- some (ie: many) of these ID docs!! OHMY!!! Keep on being strong. As a person with "MS" with positive Igenex testing for active Lyme-- I...
UPDATE: When I awoke this AM I was "better", LOL, ie: I mean "better" than yesterday after 5th (20 drop)dose of the Neuro-antitox. What I mean is, my legs are back to their NORMAL weak state (LOL)...
UPDATE.... Now I am at 6 days off the Plaquenil and my fax to LLMD has not been responded to. This is likely 'cause I caught them on vacation, (??MAYBE??) as he has always been good about getting...