Hey Girlie, Sorry just read yours...yep it's in a CBC with manual differential. They wont report on it if they dont see it, or if it doesnt get flagged. I have had blood work taken every week for...
Has PCR positive Lyme and my LLMD is one of top in country. I did do glutathione and IVs and everything else back in 2015 along with 10 mths of anti malarial and antibiotics and I became so beat down...
Hi all, Has anyone had toxic granulation come back on their CBC? I have been blood cultured and picc line cultured. I am not on NY antibiotics right now or treatment due to my body being so beat down...
I take 0.1mg desmopressin twice a day. I had to work my way up to it. I have low ADH even on the Desmo. I also have to do saline infusions 4 times a week. My sodium does drop and they don't know if...
Any suggestions on best picc line covers? I am looking for something more organic cotton because I'm so allergic....
Yes, from lyme and mold exposure I developed mast cell disease. It has gotten very bad. I would suggest celery juice in morning to help calm your gut. I would have done that back before it got so bad...
Yes...she never showed really any symptoms...so we were always reluctant to test her. But, we asked several of my LLMDs about her through the years. Mine is so bad I can't even begin to treat because...
So helpful...thank you very much. Yes I always think babesia with that too...I wonder if Omnicef targets something that would make her herx like that....
My little girl may have Lyme and co. I was pregnant with her and had it and did not know. She started school this year and has been really sick for a couple months now. They just put her on Omnicef...
Girlie...that is awesome! This is like oh my goodness my body is going to stop fatigue. I know we all battle different horrible things, but I'm grateful you don't have to experience this on top of...
I sometimes have to go. I hate going lol. All they usually do is give me fluids and check my heart and lungs. Sometimes my sodium does drop and my adrenals sometimes give out. Do you all have the...
Yes my husband takes care of me. Thank God. And my mom and dad help with my little girl. I'm usually just skimming the ER all the time. Maybe a few days in there where I don't need it. I have been...
I think I'm just looking for some reassurance here. I have been really really sick with mast cell and lyme disease and Co infections and mold poisoning for about 4 years now. I caught my daughters...
Does any one else get the stroke like symptoms? I had difficulty reading and speaking the other night...also watching TV. It's like everything seemed jumbled in my brain. I always get the numb face...
Anyone else get herxing type reaction from D3?...
My free t3 is okay but my reverse t3 is really high....and tag is hypothyroid. But doc is hoping cutting gluten will heal that...
You are not alone in feeling like this. I have very low vitamin d and have had a very traumatic experience. Been sick for 4 years now ever since mold poisoning. Have you had your b levels checked and...
I had to quit gluten last week...developed celiac disease. I think I am withdrawaling sort of hard. I also have mast cell and I have super low vitamin d and vitamin bs. We started the vitamin d...
If you can make it to the shower....I sit on the floor and I run it hot...then I run it as cold as I can stand over my head and shoulders....then I do hot again and then cold and so on. I don’t do...
Roxie.... Thank you. Yea it’s pretty horrible. I am going to talk with someone about this tonight I hope and see what they think. I never know if it’s because of all the trauma it’s my brains way of...
Also I then always wonder if I had a mini stroke or something but I think ya just the post drone of the migraine afterwards....I’m honestly not sure. I always worry the whole or of it feeling could...
I get this quite a bit....I’m not on any specific regimen right now because of mast cell issues and being so sick from 10 months of antibiotics and antimalarials in 2016.... but I do get this type of...
I haven’t had the low HB with ginger root, but if I take ginger root it has to be very slowly and I make the tea myself only using a small amount. Ginger root can cause die off reaction in some....
Yes Roxie60....exactly....what do you do for it?...
Thank you! It is horrible! Lol...thank God my husband got me out of the house and for a drive earlier. It was a spiral. The moon I’m sure doesn’t help today!...
Hi all, I haven’t been on in quite a while and to be honest we were focusing so much on mast cell and mold poisoning....and other issues....that I thought Lyme was least of my worries. Anyways, I...
Yes for me it def. does. My body will heat up usually the next day or so and I will have a fever and then flu symptoms for days. I don't detox well at all. But, ginger I love so I always cut up...
Thanks Huddie! I'm super dehydrated always because of low ADH. I take Desmopressin for it and I'm still dehydrated lol...
Jinna- what binders did you take? My environmental doc wants to start me on either cholostiremene(spelling) or charcoal. I took charcoal before and it dried me out completely. I am still all stiff...
Yes it's exactly like that. I woke my husband up last night because the muscles in my chest were doing it. The thing is my body is so weak that I haven't been doing much for treatment because I have...
Thanks Trav! Yea my husband keeps saying you got hit with a triple whammy just rest. But of course I'm always thinking this is it...this is how it ends lol. I will call my doctor on Monday for sure....
Hi guys! Okay so here is a new symptom that I used to get but only for a few hours or so and it would pass. I feel like a magnet is literally pushing my whole body down. My muscles feel like they are...
Maybe if one of you has time can you please send me the list? I have no clue what area we will end up in. LOL...
Thank you guys! Do you have an LLMD list for kids? I will def look at the link tonight Trav :) Thanks! Leah...
She is drinking small amount of apple juice mixed with mostly water. But we have to really talk her into it and explain she needs fluids so she can feel a little better....
I think in utero. I had no idea I had Lyme at the time my symptoms started to come out while pregnant, And took two years to really bring my body down after that. I breastfed her for a long time...
Yea I agree. Maybe I will look into that urine test. Also my environmental doc said I could pass mold onto her or my mold counts were so high we are wondering if the house we are staying in has it....
Does this sound like Lyme to you guys? I'm always worried about it but not sure...
No he wasn't open to it at all. Said Lyme can't be transferred through pregnancy. I stopped listening after that because warning bells go off when a doc can't have an open mind and look at other...
Couldn't see her appendix or pancreas because they said gas bloating. Not sure why that's not indicative of anything. I know I feel so bad for her. Been sleeping for hours now and was so hungry but...
Still waiting on mumps and Bartonella test...
Okay sooo... CBC is all good. I guess her hemoglobin was a little high at 15. Doctor said could just be a little dehydrated. CMP is okay. I'm let down that I specifically asked for the western blot...
Thanks everyone for your support. My husband actually wrote the first message today for me while I cuddled her and he was all proud of himself that he was now part of our group lol, but I told him we...
Also...depending on what the labs come back as...I will look into all you have suggested. I'm not going to take the negative western blot as definite anything....
Thank you everyone for the suggestions. She went to the pediatrician. My husband took her as I am still so sick from last weeks trip for treatment. I was on the phone the whole time and wrote out a...
Thanks guys. I have it Lyme and Mold and mercury something horrible. The symptoms all started to come out for me when I was pregnant with her. But, all docs told me was it was pregnancy. Sooo..two...
Hi all, My daughter is almost 4 yrs old. She has been pretty healthy up until about two weeks ago. She has been having periods of horrible lethargy and thinking she will spit up. I know igenex is the...
Also...maybe lithium orotate...it's a mineral. Dr Klinghardt really likes to supplement with lithium orotate. Could look into it for his mood. All the toxins and everything make it really hard to...
Okay great! Got the email! Thank you :)...
Thank you both!!!!...