Umm..well no..I have major problems with allergic reactions to medications. This was further back when it first became an issue. I didn't think it was an allergic reaction because the symptoms were...
Pirouette - You may not remember but I bumped into you in the comment section of a Huff Post article about Joni Mitchelle (?). I think she died of Morgenelles and you mentioned Lyme. I had just...
No Omnicef, Bactrim, Minocin MWF wk 1,2 Flagyl Wk 2, nothing Wk 3 I was already on Plaquinel(another doctor prescribed it). I know that Mepron and Malarone are usually used for Babs. It was Dr J...
I started the protocol on January 11th. A few days later, I started having really bad nausea and dizziness. The room was spinning even when I was standing still. Forget even walking and turning my...
I'm going to call Dr J today but I wanted to answer the questions you guys asked. It is the lower number that drops when I move from sitting to standing. Normally (in the past) my bp was 120/80 on...
So I started treatment with Dr J's clinic in January. Before that I was taking medications for high blood pressure and at times Sudafed (which should raise my bp). It's always been good on the meds....
Well this puts to rest the IDAS idea that Lyme doesn't persist in the body http://www.livescience.com/18704-oldest-case-lyme-disease-spotted-iceman-mummy.html He was lactose intolerant too....
Alexandra, Ive got bad news. There isn't a doctor within 75 miles of Charlotte. There's a reason for it. There used to be a doctor in Charlotte (Dr J) but BC/DS (and one other insurance) complained...
Oh and yes you should treat it just like any other probiotic. 2 capsules provide 50B CFU and 7 probiotic strains. Its also dairy, lactose and Gluten free. Its a vegan option....
I'm allergic to dairy. The wanted me to do a gut healing smoothie that includes Kefir but I'm allergic to dairy. There is a product they recommend a product to use instead. Its called Kefiran. It...
There's Dr J in DC & I have nothing to compare prices but he is one of the top docs. I don't know how things work for people who have already started treatment but he's one of the best....
It has been proven that Lyme can be transmitted to a child during pregnancy. Don't feel guilty. You did not know you had it. What's important is that you are working on getting treatment now. I have...
Dr J told me (or the PA, but I saw both) that they treat on and off (giving your body breaks) until eventually they've gotten rid of most of the Lyme & Co then give your body a chance to build the...
Sissy, one thing about massage is that it moves the blood around and pulls toxins out of your muscles. It always made me feel worse for days. It was before I knew about Lyme and detoxing. Kim...
OptimisTick, sorry it didn't help. I have read tho that some people have to take it over months before seeing a benefits. Girlie, yeah Marinol is the brand name for Nabilone. I live in NC so no...
I don't know if that is what all docs think that's just what they said to me. I also forgot to say that the CBD oil contains only traces of THC which is the psychoactive parts of marijuana (CBD comes...
Trav - I just realized that I do have major stomach symptoms. In Jan I was having major nausea, thought it was related to headache pain but eventually ended up in the ER twice. Gastro doc eventually...
Yep and like PeteZa I feel barometer fluctuations. For me barometer causes major headache. I feel it going up and down. Full moon is just a bunch of random symptoms....
Trav - I think their reasoning is that orals don't do as good a job at crossing the blood brain barrier but when I call in on Nov 4th for my phone appt (they're letting me do that because my son...
So I went to see Dr Jemsek on the Oct 4th. Pain is one of my big symptoms. I am taking LDN 4.5mg once daily. That is great at taking care of my muscle pain. Im taking Plaquenil twice daily originally...
Sorry I got it wrong. Bummed you are stuck on your own....
One thing I use is the wunderground app on my iPad. You can see the barometric pressure and I watch it trend. My pain always gets worse when the pressure goes up & then when it is coming back down....
Insurance with cover some testing and meds depending how they are coded. My office visit with Dr J was $800x2 (me and my son initial intake). I have a phone appt in 4 weeks that is $345 for 1/2 hour....
That's funny. It does sound like that. Thanks for the laugh....
I generally run about 97 (a lot of Lyme patients register low) and so don't take it we I feel I might be fighting something off. Its aggravating because docs look at you like you are nuts. What I...
They do allow phone appointments but at most every other appt. It cost the cost of traveling but not the cost of treatment. I believe that the charges are the same as an in office visit. If you live...
jennydancingfish, btw getting the abx for my stomach for the first time was a royal hassle. I guess its pretty expensive. Insurance doesn't like to pay so it had to go thru an approval process. Being...
So before I start treatment the doc wants both a SPECT of the brain and an MRI of the brain done. I have significant cognitive symptoms which surprises no one because I've been symptomatic for 35+...
XiFaxan 550mg tab 3x daily...
I'm not sure if I posted that I had made an appointment with Dr J's office in DC, but today was the day. In the morning, we saw their peds specialist for my 17 year old son. I liked her. His test...
If you or your son are still concerned on the days he's not there then setup a time for him to call you. That way he can check on you from a distance & cuts down the worry factor....
PeteZa, yeah gastro sucks. I've always had nausea but this was extreme. It's why I think that the herbs I was taking for detox were the culprit. I essentially was unable to eat for 2 months. Lost 24...
So I disappeared from the forum for quite a while. I've been preoccupied with other things unfortunately. Some good news though. I switched to LDN for pain control and its working amazingly well. I'm...
In the New to Lyme? thread there is a link posted by CajunGirl on 10/5/2009 for www.lyme-symptoms.com It is broken. Only comes up with a 404....
Headaches, headaches & more head aches. My Junior & Senior year of high school....
Tests for Bart and Babs are notoriously bad. A negative for either doesn't tell you anything. They are both diagnosed by symptoms. I haven't treated yet, but someone will come along that can give you...
hornet599, I didn't even know that cannabis fought borrelia. Girlie, Tommy - ask you can tell, I'm woefully ignorant about all this. It's not something I ever considered. But what I know is that he...
So first, this is for a friend who lives in Georgia. So my friend has been diagnosed with Lyme, Marfan's and Ankylosing Spondylitis. I know he uses cannabis for pain. Since I don't use either but...
Check fludan.com They are in Canada. I think they supply pharmacies. I know they sell doxycycline and Nystatin. The Nystatin is how I found them. But they don't come in capsule form. For the...
Yep Girlie that is them. I used True Health Labs for some other tests and found that they also do the Igenex test. gfields, you just go onto their site and order the test. They have a doctor that...
Krimpet, thanks for the link. I expect that because I am doing it through a doctor insurance will pay but its good to have a back up....
I have similar ones. First is I'm at college and I haven't been able to find my schedule so missed all my classes, then the dream shifts to its the day of a final and I don't know the answer to any...
Krimpet, Thank you for the info. Actually, I've been to sick to get on the forum or even do better research on the herbs I had been taking to see if they could have upset things. Just a few things,...
To add to what cd said, or maybe put the info in a different form: Your body measures the amount of FT3/FT4 and if they are too low, TSH hormone is produced and it tells the thyroid to produce more...
Thanks to all for the discussion. There are so many that if I miss someone please don't be offended. Sorry it turned into a combo rant/cleansing my brain. The doc I'm working with told me I could...
Forgot Tramadol! That's a non narcotic. I took it once and it worked great for an hour until I had an allergic reaction. But I'm very sensitive to meds as some of us are. It was the only time my pain...
Denise, Don't worry about venting. We all need to do it and this is a good place to do it. Everyone here knows what you are going through. Me more more than most (for the venting). Pain is really...
Like everyone said Gabapentin. I was first prescribed it for sleep. I know sounds weird but about 15 years ago was when I was diagnosed with Fibromyalgia and the (idiot) doctor said that it helps...
bluelyme, Tramadol is not an opiate. It is a very good choice for pain. Unfortunately for me, I had a severe allergic reaction to it. The throat swelling call an ambulance type reaction. But I can...
Many people on the forum are affected by changes in weather. For me, i feel the barometric pressure when its rising and falling. I will always have worsening of symptoms a couple of days before a...