I've heard a lot about gene mutations. I don't know for sure that I have any, but I think that I might based on the fact that I have a pretty good detox regimen but still have symptoms of die-off....
Hello! I'm bumping this conversation becauuuuuse I need a damn good probiotic. I was on VSL 3 DS, which is THE best. Insurance was covering it, but they stopped - typical. I need something else that...
My first symptoms were both hands falling asleep at night - it would get so bad that I would lose all sensation in my hands...I ignored it and didn't go to a doctor. It wasn't until I started feeling...
Thanks everyone...I'm now 10 months in...I haven't seen much progress since November which was 4 months in. Something needs to change...I guess I'm scared that the herbs also won't work if I go off...
Thank you so much for saying that…diet keeps popping up, but I eat so healthy. I keep trying to switch up my diet hoping that it might make a difference, but it never does. The only thing that helped...
Hello… I have read so much about diet, but I feel overwhelmed by all of the conflicting info that is out there. I am gluten and dairy free and am currently eating a vegan diet following my ayurvedic...
Oh my gosh, thank you all so much. I am going to read through all this and take my time to respond. I really appreciate all of the support. This group is a god-send because there is literally no one...
Hi Peteza- thank you. I've been on different antibiotics since September. At the very beginning of treatment I had improvement. My leg stopped feeling heavy, my face was numb and went back to normal,...
I'm not getting any better, no improvement in months. My brain fog won't get better. I have urges to hurt myself, I hate myself, and I feel so out of control of my body. I feel guilty for ruining my...
Peteza - what kinds of mental symptoms were you experiencing, if you don't mind me asking?...
Yes, I went to one and they tested my hormones and told me the levels were in line with hypothalamic amenorrhea (hormonal imbalances typically due to over exercise or under eating). The OB gym said...
Is Lyme to blame for my missing menstrual cycle? I haven't had a period since the holidays and I'm freaking out. I've always been irregular, but it's never been this long. I'm 27 years old and...
Thank you!...
I am searching for relatively quick and informative videos about lyme disease - Not lyme by the CDC standard, but REAL lyme disease information. I'm having trouble finding something that could be...
No joint pain for me...brain fog all the way. Headaches, fatigue, neck and spinal pain, cracking shoulders, numbness....
Hi, I need help interpreting my IGENEX results. My LLMD says it is Lyme, but my naturopath says it could be something else like a virus... Basic Lyme panel results: IFA >80 - Positive IGM CDC...
I am definitely overly sensitive to cold, but don't do well in either extreme. I am 26 years old, so I should not be menopausal. My doctors that are not LLMDs seem to think that it's because I am so...
Soooo… It's been 5 months since my last period, so my gynecologist tested my hormones and they came back very low and she diagnosed me with hypothalamic ammenorrhea. For those who don't know, this...
I am seeing an OBGYN now, and she is testing my hormone levels and other things. I'm sure that she will eventually take an ultrasound to check for endometriosis, but she did say that everything felt...
Thanks - I'm going to check it out!...
I wish I knew the answer as to whether or not the dysfunction is permanent - I hope not! My LLMD believes these things will improve once I am free of lyme. As of yet, my hormones have not gotten...
I can tell you that Lyme has led to my thyroid being low. It has gotten progressively lower over the course of my treatment, though. I also have brain fog as my primary symptom. Here are my issues:...
I'm starting to wonder if I have any gene mutations…I will bring this up to my LLMD at my next appointment in May. I will try taking the charcoal - how many times daily to you recommend? If I take my...
Traveler - I took a tablespoon of Apple cider vinegar last night, and I immediately got a headache. It hit minutes after taking it. It felt like a mild herx! Is this normal? I then did some other...
I use VSL #3 - 900 billion units of bacteria. It is milk-based, so if you are sensitive to dairy don't use it. I find that the benefits outweigh my minor dairy sensitivity. Unfortunately, it is soooo...
For detox: Lemon water (occasionally) Salt Baths - 4x a week Detox tea from naturopath - daily ALA - daily I will try adding in the oil pulling, the dry skin brushing, and the apple cider vinegar....
Old thread - but what is your kefir recipe, Traveler? I'm somewhat dairy sensitive…but I think he benefits would outweigh the negatives in this case. Thanks!...
Thank you for the glimmer of hope. As for the hormones, my LLMD has assured me that treating lyme will treat the hormones, as he thinks the lyme is causing the imbalance. I haven't had a period in 4...
Also- all of the symptoms listed above in association with brain fog are my primary lyme symptoms. Is this typical? Does this ever improve for people!? I just don't know what to do to improve anymore....
Traveler - I know I don't detox enough…I'm definitely going to try harder and see if it helps at all. The salt baths are such a pain - what are some easier methods if I don't have time for a bath? I...
Thanks for the link! I am going to check it out. I actually had my thyroid levels checked out by my naturopath and it came back low. My LLMD wants me to have my free t3 and t4 levels checked but...
Hello, I was diagnosed with lyme in September. All of my symptoms (except numbness in my hands at night and occasional gastrointestinal pain), came on in less than 24 hours. On August 26 (yes, I...
Before my diagnosis, I was having a panic attack in ER and doctor's thought my symptoms were "all in my head", stress, anxiety, etc. I was prescribed Ativan, and it helped A LOT. My symptoms at the...
Hello - Yes, I was on it for 8 consecutive days, had about five days off, then again for 6 days (but with a day in between doses). Hopefully it was enough…I'm still on the diet, though I've let up a...
Just wanted to give you all the heads up - I did try to D'Mannose and my pelvic discomfort went away almost overnight. I still have some swelling down below, but my ND is convinced it's caused by...
You're welcome. How long have you been in the fight? My symptoms began last spring, but they were weird manageable things. I've been in it officially since August 26 - my body went numb and my brain...
I am 26 years old. I have no period, and I haven't for a few years. I get it once every 4 months MAYBE. I'm sorry that your period is late. I get it once every 4 months MAYBE. My LLMD has told me...
For me, gluten was a problem right away and was one of my first lyme symptoms. I would have a beer and get drunk extremely fast - I thought it was great, haha - not so much. Although I limited dairy...
Well - that may explain why I get no relief from flucanazole. So even if it is mycoplasma, I'm probably treating it with my antibiotics, so my best bet may still be to try the D-Mannose recommended...
k07 - Interesting thought about mycoplasma…I haven't been tested for co's, but my LLMD believes I have bartonella and babesia based on symptoms. He never mentioned mycoplasma, so I never really...
Also, what brand of d mannose did you use and how many mg?...
Thank you, Chapelle. I'm soo overwhelmed by all of this. Would the interstitial cystitis cause swelling inside labia minor, and what look like an almost blockage of the vaginal opening? It's so...
My husband is exhibiting lyme symptoms now- His shoulders are sore and cracking, his neck is crackly. His back is aching. All symptoms that developed gradually over two years before full blown lyme....
So there was never really any itching - sometimes I feel a bit of an itch on the inside, but I would not say it is itchy. There was never any thick discharge, either (until now, with use of the boric...
Hello, I self diagnosed a yeast infection and my LLMD gave me flucanazole for 5 days, which I took. When there was no change, I went to a gynecologist per his instruction and was diagnosed with...
Tillybear - I can't believe how fast you got rid of your candida! A little over a month? That machine sounds interesting…my LLMD is pretty traditional, but I will ask my LLND about it. I thought...
Wow - thank you for the wealth of information! I am wondering how to get tested for candida? What are the best/most accurate tests? Stool? Blood? I just had a stool test come back negative for...
I made chocolate with 100% stevia powder, raw cacao and coconut oil last night, and I think it made me herx! I got a horrible pressure headache. It was either the stevia or the cacao…and it was...
Thanks- hopefully it's not some other problem on top of the Lyme......
I had my regular blood work come back, and I learned that my white blood cell count is high. Back before treatment my wbc was in the normal range. Why is it high now? I've been on multiple...