Welcome Alpine, welcome and you come to the right place...well in my opinion. Hang in there! From what I read... get back into an LLMD again. I am is S Cal, dont have names for Bay area. I do have a...
Hi GotJesus? I am so sorry to hear about your mom. My legs sound the same as your mom's legs and I am in a wheel chair full time. Plus I have alot of pain from the hips down. I am not familiar with...
Hi All, has anyone had experience with the PK Protocol? LLMD is suggesting I start on these IVs. $500 each so expensive, two IVs per week. I have read what I can find about PK but confused still what...
Helloooo...just a little bump on Dr S or did I miss it, my brain in bacteria and toxins today so not sure if Iam thinking clear? thank you as always for your kind and helpful inputt!!! all the best...
Hi All...a little bump, I have a MARCONS Positive on top of complicated Chronic Lyme. How have things worked out for anyone out there with this issue? Any updates? I am just diagnosed by the nose...
Wow, awesome feedback thank you!!!! Jenny - glad that it is working for you, feel free to email or ask questions, I will share what I know/understand. And please continue to share your results. Randy...
Hi Jenny, hang tough, I am with you in the pain and the insanity. You will be in my prayers and I totally understand about your anger at God. Talk to him or yell at Him, God can take it. I wish I had...
Hi Randy, yes i am digging into all aspects of cannabis as I can, I am bit slow right now. go browse the web for medical cannabis. Lots of work and research in process, good findings are be...
Hi guys, good input to share, thanks! My brain is off sorry for any confusion on grams vs ounces. Interesting feedback. Yes, it is not for everyone. But you can smoke, eat, lotions , and put simply...
1)A good set of headphone and listen to music. 2) talk to neighbor see if they could help calm them down...if you are in a city town. 3)No results we call animal control Dont get me wrong, I love...
Hi All, up for air from a really bad herx or flame up or ???? but, still fighting my way through, I am told now by many that I am "complicated" , seems like a badge of honor, but we all know that it...
Hi All: Any Updates or opinions/experiences with this Doctor ??? Please let me know....
Hang in there, you describe me, I am just at a different stage in life. I hear all you are saying and I hear how you feel towards God. My only thought to add is if you can see a counselor? Depression...
Thanks Girlie, perfect!...
Here is a good link http://israel-cannabis.com/re-education Lots of good information on Cannabis. The professor that started THC research in Israel https://youtu.be/csbJnBKqwIw Watch this video it...
Hi NQA, Great questions, good to note THC with Lyme. I have odd reactions when I am really sick, herxing bad, and use THC. I find the THC makes the lyme neuro effects to be amplified. So now when I...
Thanks again Girlie! I found Dr Murakami on the web, will read more. In the search I found a statement: "Cannabis and Coconut Oil Medical marijuana capsules infused in coconut oil are an alternative...
Hi Girlie and Traveler, thanks for the feedback, I will need to re-learn the way to provide a hyperlink. Hi Girlie, thanks for asking you remember me, the 20 mg 2x was correct. He, LLMD, started abx...
Questing thanks for sharing that. First of all...AWESOME sleep, I have heard that is a good thing ;-). I struggle sleeping too. Major battles. Ugh I have to begin that soon. I didnt realize Cannabis...
Good points. Scientific Info on Cannabis : Yes alot. Yes, there is a ton of scientific studies on Cannabis. The link above will give an intro. Also tell you if it is legal in your state. Maybe start...
Hi Psilociraptor and PeteZa Pete thank for clarifying it is called "Lyme". When I am really have nero problems and my fingers dont work so well I make mistake (as I am again today). Yes I understand...
lynnkyle, hang in there, i feel like everyone does. I am finding I am getting a few hours a day now and then,that are ok. I set little goals/step each day or hour by hour ( iam an engineer so I take...
Hi All: Just wanted to share this link. I have seen people asking about Cannabis,if it is a good medicine that helps. Just like lymes disease go check out the medical details and decide for your...
Hi Kay, I know the relief of finally knowing what is going on and then to be able to do something about it...I am glad to see you are with an LLMD taking action. Stay on the hunt and learn as much as...
Thank you, The amazing part, I dont have to suffer for weeks now in that state. Detox oh thank God you all taught me this. I am slowly learning ;-)...
Excellent, thanks all for the input. I will try to keep adding in my results using this approach. Bluelyme, Id be happy to share the details. I will put up an email today, please contact me if you...
Thank guys...sorry for the slow response, been on the herxing train today and with neurological stuff, wow thats a rough ride. My LLMD is located in Temecula, CA. I can give you his name/number if...
Hi All: Popping in a new string here, Girlie made me do it My LLMD started me on a different kind of IV mix, that I haven't seen to much discussion about (but I am a newbie). I am in the Chronic...
Thanks Traveler. Ill keep updates on how the IVs of ALA go....
Hi guys, I saw this string on ALA. Look like others are using ALA, but didnt look like any IVs. As part of my treatment yesterday I did an IV of ALA 150 mg. An additional headache at first for about...
Hi Girlie, thanks for your feedback and your support. I will check on doxy dosage. 20 mg is low. He said he wanted to keep low to begin. I didnt get a chance to ask him but will email the LLMD. I...
Asomline, that is a huge help, congrats! My new LLMD is in my area close by that really helps. My Igenex came back negative (along with other testing) as well but after 2 years of lymes symptoms a...
Hi All: Well saw the LLMD yesterday and he determined a clinical diagnosis of Chronic Lymes. I knew from everything that was happening to me but was still hoping. For my wife, well a big hit in life,...
Hi Inwinder, I am a new member and passing thru to study more on CFS again... Your note stopped me since it is very similar to me. My symptoms are almost the same as you, been that way for two years....
Girlie and Krimpet, thanks for sharing. Krimpet you hit the nail on the head for me. You both have been like many others in the trenches fighting for long time, your attitude and help is to me is a...
yum, pancakes... Awesome input, thank you as always, so I have to ask... We need carbs. Different way to get carbs. Good carbs and bad. So how many carbs do I need to be sure I consume everyday? What...
Thanks Girlie, that helps to know !...
Hi guys, this is a critical discussion for success I believe in dealing with a chronic illness. Anything you can do to have positive thoughts, words, friends, music, experiences, make those thing a...
Hi all, Good discussions on sugar, thanks....but I am going crazy by the discussions of a little sugar is ok (37 mg per Heart Association) or now the information/propaganda (?) that sugar is one of...
Rex, glad you found this group, awesome people here. Your description is me, I was always active mountain biking (tick area ugh) and scuba diving, loved it and I hope to someday do it again. But I...
thanks Krimpet for the help you have already offered. I can understand that this can big alot of work to respond to everyone, for all moderators, thanks all for taking it on. It is huge for me help...
LB, Krimpet, Girlie, Thanks for the replies, been a horrific day, I couldnt make it to the computter. You all are awesome. I cannot thank you enough!!! Do you have a copy of your Igenex test results?...
Hi Bat, I found a new way to cope today, that is this forum. I dont feel so alone anymore. Wow what a huge relief. Really appreciate see others jumping in to help, wow, awesome, puts a smile on my...
Hi Logan, I am right there with you, I am in the same spot. Everyday is agonizing for me. I am new to the forum but here is what I have done and still do to survive. It helps me with the pain,...
Hi All: Results from blood tests looking for lymes. My first LLMD used high C4a results and symptoms to decide to put me on antibiotics. May 12 2016 Quest Diagnostics: Mycoplasma Pneumoniae - IGG,...
Hi everyone, wow, thank you so much for your inputs and support. I really appreciate it, I dont feel so alone. I did read the new to lyme intro, thank you so much. It confirmed to me that it is lymes...
Hi, I have recently ran across this forum. Thank you for all the information, I need to study it all, a bit overwhelming to comprehend and apply especially when I cant think straight. My brief...