Octobrsky13, what precipitated your relapse? Do you think you got another bite? Was it stress? Abx worked the first time, right? Did you see Dr. P 1st time?...
Thanks, everybody! Little Bear, palpitations/EKG changes were one of the many symptoms that convinced me that I did have Lyme. I have a bundle branch block with prolonged QT (could be normal?). Have...
Hello everybody! Checking in because things have changed for me and I wanted to report. I learned so much here and want to give back a bit...although I'm not sure any of this will be news to anybody....
Talk was canceled due to weather...hopefully they'll reschedule in the future. Disappointing....
Hi, CD! I have eyebrows again, thanks to you! Traveler, this is exactly what I was looking for! I have so much material saved I didn't know where to begin! The Clinical Advisor piece is written by an...
Haven't been here in a while...Hi everybody! I was asked by a friend to fill in at her monthly nurse practitioner meeting tomorrow evening after the speaker canceled. She asked me to talk about my...
sebreg, I am really excited to be attending this. I registered for a Lyme conference in Binghamton in May and went on the wrong day, so I missed Horowitz. I've heard Holly Ahern speak...she's a local...
I'm going to a Lyme conference on Friday. I'm planning to ask about pregnancy and breastfeeding. I'll report back!...
dbwilco, it might be March (lyme brain!) I wrote it down and forgot the exact date...it's one of those "m" months, lol. They were very nice on the phone, more receptive than other places I've called....
Me too. I was impressed! I scheduled an appointment with him... May 2017 is his next available. I took it. I hope to be feeling much better after a year of Buhner et al, but I'm covering my bases. My...
Thanks, Traveler...you came through, as always! I have some reading to do!...
I have, Girlie. I don't remember if she was on abx or not. I'm especially interested in the recommendations about Lyme and breastfeeding...I believe nursing is so beneficial that it should be done if...
Sorry if this has been posted already. I really enjoyed this special (series) on Lyme....very well done. I especially appreciated the interview with Dr. Stephen Phillips....
I've read Burascano's recommendations on exercise and wondered about the "no aerobic" piece. Has he updated his recommendations recently?...
Bump...trying to learn as much as I can about pregnancy, breastfeeding and Lyme Disease....
Thanks, PeteZa and Pirouette! I thought I remembered you saying you couldn't take Eleuthero, PeteZa. I stopped it yesterday. My BP yesterday was down to 140/90. Still very high for me, but better....
Found the answer...I had misplaced Healing Lyme, and just found it. Buhner says it can cause a transient increase in BP that usually drops to normal in a few weeks. I guess I'll keep taking it and...
I've had a couple of elevated blood pressure readings the past month. My diastolic was in the 90-100 range. I took my own BP earlier today and it was 200/100...not good! My BP has always run lowish....
My hgb and hct are WNL. We recently tested my ferritin level, which was low. I'm taking an Fe+ supplement. Low ferritin in common with babesia....
Of course, I'm a huge fan, but I think this is chock full of good information: http://appalachiantrials.com/lyme-disease-misconceptions-interview-stephen-harrod-buhner/ ...
cd has helped me a bunch on thyroid issues...cd?...
Right? UGH!...
I don't understand, Traveler. Stood her ground? I thought LLMD's treated based on the clinical picture! I told my niece that she'd finally get appropriate treatment once she saw a legitimate LLMD. I...
This MD was investigated by the state, had a gofundme campaign and won her case...I thought she was legitimate. My niece definitely did not hear wrong and the MD did not confuse the two. My niece has...
Thanks, Denikeef. I feel so discouraged about this...she is the only local LLMD pediatrician that I know of. I have sent many clients to her. I thought maybe there was something I'd missed... She had...
Been a while since I've been online, was out of town for a while with no internet access and have been very busy since I got home. Here's my dilemma: I tested my niece through Igenex. She's been...
Tommy08, I think he'd be the first to admit that be could be wrong. I don't think that I have bart and for that I am thankful...from what I've read through my months here, it sounds like the worst of...
I've been taking 10,000 IU of Vitamin D for years now and I could never get my level up above 30's. I spend a good deal of time in the sun sans sunscreen in the summer, too. My level is now 47...my...
I am so sorry...it sounds like pure hell for her. Traveler, I agree about the blood draw...one chance, then get the experts....
Tommy08, I went to an "Integrative Medicine" practice initially (Lyme specialists) when I thought I had Lyme, saw a Naturopathic doctor. She didn't test me for Lyme, diagnosed me with adrenal...
PeteZa, have you considered a knee replacement? I've had two. The first was a terrible experience, but life-changing for me. I had the surgery in 2006. It was a terrible experience, but I was able to...
I've had many steroid injections in the past, and they relieved pain at the time. I had one last October in my knee. The rheumatologist drew fluid from my ankle and then injected it with steroid in...
You all know I'm a Buhner fan. I've listened to many lectures on tick borne disease over the past few months. This is one of the best, IMO. Very informative....
Interesting...I've been listening to some of the expert lectures on Lyme. Traveler is correct...EM rash is often misdiagnosed as ringworm. Good thing your pediatrician took a biopsy, k07! One MD...
Asmoline, you didn't add to the confusion..you helped clarify things for me. Thanks! Not sure where to get the 1:5...I'll have to look into that. PeteZa, I remember you said you took cordyceps... I...
Thanks for this, Asmoline. I'll order up the other immune remodulators today. I take JKW and Cat's Claw in powder, skullcap/red sage in tincture. I'm still confused about the Eleuthero, though...not...
This thread prompted further investigation...I started Buhners protocol based on information from his website (outdated, I know now) despite the fact that I had his book. It was all very confusing at...
cd is my endocrinologist. :smilewinkgrin: I am loving this thread. I'm taking some capsules, some tinctures. Started with capsules, which are easier for me when traveling. So much to think about......
I thought Buhner recommended advised against using Astragalus if one has chronic Lyme. I've been telling all of my family members who don't have Lyme to take Astragalus, but I'm not taking it myself....
The idiots don't even get it when it's CDC positive. Unbelievable....
Run as far away as fast as you can from that ID doc. They are bad news when it comes to lyme and co. You actually lucked out with your rheumatologist...they're usually not very helpful either....
So good to hear from you, and very sorry to hear that you're going through this...I will be looking forward to your return and keep you in my prayers. Big hugs to you....
I agree completely, dacarte3! My MIL was treated with IV Ceftriaxone early on for a month way back in 2004...now she's dealing with severe RA....they say it has nothing to do with Lyme because she...
A powerful, painful lesson. I think Lyme has a lot to teach us. I'm so sorry you're going through this, multifacetedme. Wow....
More: (this fits with Lyme and co) "Anger that is repressed can also turn inward. People who repress their anger can actually suppress their immune system, making it turn against itself. When that...
I've mentioned Gabor Mate' a few times. He's had a major impact on my thoughts about health and wellness. I'm particularly interested in his "stress-disease" connection. "People who have a chronic...
"Before long, they too will be affected. Maybe then they will get off their high horses and pay attention to this undeniable level of anguish and affliction." I believe this to be true. Just...
rowingmom, Kelly Brogan is a favorite of mine...have you read her new book?...
I read an interesting article today. I lived in India for a year...bought Imitrex for my migraines...quality was good and meds were much, much cheaper. If I remember correctly, it was about $3.00 for...
I mentioned this recently...I think the spiritual piece is a biggie. "For many patients with long-term Lyme symptoms, patients should ask themselves, “what is the spiritual aspect to this illness”...