No they did not check it. She said it does not fit the bill for a cortisol problem but wants me to follow-up with neurology but she could check it if I want....
Hello, Out of curiosity, I am having episodes where my body will get a rush of what I call the jitters. My whole body feels like it is trembling I cant sleep and get super anxious when this happens...
I have tested positive about 2 years ago through DNA connexions for some of the Borrelia proteins as well as Bartonella but all other tests were negative except a CPK level of over 800 now for the...
I appreciate the feedback. In December of 2015 I came down with a lung infection and was put on an antibiotic, steroids, and an inhaler and within a week I was bedridden. After that it was months of...
I am curious if anyone out there has been diagnosed with or had the symptoms of ALS with their Lyme. I was clinically diagnosed with Lyme in early 2016 and went through a few rounds of antibiotics...
Hi all, With school in full swing and family and work life, I have not gotten on here much. I do however have a question that I would like some feedback on. For those who do not know me or don't...
I am curious how you would describe your balance issues? Also, did they figure out the cause for your spondylitis? It is an autoimmune disorder but unsure as to the cause. Some have suspected Lyme as...
Dry eyes are indeed common. I have it as well and have Bartonella. Bartonella is actually one of the hardest tickborne infections to treat so it may take a while to get improvement. Nick...
I do agree 93 is specific for Lyme I had that as one of the bands on mine. If they ran a western blot then does that mean the ELISA test was either positive or equivocal? It looks like the 1.11 must...
Mark, Welcome. If you want you can email me. I do live in the southern WI area and know of a few that people have used and can let you know who I am following up with as well. Nick...
Catlady, Best of luck to you as you treat these infections. It will vary depending on which organisms you are taking on. Doxy is typically a good abx for most tickborne infections, however, it is...
As to the initial question about DNA connexions. I did use them after having been treated for 2 years off and on for symptoms of Lyme and co-infections although I never had a "positive" test. I did...
cb7, I am glad you found us. In regards to your question about the DNA connexions test. I can give you a few pointers as I just had mine come back. I have dealt with chronic issues since 2009 and was...
Bartonella is notorious for causing issues like that. I get spots on my inner thigh and on my back that are incredibly sensitive. just the pants rubbing them make me want to yell my tests were...
You may also look into the possibility of another infection. Namely Anaplasmosis. One of the indicators of it is blood counts being off. Even the CDC admits common things to look for in anaplasmosis...
I appreciate the feedback rikky. I was hoping to not need over a year of treatment but that seems to be my only option. As to the tests, I do agree I would rather spend it on treatment but...
K07, great to hear from you again. It is tough for kiddos to know for sure the correct way to treat. With our, we went based off of symptoms. They were all treated for at least one month. One of...
Ohh and I saw you said you had a rash as well? A bullseye rash does not even need testing it is confirmation by itself. Please start a new thread and let us know what your symptoms are and what your...
Hi Beaufort, Welcome to the forum. I do encourage you to read the thread at the top of the page entitled "new to Lyme" that will give you a lot of good information. I will tell you from a medical...
Wow, it has been a while since I was on here last. I hope everyone had a good Thanksgiving. I am just checking in to say hi and give a brief update. It was 2 years ago next month that I had become...
Thanks traveler, It just stumps everyone that it is the macromolecule 1 that is elevated and they say normally in muscle disease it would be cpk-mm or cpk-mb. good info though I will continue to...
Welcome, Do you by chance know which 2 bands it was? There are some that are indeed Lyme's specific and can only be caused by Lyme's which is what M.D.'s should be looking at instead of numbers of...
So my LLMD is having me also following up with Rheumatology for CPK that is still elevated and still going up after a year worth of treatment. I had a followup appt today and he told me that I have...
Hang in there hope your doing ok now. Just saw the thread and saying thinking of you and I understand wanting a positive result. Nick...
Thanks CD3764 I am just curious, do you know why my TSH would be low as well though as far as I have read if the free t4 is low which it is than shouldnt my tsh be high to try and compensate? I am...
the reference ranges for our lab are TSH 0.47-4.68 and for the free T4 is .78-2.19 Also when it comes to other causes it is so weird, on exertion my leg and arm on my left side get very weak and...
So my cpk continues to go up it went from 296 in march to 500 in june and now over the last 3 months it has gone 688-734-886- yesterday it was at 934. and with some continuing symptoms my LLMD sent...
That is fabulous that you decided to look into it before starting treatment for ms. All of your symptoms along with spots on brain and cord are indicative of lyme's disease and the tests indeed prove...
I also live in the madison area and would be interested to get their info as well so I have it on file when people are asking if you dont mind. Nick...
Lolap, I also can sympathize with having 4 children of which all were symptomatic and 3 tested positive. We live in southern WI and it is more endemic than most think. I may suggest looking into a...
But to your original question band 23 is Lyme's specific so yes symptoms = Lyme's and band 23 Is just an added bonus to verify that you do indeed have it. Nick...
Hmm, 6 GP's 2 ENT 1 Infecious Disease 1 dermatologist 1 neurologist 3 rhuematologist 8 ER MD's All came up with stress induced, CFS, all kinds of wierd maybe's and alot of it just a virus you look to...
Welcome lolap, There are many of us in southern WI that struggle with Lyme and getting treatment. However there are a handful of MD's in the state that are excellent with these infections. there is...
I have not 1000 daisies I am strapped for cash with being in full tie school and full time work with treating for this it has been interesting so God bless my wife. But I want to get the best bang...
So this is a PCR test which is looking for the DNA of the bacteria itself. If it is positive than it is a for sure. Now Klinghardts latest test that he is going to be doing for his clients from now...
It has been a great group here and I echo the sentiments. Thank you for sharing!!! Nick...
Hey all, I have over the last few days developed very severe pain inside my mouth on the right side of the tongue and side of the mouth feels like a horrible sore. This pain also goes through to the...
Well I have dental work on both sides but more on right. what makes you ask?...
Flagyl was pretty stong for me as well but helped with somethings. Did cause dizziness though. Nick...
Yes what are you back in school for? That is indeed exciting news. Now I am not the only one who is having a hard time getting readjusted to school after being out of it for so long and the greeting...
So just a question I have heard that it is not uncommon for symptoms to be mainly on one side as this was one of the things I had questioned. I have had huge issues with muscle wasting and pain in...
I also had the excruciating shooting ear/ face pains however has mostly gone away with treatment....
Hi Sara, Yes be encouraged there are many of us from southern WI specifically Madison area that are in treatment for Lyme's so there are a few goo ones but as stated may have to travel a little ways....
Also remember as well that it takes at least 4 weeks to truly get an immune response to full force so it might have even been to early to test. a clinical diagnoses in those cases is key to get...
1000 daisies what was the cost and how did you get it? was it through MD or did you get it and take it to md? thanks, Nick...
navigator, what are these tests that you mentioned? And what are they for?...
I have 4 children who were treated for Lyme's and my 9 yo daughter by far had the worst of it and is still in treatment so I understand the frustrations in dealing with it. I agree find a MD who is...
Yes do not accept the false positive explanation. It is wise to find someone to treat you for Lyme's because band 23 is specific to Borrelia nothing else has been shown to turn that band positive....
Bells Palsy is not a precursor to Lyme's it is a symptom of Lyme's. If you live in a Lyme's endemic area than as my LLMD puts it "you have Lymes until proven otherwise. Bell's Palsy is indeed...
Interesting silverboyd86. I also have had it for a while but was misdiagnosed with lots of things but some of the worst was the brain fog and the groin pain. I also had an ultrasound that showed...