Hi H Mommy, I am so so sorry you are sick like this. I read through your symptoms and so many were like mine! Just terrible. Please get to an LLMD sooner if you can. Make the drive somewhere else if...
I really appreciate all this help. You are wonderful. Thank you....
Pirouette -- it does seem fishy. The stats should be posted by this time of year... Depressing, at best. Thanks, Happyjo. That is very helpful. You guys are great....
I worry a lot too. Please try not to worry. Worry gets your endocrine system in a huff and isn't good for overall health. I know it's easier said than done. Saying a prayer for you -- I seriously...
I just got offered two really good jobs simultaneously (after having the rug pulled out of me in March when I got so horribly ill with Lyme.). It short-circuited my career as a scientist and I had to...
Thanks, Traveler. Do I just push through this horrible acid reflux and fatigue? I want to get better. I'm mad at myself that I didn't follow you guys' directions. I just trusted my doctors but...
I just saw you all's other comments. Yes, those are good points. I see what you mean. The whole thing bugs me. I should've taken more antiobiotics in the beginning. Such a dumb move. Should've...
Yes, that's why I'm not so worried about taking doxy for awhile since they give it out for acne. I just started again after getting in to a LLMD. I started having GERD issues though after...
I think it's criminal that the standard medical community doesn't change treatment regimens to make it possible for longer term antibiotic care for Lyme. I know why - there's a huge public health...
Yeah, I think the numbers are way higher. I have had to go to a vein doctor because I had veins that broke in my wrist and ankle and they keep checking for clots (nothing). The technician told me she...
I just wanted to write back really quick while getting ready for a baby shower (it's amazing I can even do that) that I am so so thankful for all of your help and soothing words. All of the advice,...
Pirouette, thank you so much for this information. I guess I just wanted to believe that it could go away... I watched most of Under Our Skin. It was terrifying me though and I turned it off. I guess...
Traveler, thank you. That's really helpful. I think the drops do have steroids. I didn't know that. What got you better? I have an appointment at the end of June with an LLMD that someone recommended...
Thanks, Peteza. I hope this does not go on for the rest of my life. It seems like an awful disease....
Sure enough, two days after I wrote how much better I was doing, I woke up with a sharp pain in my hip that has been going on for four days. An ultrasound showed that it is a not a cyst or a clot, so...
I just want to tell you to hang in there. My husband always says, "God wouldn't bring you this far to drop you on your face." I think it's good that you are venting; I know it will get better....
This is a great quote. I want to put it on my fridge. When I got sick, I was really not eating well. I don't drink anyway, but I would go on these strict diets that didn't give me enough nutrients...
Those are great points. I have a longer comment to follow....
By the way, I know we could argue this out until the end and could both pull up ample papers on each side. As a scientist, I'm not a fan of in vitro papers because you can't correlate what happens in...
PS My docs think I could've gotten it on a hike over Xmas in NC. We had weird weather -- warm on and off (it was an Indian summer down there). I've also been to parks in NYC early this year and the...
I'm sorry you crashed. You will get back on track soon, dacarte3. Lyme sucks. It really sucks. This is my take from talking to people who have had Lyme (other scientists themselves), reading the...
Whatever it takes! I think getting the mind to believe they are gone is step one. Then the body will have a better chance of healing itself. :)...
Dacarte3, I understand. After having read a ton about this disease in peer-reviewed literature and watching the documentary, I still think that the illnesses that come (or stay) in the aftermath of...
Thanks, PeteZa! You have been so kind and helpful and are definitely paying it forward. I see how people can drop off the planet when they feel better, but that leaves the rest of us struggling and...
Hi all, I just wanted to post an update because I have noticed that some people will disappear and it will be hard to figure out what happened to them. I mentioned how horribly ill I was in March....
So sorry about that! Thank you. Will do....
Hi all, Could someone give me an LLMD recommendation in NYC? Just finished three weeks of doxy and am still fatigued, have headaches, and trouble sleeping. Thank you!...
So it sounds like you need at least 300 mg of doxy a day for about 3 months? Plus which one?...
Thank you very much!...
Thank you all again for all of your help with my questions. My docs are treating me as if I have Lyme even though they think it could be a false positive due to CMV and EBV and no exposure to ticks...
It's crazy how many different opinions there are! Hope you feel better....
These are very interesting insights, thank you....
Thanks again, you all! I just read this... I think it's important. http://www.clinicalmicrobiologyandinfection.com/article/S1198-743X(14)60812-0/pdf...
Lab mice are supposed to be really clean and disease-free. Ironically though, my friend who also had it worked with mice....
This is interesting. Really? I am (was) a scientist and worked with a lot of mice. Any chance I could've gotten it from them? I am taking time off now because I have felt so badly....
This is very helpful. I will take a look at test. Does it seem like I had this a long time, or is it something that must be recent? It's just so weird because I live in a major city....
Lyme D Ab, Quant, IgM 1.99 (high) Lyme Ab IgG by WB, negative -- one band present, p41, all the others not present Lyme Ab IgM by WB, positive, two bands, one at p41 and one at p23, none at p39 (says...
Okay, I will try and post -- Glad to hear you guys are improving! That is very promising to me......
Really? I think the chronic Lyme test was negative for me -- it was the recent one that suggested I had it. What about yours? It's possible though. I have had little bits of symptoms over the years,...
Thank you so much! I feel good to know that people are getting better. One of my close friends had this and had she not, I would never have persisted and gone to this other doctor however it looks...
Hi. I was diagnosed with Lyme last week after a month of the worst symptoms I can possibly explain. Weird stabbing pains in my wrists and odd pains in my ankles and legs. Sweats, stiff neck,...