Thanks for supporting us. It is a very lonely feeling being sick and having no one listen or even believe what we are saying. We are Lyme pioneers and maybe even will help others in the future. This...
Let's just say I work I don't cook! And I am female. One thing I did was buy a mini indoor grill. I bought a bunch of meats steak, chicken etc. and veggies. I cut them to single servings and throw...
Thanks everyone helps to know that others have same or similar symptoms. I am wondering what is going on my ears draining so much. Seemed so weird and couldn't see anyone else mentioning this. I know...
I just wanted to ask if anyone has their ears draining constantly (mostly when I sleep) when they take antibiotics or natural antibiotics? I believe what I have is bartonella-but I am curious because...
Like I don't have enough issues with Lyme and Bart-my LLMD said I need to deal with Mold issues? I don't really understand what he is talking about. He gave me something with Mushrooms in it and POW...
Has everyone tried the B12 dibenzicode gets rid of my shaking and twitching. I am convinced Lymes/bartonella deplete loads of vitamins/minerals. Maybe even make us less able to absorb. That form...
Ok I also got poison ivy and had the worst case dr had seen in a long time, bit by a chigger (whatever that was) and had this huge rash. Ok I was a bit of a tomboy and ran around outside like a...
These other posters probably have more experience re lyme's etc treatment but I wanted to throw in I looked up tinnutis and B12 deficiency came up all over the net which I am certain you have already...
i was diagnosed with Lyme and Bartonella then was tested again through mainstream medical and told no you don't have Lyme's. I stopped treating with herbs thinking maybe they were right. Wrong!! i...
Yea-I got the right one!! About time I guessed something correctly...
Funny you said that as I bought some Cats Claw and Japanese Knotweed from Chinese Herbs yesterday to mix with my Houttuynia-I read someone raving about it in another post. I will try and let you know...
I am so sorry Denikeef-It is so hard to see your loved ones suffer. My dad was a vital, intelligent person who went through 10 years of chemo/surgeries for cancer and it just basically destroyed his...
Funny you say that my doctor diagnosed me with Shingles at 10 years old-he said it was an unusual case for a child to have shingles and had all the other doctors and nurses in the office looking at...
I use Houttuynia which seems to help a lot but start slowly-Banderol helps to some extent. Traveler has had some success with Houttuynia. I use Cats Claw and together with Houttuynia seems to keep...
Ok I am taking Houttuynia for Bart and it is working well, but then I felt like something wasn't being supported which I came to believe I needed to take something for Lyme's symptoms as well. I...
I think I got Lyme's about 20 years ago when I moved from a suburb of Chicago to NJ. in the late 1980's (yes I am old). I started with tons of infections, food allergies, regular allergies etc etc...
Hey guys-thanks for reading responses. Let me know if anything helps and hope everyone is feeling better soon! Traveler I will check out that info on that gene mutation and the inability to detox...
Am I allowed to give brand? I use Swanson. You can get cheap off of Amazon. I think about 8-10 dollars for small bottle. There are many brands, but I would just get one that doesn't have a lot of...
Pirouette- have you ever tried Houttuynia for Bart? Seems to help me the most. Sounds like you have gut issues like me. Also, Potassium Chloride (oral) is fantastic for aches and pains, cramping and...
Thanks so much everyone for your responses. Helps so much! Girlie-I guess I was thinking the B12 dibencozide I thought this might help your nerve pain Traveler-I found B5 Pantothenic Acid as Calcium...
Hey everyone are you using sublingual B12 and potassium chloride? I used to have seizure like shaking and jaw pain/movement in the middle of the night and I desperately needed b12 sublingual and...
I am going to post again a little later as I have to run out. I appreciate everyone responding. Love my friends on here. No one else understands. So funny every once in a while I will have a friend...
Thank you-I think sweats are Bart because I have them too. I appreciate your response because it helps me know what to expect. Of course, we all want to feel better yesterday so I will be patient!!...
I have had to have several root canals and a few teeth pulled, but please know I think I have had this Lymes/Bartonella for over 20 years. I agree that getting rid of that infection or infected tooth...
Can anyone tell me what their herx was like with Bartonella treatment what symptoms got worse, how long it took to start to feel better, and what symptoms went away after bart treatment. just trying...
I use Frankincense gives me a feeling of well being and I think it helps as a supportive antibiotic. Besides it is supposed to keep evil sprits away LOL!!...
That is great! So nice and encouraging to hear someone is doing better. Thanks for sharing....
Hmm I wonder if the crushed herb isn't as potent as cut herb? Maybe that is why I am able to use in larger amounts now? Still get some herx though....
Thank you all, I appreciate it. I have been crushing the cut herb and it has been working quite nicely. I don't have the scale yet, so I am using about one teaspoon crushed herb (for others-do not...
I have been reviewing all the instructions for houttuynia and just want to clarify this. I have the cut herbs from the Chinese Herb place but I wanted to know do you use the herbs as is or crush the...
I am self treating while I wait seven months to get into an LLMD nearby. I have had some luck with Teasel, and others have with Samento, Japanese Knotwood or Eleuthero. None of these individually...
Margaret Do not give up. I was assaulted when I was little, had an eating disorder as a teen. Became ill with all types of stomach ache, food intolerances and other symptoms which I now think are...
Ok never mind- I did find the preparation thread and I see u did not use powder but the cut herb. I am still curious whether anyone had those weird symptoms? Seizure like, shaking, pulsing flu like...
My last visit to my internal medicine dr I had shaking and advised her I was having involuntary jaw clenching and seizure like movements waking me up in the middle of the night- my dr told me she...
I am sorry you are feeling bad. I don't have any info on MRSA but I did have an infection once where all the drs acted like I was going to die shortly- not very comforting. Hang in there u r strong...
I am getting ready to buy the Houttuynia from 1st Chinese Herbs. I am getting a new symptom - Lyme-laziness. LOL! I did find the recommendation for tea and where to buy but got tired of looking for...
Thanks everyone I am not certain how many drops I did exactly. I just did a small squirt. I was impatient and wanted to see if it would work for me! LOL Well I didn't have to wait! I think this is...
I just bought and received houttuynia from Nutramedix. (I didn't see Traveler's recommendation to get tea until after I purchased the Nutramedix. Anyway, I tried a few drops in the last few days and...
Ok thank u I will try some of those. I already do vit c and b but I dont think it is enough....
I just meant where did people get their adrenal supps from like Licorice? I have weird reactions to so many things I thought maybe someone found some really gentle adrenals supps?...
What symptoms u were having and where u got it? God bless all of u veteran members! U inspire us!!!...
Hey Healing98 u r so kind to print all of this out (list). I hope u don't mind I went back to read some of your old post since your issues seem to be similar to mine. I am waiting to see an...
Wow I have never met anyone with the same intolerances as I have- gluten, soy (terrible reaction to this), msg, some dairy, most grains, nuts list goes on and on. Does tx make some of this better? Do...
"Weird how all this time I was suffering because of what I ate. I guess my body was trying to tell me something and I wasn't listening." I just posted this from your other post.... I have the exact...
I just want to share something that makes an enormous difference for me when I am feeling anxious, hot, drained and very depressed. I cannot help to think some of the herx reactions are actually a...
Thank you all so much! I am very grateful for this forum. it really cheers me up when I am feeling low!...
No dont worry it wasn't any of the coinfections or Lyme! it must not have been too serious as the nurse came in (-and then everyone else did too) a few minutes later without any gear on. did throw me...
It is crazy how so many things seem to do nothing then bam you take something and wow it is doing something!! I could feel the infection coming back - hard to explain felt like whole body pulsing,...
JohnRed u r not alone. I hope you do not mind me sending these words of encouragement. I need to read this again today! Sent from my iPad Begin forwarded message: I couldn't believe how appropriate...
I just wanted to post some good news. I know I haven't been on here long but I woke up this morning and felt better than I had in a while. You all don't know me yet but I have been sick for very long...