Allergic to Rifampin. Bactrim . They dont think I have Babs. No symptoms. I did Plaquenil and Arteminisin. No effects....
To clarify...I had other Lyme tests between but no IgM bands....
Yes. I did multiple antibiotics for 15 months with my LLMD. Supplements, diet, etc. Band 23 has shown up on Quest in 5/16 and now. No other tests between. My ND started me in a Buhner protocol this...
I just got back my Igenex test. IgM: 23, 31 and 41 is INd. This after 2 years of treatment. My symptoms do not change are I have bad cervical and jaw issues. BUT...my MRI is horrific. I've had...
I treated for all coinfections except Borrelia miyamotoi. I am treating for that but its a fairly new infection..not in me but in general. All my symptoms seem to relate to spinal issues but who...
My LLMD does not use DNA connexions as it doesnt tell you if its a current infection. People have many bacteria but not all may be causing problems. This us where it gets soo confusing. Many people...
I have been treating for Lyme since 5/16, IgM 23 +, history of PVC's for 8 months, severe neck and jaw pain, twitching and anxiety. EMG+-spinal accessory nerve damage, cervical facet disease severe....
In treating for Lyme and Bartonella. New LLMD says she found Babesia and Erlichiosis. I have no Babesia symptoms...she said I don't have to. Probably true but is probably as reliable as the blood...
So...I went to a third LLMD who did AK testing and now says I have more coinfections..Not sure I believe in this testing.. opinions?...
I'm going in 2 weeks. Undecided until then....
So from what i am learning I need supplements or herbs that assist the TH 1....
Ok.so pretty complex. I would need to determine what side I am dominant. I'll try the link....
I'm not sure how to search in the forum. I've also read about rife machines....
Has anyone read much about this and Lyme disease?...
Yes I try. I have kids, a job, a lawsuit I'm in , no family close and have a hard time finding me time. When I do I'm usually fried from all the former. Thanks!...
Last question. Are you better? How long did it take,?...
It's my spinal accessory nerve. They think I have actually had this since 2011. History of irregular heartbeat for one year in 2012, strep 2012, dizzy spells took me to ER in 2011. Trembling episode...
I know. It stinks. What protocol did you follow? Just curious...and did you ever test positive? The test is so confusing....
16 doctors and no one has a clue except bad spine. Nerve injury,a typical facial pain, TMJ, Raynaud's, low magnesium. Chronic pain.......... I'm sooo confused. I have none of these yet all..if that...
My PCP is questioning my diagnosis. I had a crappy spine prior to anyyme and an EMG shows a damaged spinal accessory nerve which has caused soo many issues How did it get damaged??? Can Lyme disease...
Ok. More Epsom salts, dry brushing, I think I need to increase my water. I have read Clarinex can help the inflammation....
I couldn't continue and I am almost there again. The inflammation increases which increases the spasms. They are so severe my jaw will start popping. That is why they thought for 7 months I had...
Yes support herbs. I must be killing a lot of bugs. Ugh...
HI- I am on Day 21 of Doxy and think I have been having a HERX reaction since Day 7. Stopped for two days the past weekend as the spasms were just intolerable. Started back Monday and now here we go...
Ok. It's not POTS. I am a nurse and it's just dizzy when I turn too fast. No heartrate issue. It's not when standing up....
What is POTS? My naturopathic MD had me on detox stuff. Lemon water and epsom salts baths....
I want to start a Lyme humor blog....
Trying. 😉...
On day 20 of Doxycycline and now dizzy constantly. Never had much of this before. All the spasms and sharp shooting pains have eased and now I'm being entertained by this. Any suggestions?...
I have HLA type. 04. Apparently autoimmune triggered Lyme so my body is attacking itself. Losing friends fast and quite discouraged....
On third week of Doxycycline and still having awful inflammation issues. Neck and jaw. Nothing new but I am looking for non-pharmaceutical options. I can't tolerate it. It causes my spasms to worsen,...
I am not familiar with the Apple cider detox?...
Yes My MD is ordering try the saliva test....
Hi nurse..I am a nurse too and like answers. Not so easy with Lyme. I have no coinfections and bad muscle a spasms and back part. I'm going to start the Number protocol as long with my antibiotics.....
I am a recent Lyme disease diagnosis and now told I have adrenal fatigue and thyroid struggling. I basically knew. Massive stress over many years. Some self- induced. But most not. Any good...
I have the same issue !!! Mine is only on my left side. Started in my neck and has now traveled down my back to my buttocks. Painful is mild way to put it. I have found massage makes mine even worse....
Thanks! I contacted one today and hope to hear back soon....
Thank you!! Yes I just now emailed a support group. I like the come back comment😉. Ok. Feel so not alone. In CT....
I am very frustrated and lonely. I was diagnosed 11 days ago and have likely had Lyme for 4 years. I just don't see many people with similar complaints and I know everyone is different but...DOES...
Crying as I write this as I am also struggling and I am a nurse for 24 years. The care for Lyme patients is horrendous!! I will be posting my rant soon. You ARE NOT ALONE!!! Reach.......
I have awful problems with spasms and they go into my FACE!!! That's my main issue. Diagnosed with TMJ two years ago as the spasms literally popped my jaw. It is NOT TMJ. I knew it wasn't. I don't...
I have Burbur need to get the Pinella. Thanks!...
I have read about Pinella. I am taking antibiotics, antioxidants, herbal detox support for kidneys and liver, probiotics, and lemon balm tea for nerve pain. I also have a natural anti- inflammatory...
I have a doctor who is well educated but very busy. There are others with a few months waiting list. 😞...
I had to stop lifting. I was a body builder for 30 tears. Yes struggling to slow down. Two kids, job and sleep is essential. I'm learning. Thnx😃...
Symptoms x 4 years...Recently diagnosed and on Doxy 2 xday, antioxidants, low glycemic diet. Having first Herx and looking for options. So many options and brain fog not helping. Using Burbur drops...
What is A-bart? Is it available over the counter?...
Thanks!...
I was a spin and kickbox teacher also so that's gone and hard to replace that adrenaline. Trying to find alternatives but painting isn't cutting it. Still searching. I drink Kava tea too....
Thanks. I walk around with ice around my neck a lot. Stress is an altogether nother issue. I have tried but I have many things out of my control. Tried meditation, cannot do yoga because of neck. Two...