I am very much in the same situation as you, I see Dr J and feel like my progress is very, very slow. I have actually been on the induction protocol for over a year. I am also extremely sensitive and...
I have a wonderful LLMD but I feel like there are some issues that they do not cover, adrenal fatigue, mold, heavy metals etc. I am having such a hard time after almost 2 years of treatment making...
he does go to my appointments with me, thats a good idea then he can determine if he wants to go to the doctor and start treatment...
thank you traveler. now to convince him to go to the doc and stop eating gluten, sugar and drinking wine. he is italian so those are staples in his diet...
yes they are igenex results his symptoms include minor fatigue and neck and back pain, but he has a pinched nerve in his shoulder so that would explain the neck and back pain. the fatigue is only...
My husband just received his Igenex results, he has possible very mild symptoms and has lived lyme endemic areas his entire life, and I have chronic lyme and co, bulls eye rash, Labcorp Pos and...
Relapsing Fever is a separate illness, it is caused by borrelia, but a different kind than the type that causes Lyme....
I just received my IGeneX results, and I tested IgM positive for Relapsing Fever, as well as Lyme, Ehrlichia and Bartonella. My doctors have been treating for the others but RF has never been brought...
k07-I saw my other LLMD last week and she did not seem overly concerned about Brucella, she said she completely trusts Dr J's opinion and she would not do any further testing, she said to talk to Dr...
I do have high viruses too, I just take coconut oil for them, I don't know what famvir is. I live in in central VA near the mountains. Well, since Dr J is now saying I don't have Brucella and it was...
k07- I am in central VA. I am going to ask the LLMD I see tomorrow to run the agglutination test and IgG and rerun the IgM for Brucella. It is interesting that Dr H and Dr J have differing opinions...
I just wanted to add, I live in a rural area and the farm next to me has cattle, and I know the deer travel between his property and mine. I have also had a lot of exposure to cow reproductive...
The doctor who thinks my positive Brucella from Labcorp is a false positive is an ID doctor as well as an LLMD, Dr. J in DC. If I can't trust his opinion I don't know who to trust. He also thinks my...
Thanks Girlie, I will have to talk to my other LLMD when I see her tomorrow. I have really bad heart palpitations especially when I lay down, ran all the tests with the cardiologist and they couldn't...
It is possible it is a cross reaction with Bartonella, we did a 6 week treatment for Brucella, just in case, my Bart symptoms were horrible. The soles of my feet were so sore I had to either were...
How where you diagnosed with POTS, one of my LLMD's thinks I have it or am heading toward having it, she didn't really suggest what type of Dr I need to see. What were your symptoms?...
I tested positive for Brucella IgM, we did not run any further testing. I have pretty much the same symptoms as you except for the numbness. My well known LLMD thinks it is a false positive, I had...
I have been a dressage rider for the past 25 years. Three years ago we bought a farm and my 3 horses moved home. I was caring for them, stall cleaning, feeding etc and riding all 3 daily. June 2015 I...
Traveler-this is a great letter, do you have a link to the actual letter and the attachments, or the journal where it is printed. i would like to share this letter with my employer and my disability...
k07, my main symptoms are extreme fatigue, headaches, weight loss, hand tremors, blurred vision, back and neck pain, joint pain, the list goes on and on. Lymie Girl and Girlie, I am on Omnicef,...
I did 30 days of Doxy last year when I first got sick and continued to get worse, but this could have been from Lyme, Brucella, Babesia and/or Bartonella; all of which I have either tested positive...
Anyone have any insight into symptoms and treatment for possible Chronic Ehrlichia and/or RMSF? I have been testing IgM pos IgG neg for RMSF for the past year after a tick bite that gave me and EM...
I am going back to my old Dr in a few weeks to get her to help me with my disability claim, my disability insurance does not think my current Dr is credible ( he is a very well known Lyme dr in DC)....
i just tested positive IgM and negative IgG for Lyme from Labcorp, but it is 13 months after I pulled a tick off and had an EM rash. We ran the test now for disability insurance purposes, I read...
Be careful if you try to go out on disability, I was able to go out on disability last year for 5 months with no problem, but I think there were several reasons for that. 1. I had a bulls-eye rash 2....
I guess I am the opposite of most people, the more things I do to detox the worse I get. I had to cut way back on all that I was doing to detox, and I mean way back, no detox supplements, no Epsom...
Thank you Traveler for the info, I will contact the lawyers you mentioned today, my doctors office is also looking into lawyers that other patients have used....
My disability claims continue to be denied despite my doctor's explicit letters to the insurance company that I am too sick and heavily medicated to work. Does anyone have any referrals for lawyers...
I too would love to do the paleo diet and try to as much as I can, but GF grains settle my stomach. I am also allergic to eggs, almonds, tree nuts and peanuts so it makes finding only paleo things to...
I currently have a great LLMD but I am looking to add a holistic approach to support my current treatment protocol, so I would like to find an ND in my area. Thanks...
I too had High levels of IgG for EBV as well as HHV-6 and CPN. I did have mono as a teen. One of my LLMDs had me start taking Monolaurin to help with the viral load. It hit me pretty hard when I...
I too have had a difficult time balancing how much I can do before I know I have pushed myself too far. I have 3 horses who normally live outside 14-16 hours a day and spend the nights I their...
Thank you for the information Traveler, and it is encouraging to hear that you have recovered from your TBDs. Some days I feel that I am never going to get better and live a normal life again. And...
Thanks for the info Traveler. I recently started adding collagen daily and I am slowly increasing the amount I take. I also add a little bone broth to everything I can, so hopefully I can get boost...
My sodium level on my cbc a week ago was 140 mmol/L. My creatinine is a touch high, it has gone done a little from my blood work in late March and my eGFR has gone back to normal after it was low in...
I just recently tested positive for Brucella after seeing a new LLMD after 9 months of Lyme and Co treatment with 2 other LLMDs. For me the symptoms that now clearly point to Brucella are: Low fevers...
Glutathione has made difference for me. It does have a terrible taste, I mix mine with a couple of tablespoons of juice. I had to start out slow, just a few drops am and pm and build up over a few...
I just bought some electrolytes made with Sea Salt and no sugar and no sweeteners, maybe that will help....
Mine actually run the length of my fingers into my palms. I supplement with collagen and drink bone broth so I don't think that is the issue....
I have recently noticed that my fingertips are wrinkled, they look like I have been in the water too long. They are like this all the time, I drink a lot of water and added electrolytes so it is not...
I would go very slow with the A-Bab, I tried it and could not get past 1 drop 2Xday after 3 months and the herx reactions actually seemed to be getting worse until I stopped. My new LLMD told me to...
Thank you for the information, the more I read about Brucella it becomes more clear that Brucellosis explains the weird symptoms my other 2 LLMDs could never figure out and the reason I can go no...
I received my recent lab results and I tested positive for Brucella, I have no idea where i would have gotten it, except maybe from the tick that gave me Lyme last June (bulls eye rash). Does anyone...
I had these same symptoms and sometimes still do, my LLMd thinks it is from babesia. She sent me to a cardiologist because my heart palpitations were so bad there were some minor things going on with...
I'm glad this older thread came back up today, I am seeing Dr J in April so its great to hear some success stories, I'm not getting very far with my current LLMds so I'm hoping he can help me....
Thanks, Girlie and cd3764, I am hopeful that Dr J can help me. Since I live only a couple of hours away from DC they put me on the wait list to get me in if he has any cancellations before my...
After getting more test results I decided to make an appt with Dr J, my RMSF is still active 8 months after I was infected, I have the HLA haplotyoes that indicate I am mold susceptible, and multi...
Did you decide to see Dr J or Dr H? Have you had your appointment yet, what was your opinion? I am trying to decide if I should make an appt with Dr J. Thanks...
I am also interested in any opinions of Dr J, I currently see 2 other LLMDs in northern Virginia, but am feeling like I am getting nowhere after almost 8 months of treatment. One dr wants to just add...
I keep a journal the old fashioned way, a spiral notebook, I am fairly tech savy but found that to be too confusing for my jumbled brain. I write all my meds, supplements etc for the week and note...