About 15-20 years ago (before having lyme) I used to take Zoloft for depression. It helped, and I never remember having any side effects. I stopped taking it before having kids and stayed off. I was...
Wondering if any of you have dealt with anything similar? I've had tinnitus for over 2 years that's gotten steadily worse over the last 4-5 months. It's to the point I can even hear it during the day...
We tried contacting that place this past April, and after 4 calls, we never got a return call. We found some people through FB that said they had gotten through and, at that time, appointments were...
I feel like my doctor gave it to me as part of a parasite protocol? I'm so currently lost in my treatment plan and doctors I don't really even know why I'm taking it. I was told to take it 30 minutes...
I am taking the Biocidin LSF, but mine has a pump dispenser rather than drops. I've only been able to get up to 1/2 pump a day from herxing....
And thank you very much for the suggestions. :) I do have collagen everyday (BioSil) and collagen powder i put in my smoothies. I'm not allowed to take tumeric/curcumin because of my genetic profile...
Thanks, Caramba. I have been through two LLNDs in my area, but they've referred me out because they haven't been able to help me. I'm currently seeing an LLMD about 2 1/2 hours away (just had my...
I am in a really bad place with my pain management. Sorry- this is long! When I first was diagnosed (most likely misdiagnosed) with fibromyalgia, and it got really bad, I was prescribed Tramadol to...
Thank you so much! :)...
So I finally got the call from an LLMD in Berkeley (don't think we're supposed to say specific names on here) that my turn for an appointment is almost here after 11 months on the wait list. I was...
I can't figure out how to find even one more ounce of strength to try to battle this. We've drained all our money, college savings for the kids, maxed out every card, and tried to get loans. There...
I've met 4 people personally in my town that have traveled for expensive treatment to states that allow IV hydrogen peroxide and they say that's what put them in remission. I wish there was more...
sebreg- That is the perfect description- a herxing death spiral. I'm at the point where I don't even know what pain and symptoms are from herxing and what is the lyme. I'm glad to know there are...
Denikeef- I did start slow with the Buhner herbs. One day after taking them I developed a high fever, vomiting, dizzy, uncontrollable shaking and pain. It lasted about 5 days. I really thought I had...
Krimpet- The only magnesium I'm taking is Natural Calm powder. But I've only been taking that to help with constipation due to the binders. I'll have to check if any of my supplements have any added...
Thank you so much for all the info, cd3764!...
Hi DeniK- thanks for your response! I feel somewhat confident with my LLND (have met people she has helped), but am on wait lists for some others. My main symptom is extreme muscle pain and stiff...
I am completely struggling with detox and treating all my issues- mold, Marcons, parasites, heavy metals, and lyme (and who knows what other co-infections). But every time I try even one treatment,...
I agree. I am so grateful to these celebrities for helping to spread the word. I've encountered so many people (family members included) that think it's all "in my head" etc. I've also met people who...
Sean.scott- I definitely think my mold treatment is causing herxing. I backed off for 3 days while traveling and the pain diminished. I want to get back up to full dose but with increased detoxing...
Excellent article! Thank you!...
Sean.scott- You sound exactly like me- all the pain, trying all the medicines... all of it. I haven't been able to go back to work because of the severe pain, and I'm trying to parent two young...
Thanks, everyone. I'm not currently taking anything else for lyme. The herxes were so bad and frequent that we're trying to deal with parasites, mold, and heavy metals first. I finished a few months...
Can you herx from beg spray and/or keto spray? I'm on them for MRSA and mold. After taking them for about two weeks my usual symptoms of muscular back, shoulder, and neck pain have intensified to the...
I'm still new to all this and trying to pay attention to herxes and how my body is reacting to things. I've thought I felt a bad herx before, but the last few weeks have been crazy. I'm just...
We are considering a move mainly for financial reasons. (Trying to battle lyme has wiped out our savings, put us in a severe amount of debt, and has made it really hard to survive monthly where we...
I think others, including myself, would love reading about your journey. It would probably feel good for you too!...
For the last week I've been dealing with really really tight muscles. Tight muscles and muscle pain are not new to me- those were my first symptoms before I got diagnosed with lyme and something that...
Wow- I didn't hear about the El Nino effect. I'm going to go read about it. Thanks for the articles Pirouette! We had all these bird feeders in our yard last year, but after I got diagnosed with lyme...
We're on the central coast of California. It's super frustrating because I've been told by many doctors here that lyme is just an "east coast thing". Our community is not educated on lyme at all- I...
We've already had two students at my child's school be diagnosed just this year with lyme after a tick bite and rash. Our school only has a population of about 400. Doesn't that seem like a lot? And...
Carp84- I had the same issue with Alinia. For the first month I was on it, it did change my urine color to almost like fluorescent green. Then I started getting urinary pain. It actually became...
Thank you so much! Wow, you are right, this actually really got to me more than I realized. I'm not surprised hearing doubt from others, even friends, but I think it really caught me off guard to...
She's also sending everyone this CDC link and saying if we haven't followed it, we are misdiagnosed. http://www.cdc.gov/lyme/diagnosistesting/labtest/twostep/index.html...
I'm looking for infographics or a short article to share with some family members that are believing the CDC that chronic lyme does not exist or that we are being "duped" since it isn't covered by...
My doctor is having me take 2 BioSil capsules twice a day. I'm wondering if I should also add in the Great Lakes Gelatin? How do you guys take it?...
My LLMD wanted me to get my house tested for mold. We just got the results via email today from MycoMetrics and I have no clue what they mean. She's supposed to go over them with me at my next...
Thanks, Traveler! Let's just say the antibiotics are definitely causing a major herx. I feel like I've been run over by a truck. I wish I could lay in bed all day, but I have to teach a class this...
Thanks Kathie and Girlie! I'll just maintain until I'm done the antibiotics. Hoping they don't cause too awful a herx. :/...
My regular doctor just put me on antibiotics for a sinus infection and month long cough. Do I keep doing my Buhner's herbs? I just started them not that many weeks ago (4-5?) and have been going...
I just watched it, and I am so grateful she's sharing her story. I think any time lyme can get media attention is a good thing. I've been following her closely on Twitter and Instagram because she's...
I've been having the same mold concerns and having financial issues in dealing with them. Five years ago my husband and I moved from a super dry, hot climate to the coast, which is always damp. I...
Thanks, everyone. I'll definitely slow down on the herbs. I'm just so anxious to start getting better. :/ The rash or flush or whatever is was is finally gone- took about 45 minutes, but my skin...
Thanks, PeteZa. Now that I've calmed down and had time to think, I did take some supplements this morning- one was niacin. Could it have been a bad niacin flush? I've never had a niacin flush before,...
I just started the Buhner protocol a couple weeks ago, and this morning while I was showering I broke out in an awful, burning rash all over my face and body. I would guess it's hives, although I've...
Muscle pain and tightness have been my number one complaint with lyme, and that really seems to throw doctors off. They all say nerve issues, brain fog, etc. (which I also have) are the main symptoms...
Yes, I'm in the U.S., Sandra. I'll email you- not sure I'm allowed to list the pharmacy here?...
Hi Sandra- My last two LLMDs both prescribed Alinia. I think it's from Klinghardt's protocol maybe? They've both had lots of success with it. For some reason I did really well with it for about a...
Thank you rowingmom. I actually ended up dropping back to JK once a day and CC once a day. I was just feeling so miserable with the herxing I could hardly function. Hopefully soon I can try to start...
Ha! I like that- cost effective! :) I just feel like it's going to take me forever to feel any relief at this rate. And yes, I'll definitely add the burbur- already have it! And I'll keep up those...