Jenny, I had one good herx on Cowden, and a couple of smaller ones. I did 9-10 months of abx before switching and had a lot of herxes on those. Herx on Cowden went away as soon as I stopped unlike...
For both posters looking for a great LLMD there is one in central Missouri as well. You should be able to find them on the links shared above. He is a compassionate and knowledgable doctor that has...
I am on Cowden now for nearly a year and I agree with Traveler that you should be somewhere between 2 and 3 liters anyway for detoxing....
Chicknorris, Nutramedix has helped with Lyme with several in our support group in St. Louis so you are not wasting time or money. We all have to find what works for each of us. Trial and error...
Thank you girlie!...
Hi all, One of the members of our support group had a blot test done, not through IgeniX, and band 23 came back positive. MY IgeniX explanation does not help much on 23-25? She has chronic fatigue,...
Lojo, I think I have something similar to you. I describe mine as always feeling like I am on a rocking boat. The only time it goes away is when I go to bed. Driving or being in a car would make it...
Yankee, please stay compliant to whatever protocol you are using. My symptoms of chronic motion sickness came and went for about 9 months and then in June of 2014 it became permanent. After being...
Looks like we found a hospital to help but it is still 2 hours away....
Traveler you will have to tell me about Dr. Master's sometime. He trained our LLMD and he speaks highly of him and also says he was one of a kind :). Acanada - my initial tests was a negative on the...
I have someone in our Lyme support group who has an approved Picc line order from the LLMD most of us use in Columbia IL. They cannot get their doctor to fulfill this doctors order for a Picc line...
I am sorry you are going through these issues. I have had a permanent chronic motion sickness now for over two years. I don't call it vertigo per se since I have never had vomiting or sick feelings...
Girlie thanks for letting me know that about posting emails. :) Misdiagnosed, let me know if I can help at all. You can send me an email and I can usually help get you in earlier than normal with the...
Mikey, Is your dizziness permanent or from time to time. Mine has been permanent since June of 2014. Diazapam helped with the motion sickness feeling. Not a herb or supplement but it did help me....
There is a LLMD in Columbia Missouri. If you need further assistance please email me. Let us know how your IgeniX test turns out. Jeff...
Hi all, We have three people on full Cowden protocol in our St. Louis support group. Two of us are also on Ondamed biofeedback therapy. I am one on both and they have helped me tremendously. I am...
She is doing better today and will just take it slower. Thanks again for all of the replies....
Thanks to all for the replies, I love this community....
Did anyone develop a rash at all from any of the herbs? We have a member of our support group who has developed one on her first day. She has just taken Parsley, Burbur and Pinella for detoxing....
Dashgirl, what was interesting in the info this dentist had about spirochetes was that it had little to do with Borrellia. Evidently there are 6 or 7 types of spirochetes, one for our disease, one...
Also a quick note, we have at least two mom's who passed Lyme during pregnancy to their children in our support group here in St. Louis....
Dashgirl two weeks ago I would have thought you could share kisses. As far as unprotected sex,our llmd has seen almost 10000 cases and said only one couple has it and they both remember a tick. To...
I also have few Lyme symptoms compared to most. I have chronic knee pain, but never the debilitating all over pain, nor have I ever had the chronic fatigue that so many with this disease have. I did...
Arl1224, It sounds like this is newer for you, give a little of your story for us. How long since you have been diagnosed? Are you on abx/or an herbal program? I know exactly what you are describing....
Hi Rikki, My permanent dizziness/motion sickness makes me feel like I am in a rocking boat anytime I am out of bed. I have been on Diazapam for over two years to help this. When it first hit me in...
We have several in our Lyme support group in St. Louis on the Cowden protocol. No one has had issues on the Pinella. We did have one herx badly on another detox product they have called Parsley....
Interesting stuff, I am starting ozone therapy next week. He discussed the ozone water but I just want to do one thing at a time. Always something we can spend more $ on....
Krimpet, since you herx on some of the herbs you have taken in my personal opinion you should save your money on more testing. We can all test for so much that we have wrong with all of us :). What...
Thanks Julymorning for your feedback. You are correct, the main indication is depression. Even though I was diagnosed with MAV, I had some depression going on too and it was helped by ami's. As I get...
Thanks for the replies all. I was misdiagnosed with Migraine Associated Vertigo (MAV). Even though it was not correct, the Amitriptylene did help some of my neuro symptoms, especially the extreme...
Have any of you tried Ondamed? We have had three in our support group in St. Louis have great success including myself. Not sure what areas you are in but you can pull them up online and see where...
Traveler, thanks for posting this here and on our Facebook page. I centered discussions at our group meeting this week on some of what you had in this article. You are a blessing!!...
Krimpet, I will ask if anyone has used Takuna. I have not tried that one yet. I do rotate the microbials with Samento. Right now I am taking Houtt, Enula and Samento. I also tried Mora once as well....
Krimpet, Great questions! I am not doing what they recommend to buy as a full Cowden by month protocol. The other two on Cowden are buying the monthly plan. I am doing what they recommend as far as...
Hi Traveler, you are in our support group in St. Louis and thanks for all of your input on our Facebook webpage!! My motion sickness has no nausea thank goodness. I feel like I am in a rocking boat...
Hi all, I was asked to give information about those in our Lyme support group in St. Louis who have had success with Cowden Protocol. I was on antibiotics for 9-10 months and improved but hit a time...
Will do Krimpet. We have three members in our group and another two or three that are beginning to start it. We also have one member just starting Buhner but results are too early to tell anything....
Thanks Krimpet, I did have initial testing with my LLMD that showed low aldosterone. I was on Fludrocortisone for about 9 months. I have since switched to addressing my low vasopressin issues and I...
Magoo2, I am interested what Dr. does this in St. Louis? I head up a support group here and would like this info!! We have one Dr. and one clinic that does the UVBI and Ozone therapy. You can try to...
Thanks for the reply. I know I do not have Bart. Pretty sure I have Borrelliosis and Mycroplasma. I had not heard of DNRS until yesterday and thought I would check on this board if anyone had success...
Hi all, Has anyone had success with DNRS on this site? If so, what type of symptoms did it help? My main symptom is chronic motion sickness. I feel like I am in a rocking boat anytime I am out of...
Joycesource, I have chronic motion sickness where I constantly feel like I am in a rocking boat anytime I am out of bed. My ENT had me try vestibular therapy but all that did was make it worse. I...
Traveler I sent you an email. Let me know if there is anything else you need!...
Traveler, how would you want me to send that to you?...
Hi all, No one should go through this disease alone. If anyone is in or near St Louis/St Charles County we have a support group that meets once per month. We can assist with info on nearby llmd's,...
Thanks Traveler. I have been on here a long time and I have learned a lot reading posts on different subjects. There is a lot of info in the new to Lyme thread. I have told our Lyme support group...
Nerdygingergal, my main symptom with Lyme is feeling like I am in a rocking boat anytime I am out of bed. This has been going on for nearly 20 months. Meclizine made it worse but Diazapam has helped....