Did you get dx'd and treated?...
Hey, did you ever get a POTS diagnosis?...
What strains helped?...
Anyone take ACE inhibitor like Lisinopril for their migraine? Did it work?...
How well does it work?...
I feel like everyone posts and then maybe finds something that works and then never seen again?...
For those who have done it... how long was it for? Did it work? Did the effects last? Was it done at Jefferson?...
Any update on how people are doing with the IV lidocaine?...
Anyone have these? Are they treated uniquely. Mine developed after a terrible reaction to pseudoephedrine. Anyone ever have their first migraine after something like this?...
I also had positive western blot, treated thoroughly, didn't get better, then find out I had toxocara, strongyloides, west nile virus, and POTS. There was a reason I wasn't getting better, my doc...
No, you're making the same point as I am; treating something that isn't there is not the way to go. Whether that's lyme, fibro, MS, etc. It's about seeing every specialist in the book to find the...
Never said anyone should take a lyme diagnosis lightly. It has to be a real diagnosis though. If you get better after antibiotics, then I'm sure you probably had an infection, lyme or otherwise. But...
This is exactly what I'm talking about... unfounded claims. POTS is not only caused by lyme. It has many causes....
For instance, fibromyalgia like you said "Although fibromyalgia is often considered an arthritis-related condition, it is not truly a form of arthritis " "There are wide differences of opinions on...
I don't think that's right. I had been sick for many years, and I had 8 bands. People get a lot of their info and logic from the boards and heresay, but diseases cause high immune system reactions....
Fibromyalgia, POTS syndrome, many other infections. I had someone recently tell me about how they were in a wheelchair, tested negative for lyme but saw an LLMD who thought it was lyme, but also...
This is part of my point though. You had other illnesses, not just Lyme. If you had just continued on and on treating lyme, you never would have gotten better. How long did it take you to heal up?...
I had lyme for a long time before being diagnosed with 8 positive bands on the western blot. I also do not believe in "chronic lyme." There is no evidence to prove the bacteria exists beyond course...
So I'll probably get raked over the coals for this, but it seems to me that almost all of the people I talk to and read about invariably end up saying "I didn't test positive but was diagnosed by an...
First off I just want to start by saying I can't find anything about migraines and Amlodipine on this forum or on Reddit's forum. I wonder why that is? Maybe because sick people don't tend to post on...
Anyone tried this? I've heard about Jefferson Headache Clinic doing this, but they book out 6 months, and I know of a place in Texas called Anodyne Headache Clinic that does this but they only do it...